Restless Legs Syndrome (RLS) Discussion Board

Well, as of today, the Lyrica at 450 mg is working great. Again, I take it around 4-5 pm, then before bed, around 9ish, I take a 1mg Klonopin. I usually sleep until about 12:30 am, wake up and take another 1 mg of Klonopin and sleep until about 4:30 am. I have not slept this long in years. The herky...

Congratulations on making it through that hellish experience. Thank you for returning to tell us of it! You didn't ramble at all. But you're allowed to ramble here if you want to Someone on this blog said Effexor can exacerbate RLS symptoms, and apparently that's what was happening for YEARS. Along...

Gayle - forgive me if I have missed it. Are you now completely off your Mirapex? I applaud you having coped with such bad time and getting to where you are now. I am completely off the Mirapex. It was hell going through the withdrawals of that and Effexor at the same time. For 3 days I was just cra...

I'm looking back at all our comments and I see so many of you were absolutely spot on with your thoughts and words!

I apologize for not returning for so long. I kept thinking this was a FB page and then I couldn't find it by Googling until I checked through many sites. Then the holidays... Anyway, I have truly been to hell and back with my RLS. There were about 3 days, while coming down off of the Effexor and Mir...

Thanks ALL for your replies. There's been a few new developments since I last wrote. But I don't have time to write it all! I'll get back to you soon and let you know! Hopefully, later today. Thank you all.

Thanks Betty. I did mean Unisom but my spellcheck prefers Unison! I've always had trouble taking cold preparations, pills or capsules because they do wire me and so I stay away from those. I didn't realize those ingredients were also in sleep aides. Last night, I found an old bottle of clonazepam, g...

When I have more time, I will try to go back and read some of the members stories. My daughter suggested taking Unison. I took one earlier. So I will see how that goes. My husband is a saint for putting up with me.

Wow. I just don't know how to get though this. And if I can't get through it, I don't know what I will do. I can't go on like this. Maybe I will cut the Ambien in half and see how it goes, if my legs won't let me sleep tonight.

Thank you for replying. Gabapentin has not worked for me in the past. This is all new for me. Wellbutrin 3x a day. And 2 Lyrics about2-3 hours before bedtime. Last night, I was again, so desperate for the jerking to stop. I took an Ambien. Apparently, I had a bad reaction because my husband chased m...

I would like to know if anyone else is taking Lyrica for RLS. I cannot find in any of the pages I have read, where it is helpful for RLS. Thank you!

Thank you. I will do that.

I don't have access anymore to my previous patient portal, as I have a different hematologist. As of last October, my ferritin was 178 ng/mL. The last infusion I had was probably last spring. I know the numbers have dropped since then, according to my doctor. I feel I need to clarify my medications....

Let me get back to you about the ferritin levels. Mirapex, pramipexole is successful to stop the symptoms about 25% of the time. But when it does help, I am almost always awakened from a decent sleep period with vomiting. So, it's a trade-off, most of the time.

Oh, I forgot to mention Tramadol. It was of no help, either.