Search found 67 matches
- Mon Jan 22, 2024 1:58 am
- Forum: General Topics: RLS
- Topic: What’s the end game?
- Replies: 7
- Views: 1940
Re: What’s the end game?
Congratulations on 51 years together!! That is amazing and wonderful! Inspiring too. But it’s your last sentence that inspires and moves me the most, about taking care of each other and recognizing each other’s challenges. That strikes me as real devotion to one another whatever the circumstances; t...
- Fri Jan 19, 2024 10:21 am
- Forum: General Topics: RLS
- Topic: What’s the end game?
- Replies: 7
- Views: 1940
Re: What’s the end game?
Thank you Rustsmith for taking the time to share. Reading your post I felt very sad and empathetic for you. I get the impression you fight on through each setback, and you seem to have your wife’s support. I’m very lucky to have my spouse’s, even though, as you likely know, our conditions are at tim...
- Tue Jan 16, 2024 10:26 pm
- Forum: General Topics: RLS
- Topic: What’s the end game?
- Replies: 7
- Views: 1940
What’s the end game?
I’m 60 years old and have had RLS for 25 years. It has gotten steadily worse over the last ten years. In those ten years, I’ve slogged through the whole RLS nightmare: multiple augmentations, indifferent/incompetent doctors, infuriating battles with health insurance companies, most of the drugs pres...
- Thu Nov 23, 2023 9:19 pm
- Forum: Prescription Medications
- Topic: Continuous movement vs spasm
- Replies: 4
- Views: 10989
Re: Continuous movement vs spasm
Similar symptom progression: from classic need-to-move twitchiness to, twenty plus years later, sudden energy build-up—bordering on a cramp—in my hip joints releasing within seconds a powerful spastic kick. Happens in only one hip at time but left hip more often than right because I suspect osteoart...
- Wed Jun 21, 2023 6:42 pm
- Forum: Prescription Medications
- Topic: Daytime breakthrough
- Replies: 5
- Views: 6993
Re: Daytime breakthrough
Have you asked your doctor about upping Horizant? I take 1200 mg once per day in evening. I believe max dose is 1800 mg. A shot in the dark, but worthy of a discussion with your doc, especially if the drug’s cost isn’t huge. Or, if you’ve not augmented before on DAs, 1 or 2mg Neupro patch for daytim...
- Wed Jun 21, 2023 6:33 pm
- Forum: Prescription Medications
- Topic: How does community feel about Horizant?
- Replies: 16
- Views: 12262
Re: How does community feel about Horizant?
Been on Horizant ER 1200mg/day consistently for 5 years, despite having changed everything else many times in this time period. My experience is like other posters: really good for sleep, not so much for need to move symptoms. Often, I just need to get to sleep and stay asleep to avoid having sympto...
- Wed Jun 21, 2023 6:18 pm
- Forum: Prescription Medications
- Topic: What Comes After Methadone?
- Replies: 23
- Views: 19681
Re: What Comes After Methadone?
Bannia—hoping you’ve found something to work in the months since you OP’d. It certainly sounds like you went through an utterly wretched period there—far worse than anything I’ve experienced with this d@mn syndrome. Ratfancy-for me, difference between methadone and buprenorphine was night and day: m...
- Wed Jun 21, 2023 10:59 am
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: New to Kratom
- Replies: 1
- Views: 13577
Re: New to Kratom
Hey Brooke—Welcome! I hope you find the forum as helpful and supportive as I. I’ve used Kratom off and on for some years for RLS. It was a godsend the two times I augmented! It’s not my favorite thing in the world to take (taste, smell, indigestion), but it’s less awful than Rx opioids to manage bre...
- Mon Mar 28, 2022 4:39 am
- Forum: Prescription Medications
- Topic: DAs never ever again; now what?
- Replies: 3
- Views: 1447
DAs never ever again; now what?
Hello All—many months since I last posted, which means my RLS symptoms were well managed. However, all good things must come to an end. Augmentation on Neupro hit me this winter. After two weeks of brutal, nightmarish misery, I’m almost back to “normal.” I say never, ever again to DAs! You would thi...
- Tue Mar 24, 2020 5:43 am
- Forum: Everything Else...just no RLS!
- Topic: Stay Safe!
- Replies: 32
- Views: 27560
Re: Stay Safe!
My spouse and I have been video-conferencing for virtual happy hours, a virtual dinner party last Saturday, and now even with our health care providers. After having to participate and present in video conferences at work, I loathed the idea of socializing this way. But much my surprise, it’s been q...
- Tue Mar 24, 2020 5:10 am
- Forum: Everything Else...just no RLS!
- Topic: Stay Safe!
- Replies: 32
- Views: 27560
Re: Stay Safe!
Bridgercan adn everyone—be careful with potting soil, wear a mask and gloves when opening a bag and using the soil from a bag. Legionnaires disease can be deadly. Recently a fit healthy 40-ish year old man in my town was in intensive care for a month because of potting soil. WTH?!? that’s crazy! Wh...
- Tue Mar 24, 2020 5:04 am
- Forum: Prescription Medications
- Topic: How to tolerate ADVERSE effects of tramadol
- Replies: 8
- Views: 1302
Re: How to tolerate ADVERSE effects of tramadol
Getting a CPAP Saturday afternoon and will look to make the switch soon after Hey Icantsleep—wondering if you got your cpap and how cpap therapy is going? Hope it’s making a difference for you; you’ve got a lot of challenges going on. So good on you for staying in the fight for yourself and your fa...
- Fri Mar 20, 2020 7:34 am
- Forum: Everything Else...just no RLS!
- Topic: Stay Safe!
- Replies: 32
- Views: 27560
Re: Stay Safe!
Deb—sorry to hear about your daughter—that’s a long recovery time! Stressful for you too. You’re right about being in a movie—everything suddenly so weird and turned on its head. Once my spouse and I decided my health was worth more than my meager salary, I put in for unpaid leave of absence my empl...
- Mon Feb 03, 2020 12:04 pm
- Forum: Just Joined?
- Topic: Coping with Augmented RLS and Bipolor
- Replies: 15
- Views: 2637
Re: Coping with Augmented RLS and Bipolor
Hello David—first off, thank you for sharing; you never know, just by sharing your experiences, how you can inspire another tortured soul to hang in there, to stay with us in this world, and get to a better place. Your long hard journey resonates very much with me and parallels what I’ve gone throug...
- Fri Jan 17, 2020 8:43 am
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Magnesium pills
- Replies: 8
- Views: 5189
Re: Magnesium pills
For a brief overview of some of the types of magnesium, benefits, side effects, and studies thereof: https://examine.com/supplements/magnesium/ Examine.com is a website I find helpful for its analysis of published scientific studies on dietary supplements. I supplement at night with a form of magnes...