Search found 19 matches

by zeefy
Fri Dec 06, 2019 5:09 pm
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 17
Views: 2089

Re: Iron Infusion Worked for me

I forwarded the doctor literature, to support my request. I think there's a white paper on the benefits of IV Infusion floating around on this site. I sent it to the doc. I think it helped a lot.
by zeefy
Mon Dec 02, 2019 2:53 am
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 17
Views: 2089

Iron Infusion Worked for me

Hi All. I just wanted to post an update. I finally had an iron infusion and it seems to have cured my severe RLS. I showed improvements within 6 hours and was able to sleep through the night by two weeks. It was prescribed by a hemotologist (Dextran). Hopefully, it will last. I take oral iron supple...
by zeefy
Mon Jul 15, 2019 2:06 pm
Forum: Physical Treatments
Topic: Weight loss
Replies: 5
Views: 836

Re: Weight loss

stjohnh wrote:I don't know. I do know that weight gain does NOT stop it. LOL.
LOL. I keep reading that being overweight increases your chances of getting RLS, but I haven't heard anyone mention weight loss as a remedy.
by zeefy
Mon Jul 15, 2019 5:05 am
Forum: Physical Treatments
Topic: Weight loss
Replies: 5
Views: 836

Weight loss

Does anyone know if weight loss helps stop RLS? Thanks
by zeefy
Fri Jul 12, 2019 11:33 pm
Forum: Prescription Medications
Topic: Iron Dextran IV
Replies: 2
Views: 193

Iron Dextran IV

I was just approved for an Iron Dextran IV treatment. I'll be getting it next week. I heard you need to stop taking oral iron supplements before the treatment. Does anyone know anything about that? Such as, how long beforehand do you need to stop?
by zeefy
Fri Jul 12, 2019 11:12 pm
Forum: Augmentation
Topic: How long to wean off ropinirole?
Replies: 20
Views: 1212

Re: How long to wean off ropinirole?

moving to other topic
by zeefy
Fri Jul 12, 2019 1:38 pm
Forum: Prescription Medications
Topic: Started gabapenten - no relief
Replies: 25
Views: 835

Re: Started gabapenten - no relief

Fruno, that sounds exactly like what I experienced. Last night, I didn't take it. My arms were fine and I slept for 3 hours straight, then two more hours of interrupted sleep. 5 hours of sleep total. Finally.
by zeefy
Thu Jul 11, 2019 11:59 pm
Forum: Augmentation
Topic: How long to wean off ropinirole?
Replies: 20
Views: 1212

Re: How long to wean off ropinirole?

Thanks Ann!

Do you find Yoga helps?

I have a neurologist appt. in October (on waitlist), and hemotologist appt. in 2 weeks. Hoping to get iron IV treatment.
by zeefy
Thu Jul 11, 2019 11:56 pm
Forum: Prescription Medications
Topic: Started gabapenten - no relief
Replies: 25
Views: 835

Re: Started gabapenten - no relief

How long does it take for the Ropinirole effects to go away?

I have an appt. with a neurologist set for October. Primary Doc and ER refused to give me Iron IV OR opiods. I also have an appt. with my hemotologist in two weeks, and I will ask her for an iron IV infusion too.
by zeefy
Thu Jul 11, 2019 11:21 pm
Forum: Prescription Medications
Topic: Started gabapenten - no relief
Replies: 25
Views: 835

Re: Started gabapenten - no relief

Hi Holland! I am referring to the 900 mg from the ER. I was told to start it gradually. I am now so scared to take anything that makes me sleepy, since my fall. I want a drug to help with the jumpy legs, but not make my mind foggy or sleepy. If this Gabapenten is more effective as a sleep aid then j...
by zeefy
Thu Jul 11, 2019 10:39 pm
Forum: Prescription Medications
Topic: Started gabapenten - no relief
Replies: 25
Views: 835

Started gabapenten - no relief

I was just prescribed Gabapenten, after stopping Ropinirole. The first day, I took 300 mg before bed. The second night, I took 600 mg before bed. Both times I experienced NO relief, my RLS seemed suddenly strong in my arms, and I was groggy headed. I'm not sure if I should even bother taking 900 mg ...
by zeefy
Tue Jul 09, 2019 10:36 pm
Forum: Augmentation
Topic: How long to wean off ropinirole?
Replies: 20
Views: 1212

Re: How long to wean off ropinirole?

Oh, I wish that were true. :) I have always been tired. And I've never had a problem feeling "okay" as long as I'm on my feet, walking. If I could fall asleep while laying down = then I'd feel like I was on the road to getting better.
by zeefy
Tue Jul 09, 2019 9:14 pm
Forum: Augmentation
Topic: How long to wean off ropinirole?
Replies: 20
Views: 1212

Re: How long to wean off ropinirole?

Thanks so much for your feedback. I fell asleep while pacing the floor, which is how/why I fell. I don't know much about kramdon - need to look into that more. Thanks so much for the link! All the input is so helpful.
by zeefy
Tue Jul 09, 2019 6:42 pm
Forum: Augmentation
Topic: How long to wean off ropinirole?
Replies: 20
Views: 1212

Re: How long to wean off ropinirole?

Last night, I fell. I woke up on the floor. It was horrific. I went to my primary and she said "all I can do is perscribe Ropinirole. Go to the ER". I went to the ER and they gave me 900 mg of gabapentin and told me to see a specialist. Both refused to do blood testing or iron infusions. What should...
by zeefy
Mon Jul 08, 2019 9:09 am
Forum: Augmentation
Topic: How long to wean off ropinirole?
Replies: 20
Views: 1212

Re: How long to wean off ropinirole?

I weaned down over 4 days and am now on my 5th night if no ropinirole and I feel tortured still. 9 days total of no sleep and tonight was worst night ever. I thought the worse would be behind me by now. I have doc appt tomorrow and don’t know what I’ll do if she denies me opioids. I am the walking d...