Search found 143 matches

by Brynmr
Wed Mar 20, 2024 6:28 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

Yes, I liked the neurologist. He said he'd post the results of our appointment on MyChart but I haven't seen it yet. I did ask that he send the oxy suggestion to pain management which he said he would. PM appointment in 2 weeks. I also sent my neurologist's suggestions to my GP. I asked the Neurolog...
by Brynmr
Wed Mar 20, 2024 6:18 am
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

I had an appointment with a neurologist today. He asked me questions - particularly what RLS felt like for me. That was difficult to answer. My description of "boiling vinegar" didn't impress him, neither did wanting to crawl out of my skin. I finally ending up saying RLS just felt creepy crawly. He...
by Brynmr
Tue Mar 19, 2024 12:59 am
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

The doctor at pain management today suggested that the increase in symptoms since the operation might be linked to the chemo pill I'm taking daily. This is the first time I've heard this one. Anyone else has any knowledge of this. I talked about the iron levels and he said he'd look into it. My seco...
by Brynmr
Tue Mar 19, 2024 12:53 am
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

Would your doctor be willing to put you on an extended-release Oxy? It is a little bit more expensive but worth it as it would get you through the night, they only come in 10mg and higher though. I would ask your doctor if they would be willing to put you on a nighttime Oxy ER and see if they are w...
by Brynmr
Fri Mar 15, 2024 3:10 am
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

Also, don't be surprised if the doctor wants to wean you off of opioids. That is what many pain doctors do as they try to divert pain patients to other forms of treatment. You might want to share this Mayo publication with him/her at your first appointment. https://www.mayoclinicproceedings.org/art...
by Brynmr
Fri Mar 15, 2024 3:07 am
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

My GP referred me to Neurology to have my condition evaluated. I had asked for a specialist in treating RLS patients. I'm not sure this is what I got.

TY Betty. :)
by Brynmr
Thu Mar 14, 2024 5:51 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

I hope that you have better luck with the pain doctor than I had. When my GP was retiring, she gave me a referral to a pain management doctor. I made an appointment and a few days before the appointment, I received an email from the staff telling me that my appointment had been canceled because the...
by Brynmr
Thu Mar 14, 2024 4:26 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

Your doctor has accepted that 20 is normal. We know that an rls sufferer needs to be up around 100. You could show him the Mayo Algorithm in my signature, in particular the section near the top where it refers to this and to the benefits of iron therapy. Hello, not sure what you mean by 20. My ferr...
by Brynmr
Thu Mar 14, 2024 1:29 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

As I expected, my doctor said all is normal. Do I look for a specialist? I have an appointment with a pain management facility on the 18th so maybe that will help.
by Brynmr
Thu Mar 14, 2024 2:02 am
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

When you ask your doctor to check your iron levels, be sure to ask to have your ferritin checked too. Ferritin is not part of the normal blood iron test and is the most important iron criteria for RLS. Further, when you get the results, don't accept a report of "Normal", be sure to the the number. ...
by Brynmr
Fri Mar 08, 2024 7:28 am
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

At noon today (before symptoms began) I took .25mg Requip. It had no effect so symptoms had me reaching for an oxy pill at about 2:00. Tonight I took .5mg Requip at 9:00 but was not as effective as last night. At 1:00 am, an hour ago, I took 5mg oxy and found relief. I may have another appointment a...
by Brynmr
Thu Mar 07, 2024 12:36 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

I don't have enough oxy to make it to the 22nd so out of desperation I tried Requip again late last night when symptoms were active. But this time taking double the dosage: .5mg from .25mg (.25mg didn't do anything for me previously). Well, it worked. It got rid of the symptoms but made me feel drug...
by Brynmr
Wed Mar 06, 2024 9:10 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

So I gave my GP all the information and link to the Mayo studies. I had previously asked for an increase to my oxy prescription saying I needed to take 15mg a day due to increased symptoms but was denied. Today I told my GP that I only had 7 days of oxy left @15mg a day. Their response: "Your prescr...
by Brynmr
Wed Mar 06, 2024 7:17 am
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

I'm in SC Upstate. 6 hour drive. You know with all the amazing technology these days I don't know why we have to be there in person. Our GPs can verify all the vitals/information. Let's bring all this into the 21st century. 6 hours isn’t bad, I’d say it might be worth the drive. I was considering f...
by Brynmr
Wed Mar 06, 2024 7:15 am
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

There are two issues. First is that the FDA's telemedicine rules require that you must already be a patient of the doctor. That means that you must have an in person appointment before you can use telemedicine. The FDA recently tried to do away their pandemic rule that allowed telemedicine and they...