Search found 6 matches

by aacoleman
Thu May 02, 2019 9:39 am
Forum: Augmentation
Topic: Is this really my new "normal"?
Replies: 17
Views: 14343

Re: Is this really my new "normal"?

It has now been 4 days and I am very close to giving up and taking some of the pramipexole. I think I have slept maybe 5 hours in the last 48 hours. My GP is being very difficult about even reading the RLS literature, wants to refer me to a neuro before any other treatment options are considered, an...
by aacoleman
Tue Apr 30, 2019 1:11 am
Forum: Augmentation
Topic: Is this really my new "normal"?
Replies: 17
Views: 14343

Re: Is this really my new "normal"?

Did you stop today, or if not, how long have you been off the pramipexole? It has been two days. Many people with moderate to severe RLS are more bothered by the sleep problems than the urge to move problems of RLS. The urge to move symptom is mostly mediated through the dopamine pathways, and the ...
by aacoleman
Mon Apr 29, 2019 9:56 pm
Forum: Augmentation
Topic: Is this really my new "normal"?
Replies: 17
Views: 14343

Re: Is this really my new "normal"?

I was taking a low dose opioid along with four other meds when I was switched to methadone. It was wonderful. I was able to wean off of everything else. But for the first couple if months I had a side affect of nausea. Finally that stopped. I have little to no experience with opioids, other than vi...
by aacoleman
Mon Apr 29, 2019 8:43 pm
Forum: Augmentation
Topic: Is this really my new "normal"?
Replies: 17
Views: 14343

Re: Is this really my new "normal"?

I read the brain-iron study, and went back and checked my most recent ferritin blood work. My most recent level was 169 ug/ml, with a saturation of 53%. Unfortunately, the study recommends against IV iron for patients with <300ug/ml but >45% saturation because of insufficient clinical trials. Should...
by aacoleman
Mon Apr 29, 2019 8:02 pm
Forum: Augmentation
Topic: Is this really my new "normal"?
Replies: 17
Views: 14343

Re: Is this really my new "normal"?

In response to the above replies; I was currently on 200mg seroquel to help with sleep (the chronic insomnia from lifelong RLS has caused brain damage to my verbal memory center - did a sleep study and saw a neurologist and neuropsychologist, had MRIs etc). 2mg pramipexole and off and on I have take...
by aacoleman
Mon Apr 29, 2019 3:54 pm
Forum: Augmentation
Topic: Is this really my new "normal"?
Replies: 17
Views: 14343

Is this really my new "normal"?

Been suffering with RLS since I was a baby. As a toddler I remember lying awake crying in the middle of the night while my mother massaged my legs. They thought I had growing pains. I have never known what it is like to sleep next to another human being, because laying still more than a few minutes ...