Search found 67 matches

by Bridgercan
Mon Jan 22, 2024 1:58 am
Forum: General Topics: RLS
Topic: What’s the end game?
Replies: 7
Views: 913

Re: What’s the end game?

Congratulations on 51 years together!! That is amazing and wonderful! Inspiring too. But it’s your last sentence that inspires and moves me the most, about taking care of each other and recognizing each other’s challenges. That strikes me as real devotion to one another whatever the circumstances; t...
by Bridgercan
Fri Jan 19, 2024 10:21 am
Forum: General Topics: RLS
Topic: What’s the end game?
Replies: 7
Views: 913

Re: What’s the end game?

Thank you Rustsmith for taking the time to share. Reading your post I felt very sad and empathetic for you. I get the impression you fight on through each setback, and you seem to have your wife’s support. I’m very lucky to have my spouse’s, even though, as you likely know, our conditions are at tim...
by Bridgercan
Tue Jan 16, 2024 10:26 pm
Forum: General Topics: RLS
Topic: What’s the end game?
Replies: 7
Views: 913

What’s the end game?

I’m 60 years old and have had RLS for 25 years. It has gotten steadily worse over the last ten years. In those ten years, I’ve slogged through the whole RLS nightmare: multiple augmentations, indifferent/incompetent doctors, infuriating battles with health insurance companies, most of the drugs pres...
by Bridgercan
Thu Nov 23, 2023 9:19 pm
Forum: Prescription Medications
Topic: Continuous movement vs spasm
Replies: 4
Views: 6027

Re: Continuous movement vs spasm

Similar symptom progression: from classic need-to-move twitchiness to, twenty plus years later, sudden energy build-up—bordering on a cramp—in my hip joints releasing within seconds a powerful spastic kick. Happens in only one hip at time but left hip more often than right because I suspect osteoart...
by Bridgercan
Wed Jun 21, 2023 6:42 pm
Forum: Prescription Medications
Topic: Daytime breakthrough
Replies: 5
Views: 3656

Re: Daytime breakthrough

Have you asked your doctor about upping Horizant? I take 1200 mg once per day in evening. I believe max dose is 1800 mg. A shot in the dark, but worthy of a discussion with your doc, especially if the drug’s cost isn’t huge. Or, if you’ve not augmented before on DAs, 1 or 2mg Neupro patch for daytim...
by Bridgercan
Wed Jun 21, 2023 6:33 pm
Forum: Prescription Medications
Topic: How does community feel about Horizant?
Replies: 16
Views: 7623

Re: How does community feel about Horizant?

Been on Horizant ER 1200mg/day consistently for 5 years, despite having changed everything else many times in this time period. My experience is like other posters: really good for sleep, not so much for need to move symptoms. Often, I just need to get to sleep and stay asleep to avoid having sympto...
by Bridgercan
Wed Jun 21, 2023 6:18 pm
Forum: Prescription Medications
Topic: What Comes After Methadone?
Replies: 23
Views: 12865

Re: What Comes After Methadone?

Bannia—hoping you’ve found something to work in the months since you OP’d. It certainly sounds like you went through an utterly wretched period there—far worse than anything I’ve experienced with this d@mn syndrome. Ratfancy-for me, difference between methadone and buprenorphine was night and day: m...
by Bridgercan
Wed Jun 21, 2023 10:59 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New to Kratom
Replies: 1
Views: 10366

Re: New to Kratom

Hey Brooke—Welcome! I hope you find the forum as helpful and supportive as I. I’ve used Kratom off and on for some years for RLS. It was a godsend the two times I augmented! It’s not my favorite thing in the world to take (taste, smell, indigestion), but it’s less awful than Rx opioids to manage bre...
by Bridgercan
Mon Mar 28, 2022 4:39 am
Forum: Prescription Medications
Topic: DAs never ever again; now what?
Replies: 3
Views: 1356

DAs never ever again; now what?

Hello All—many months since I last posted, which means my RLS symptoms were well managed. However, all good things must come to an end. Augmentation on Neupro hit me this winter. After two weeks of brutal, nightmarish misery, I’m almost back to “normal.” I say never, ever again to DAs! You would thi...
by Bridgercan
Tue Mar 24, 2020 5:43 am
Forum: Everything Else...just no RLS!
Topic: Stay Safe!
Replies: 32
Views: 20044

Re: Stay Safe!

My spouse and I have been video-conferencing for virtual happy hours, a virtual dinner party last Saturday, and now even with our health care providers. After having to participate and present in video conferences at work, I loathed the idea of socializing this way. But much my surprise, it’s been q...
by Bridgercan
Tue Mar 24, 2020 5:10 am
Forum: Everything Else...just no RLS!
Topic: Stay Safe!
Replies: 32
Views: 20044

Re: Stay Safe!

Bridgercan adn everyone—be careful with potting soil, wear a mask and gloves when opening a bag and using the soil from a bag. Legionnaires disease can be deadly. Recently a fit healthy 40-ish year old man in my town was in intensive care for a month because of potting soil. WTH?!? that’s crazy! Wh...
by Bridgercan
Tue Mar 24, 2020 5:04 am
Forum: Prescription Medications
Topic: How to tolerate ADVERSE effects of tramadol
Replies: 8
Views: 1233

Re: How to tolerate ADVERSE effects of tramadol

Getting a CPAP Saturday afternoon and will look to make the switch soon after Hey Icantsleep—wondering if you got your cpap and how cpap therapy is going? Hope it’s making a difference for you; you’ve got a lot of challenges going on. So good on you for staying in the fight for yourself and your fa...
by Bridgercan
Fri Mar 20, 2020 7:34 am
Forum: Everything Else...just no RLS!
Topic: Stay Safe!
Replies: 32
Views: 20044

Re: Stay Safe!

Deb—sorry to hear about your daughter—that’s a long recovery time! Stressful for you too. You’re right about being in a movie—everything suddenly so weird and turned on its head. Once my spouse and I decided my health was worth more than my meager salary, I put in for unpaid leave of absence my empl...
by Bridgercan
Mon Feb 03, 2020 12:04 pm
Forum: Just Joined?
Topic: Coping with Augmented RLS and Bipolor
Replies: 15
Views: 2429

Re: Coping with Augmented RLS and Bipolor

Hello David—first off, thank you for sharing; you never know, just by sharing your experiences, how you can inspire another tortured soul to hang in there, to stay with us in this world, and get to a better place. Your long hard journey resonates very much with me and parallels what I’ve gone throug...
by Bridgercan
Fri Jan 17, 2020 8:43 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Magnesium pills
Replies: 8
Views: 4889

Re: Magnesium pills

For a brief overview of some of the types of magnesium, benefits, side effects, and studies thereof: https://examine.com/supplements/magnesium/ Examine.com is a website I find helpful for its analysis of published scientific studies on dietary supplements. I supplement at night with a form of magnes...