Restless Legs Syndrome (RLS) Discussion Board

After overcoming his resistance, I taught my spouse how to karate chop my calves and back of my thighs—although I have to catch him in the right mood

After seeing one of these on sale recently, I’ve been wondering about using one for my symptoms—now I know and will give it a shot

Hey pexj—I’m glad you found this forum and are finding it helpful. I was in a desolate wilderness of worsening RLS symptoms, living in a rural area, and not knowing anyone with chronic RLS, until I came across the forum in the midst of the agony of full-blown augmentation. That was eight years ago ...

Congratulations on 51 years together!! That is amazing and wonderful! Inspiring too. But it’s your last sentence that inspires and moves me the most, about taking care of each other and recognizing each other’s challenges. That strikes me as real devotion to one another whatever the circumstances ...

Thank you Rustsmith for taking the time to share. Reading your post I felt very sad and empathetic for you. I get the impression you fight on through each setback, and you seem to have your wife’s support. I’m very lucky to have my spouse’s, even though, as you likely know, our conditions are at ...

I’m 60 years old and have had RLS for 25 years. It has gotten steadily worse over the last ten years. In those ten years, I’ve slogged through the whole RLS nightmare: multiple augmentations, indifferent/incompetent doctors, infuriating battles with health insurance companies, most of the drugs ...

Similar symptom progression: from classic need-to-move twitchiness to, twenty plus years later, sudden energy build-up—bordering on a cramp—in my hip joints releasing within seconds a powerful spastic kick. Happens in only one hip at time but left hip more often than right because I suspect ...

Have you asked your doctor about upping Horizant? I take 1200 mg once per day in evening. I believe max dose is 1800 mg. A shot in the dark, but worthy of a discussion with your doc, especially if the drug’s cost isn’t huge. Or, if you’ve not augmented before on DAs, 1 or 2mg Neupro patch for ...

Been on Horizant ER 1200mg/day consistently for 5 years, despite having changed everything else many times in this time period. My experience is like other posters: really good for sleep, not so much for need to move symptoms. Often, I just need to get to sleep and stay asleep to avoid having ...

Bannia—hoping you’ve found something to work in the months since you OP’d. It certainly sounds like you went through an utterly wretched period there—far worse than anything I’ve experienced with this d@mn syndrome.

Ratfancy-for me, difference between methadone and buprenorphine was night and day ...

Hey Brooke—Welcome! I hope you find the forum as helpful and supportive as I.

I’ve used Kratom off and on for some years for RLS. It was a godsend the two times I augmented! It’s not my favorite thing in the world to take (taste, smell, indigestion), but it’s less awful than Rx opioids to manage ...

Hello All—many months since I last posted, which means my RLS symptoms were well managed. However, all good things must come to an end. Augmentation on Neupro hit me this winter. After two weeks of brutal, nightmarish misery, I’m almost back to “normal.” I say never, ever again to DAs! You would ...

My spouse and I have been video-conferencing for virtual happy hours, a virtual dinner party last Saturday, and now even with our health care providers. After having to participate and present in video conferences at work, I loathed the idea of socializing this way. But much my surprise, it’s been ...

Bridgercan adn everyone—be careful with potting soil, wear a mask and gloves when opening a bag and using the soil from a bag. Legionnaires disease can be deadly. Recently a fit healthy 40-ish year old man in my town was in intensive care for a month because of potting soil.

WTH?!? that’s crazy ...

Getting a CPAP Saturday afternoon and will look to make the switch soon after

Hey Icantsleep—wondering if you got your cpap and how cpap therapy is going? Hope it’s making a difference for you; you’ve got a lot of challenges going on. So good on you for staying in the fight for yourself and your ...

Deb—sorry to hear about your daughter—that’s a long recovery time! Stressful for you too.

You’re right about being in a movie—everything suddenly so weird and turned on its head.

Once my spouse and I decided my health was worth more than my meager salary, I put in for unpaid leave of absence my ...