Restless Legs Syndrome (RLS) Discussion Board

I had the same issue as rustsmith. My SHBG was sky high and was binding up all my testosterone leading to a very low free T value. I had hot flashes, nerve pain, ED, depressive spells, etc. Definitely worth checking your SHBG and Free T as well.

I would recommend going to UPMC in Pittsburgh and seeing Dr. Aggarwal. That is by far the closest RLS quality care center to you and while I haven't seen him myself, I have heard very good things and he wouldn't be certified if he didn't know what he was talking about. With RLS that bad it would ...

I have very recently started using the Nidra device and I have a few questions that I'm hoping more experienced users might be able to share their experiences on. I'm also curious to see which ways of doing things work better for others.


1. Can you turn on the device while it is charging? Ideally ...

I tend to be quite sensitive to meds so hopefully you'll have a different experience, but for me medications like xanax were helpful for a while, but in a relatively short period of time (~6 months) I built up a tolerance and had to take twice the dose for half the benefit. Also, I know 2 hours is a ...

The half life of buprenorphine is 38 hrs, so it isn't a matter of it not lasting for 24 hrs but it could be that after all this time, you need a bit higher dose and so you might be dropping below the dose that you need to control your RLS and other symptoms, especially with increased inflammation ...

I take Buprenorphine every day at 330pm for my severe RLS. I've been on the same dose for about 4 years now. Recently though I've been having issues with increased levels of inflammation, muscle aches, fatigue, brain fog, anxiety, and depression. I've noticed that these things seem to be less severe ...

I couldn't agree with Quietlegs more. A lot of money for something I do't even know if it will work. If I knew it was the whole solution I would order one today. As an engineer I always thought some kind of feedback to the impulses we feel would work (not sure that is what this "Tonic Motor ...

Has anyone ever had their RLS made worse by an 'inactive' ingredient in a medication?

What do you all use to treat allergy symptoms? Are there any options aside from zyrtec, claritin, and allegra?

I have been having major issues with allergies for the first time in my life and have run into a problem treating them. I know enough not to take benadryl and similar medications, so I ...

My RLS has progressed pretty similar to yours. It began solely in my legs with that urge to move sensation, and now it can happen all over my body and is more like an involuntary spasm with a split second of forewarning. When I'm not treated adequately with my opioid medication the spasms are ...

Has anyone been to the RLS quality care center in Pittsburgh? If so I'd really appreciate any insights you might have on UPMC and Dr. Aggarwal. Im considering moving but as you all well know having a good doctor you can trust is a necessity for us.

https://n.neurology.org/content/82/21/e185
"The investigators showed that reduced leg oxygen levels were strongly associated with RLS symptom severity in untreated patients. They also showed that leg oxygen levels partially improved after dopamine medicine was restarted.3 Reduced leg oxygen levels ...

I've been tinkering around and noticed I do quite a bit better at lower elevations, and am currently tinkering with humidity levels to confirm whether that makes a difference. It seems to help my RLS severity but also just my general quality of sleep to a surprising degree. Does anyone else have ...

There is a study being done by Dr. Ondo in Houston (I believe I may not have those exact details right) to test apomorphine for RLS patients, so it may be a potential option for us eventually but at the moment there really isn't much evidence one way or the other.

I would definitely experiment with taking both meds earlier than 9pm. An hour and a half isn't enough time for them to do their job fully. Try 8 for a few nights, then 7, then 6 and keep a quick sleep journal to more easily compare the differences. Also I dont know if that is how it was prescribed ...