Search found 16 matches

by jerrymeadlucero
Sun May 12, 2019 7:14 pm
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 22
Views: 298

Re: New here, just diagnosed but not sure it really is RLS...

Thank you for your reply Betty and well said on the opioids. I am inclined to agree if it is making your life work, than it works. I think I am probably overly cautious due to the opioid hysteria, which I really do fear is going to make life really hard for people like yourself (and perhaps myself) ...
by jerrymeadlucero
Sun May 12, 2019 4:40 am
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 22
Views: 298

Re: New here, just diagnosed but not sure it really is RLS...

Thanks for the reply Holland. So far the three iron tablets are not bothering me and I am taking them with chewable vitamin C as well to make them more bioavailable. Given I suffer from real problems with GERD its a minor miracle that I don't have any issue. On that note, however, I now wonder if my...
by jerrymeadlucero
Fri May 10, 2019 6:19 am
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 22
Views: 298

Re: New here, just diagnosed but not sure it really is RLS...

Hey all, I know several of you have already spent way too much of your time responding to my posts and concerns, but I would really love to hear your thoughts on my last post about the diagnosis and the treatment plan. Any insight is very much welcome.
by jerrymeadlucero
Tue May 07, 2019 2:40 am
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 22
Views: 298

Re: New here, just diagnosed but not sure it really is RLS...

Hey all, update from my neurologist visit today. So I got my ferritin test results. 36!!! And that was after I had already started taking iron supplements for several days. It looks like from all the people I have talked to on this forum, the folks I have talked to on the phone at the Southern Calif...
by jerrymeadlucero
Sun May 05, 2019 6:09 am
Forum: Prescription Medications
Topic: How should I taper of my 1 mg of ropinirole?
Replies: 2
Views: 61

How should I taper of my 1 mg of ropinirole?

I am seeing my neurologist on Monday and want to ask him to taper me off the 1 mg of ropinirole I am taking nightly as it does not seem to be working and I fear augmentation even though I have been on it less than a month. Unfortunately, I don't have a great deal of confidence in my neurologist so I...
by jerrymeadlucero
Sat May 04, 2019 6:18 pm
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 22
Views: 298

Re: New here, just diagnosed but not sure it really is RLS...

I should add one more potentially relevant factor here. 10 days ago I restarted taking my Wellbutrin. Since my neurologist didn't see it as a problem (unlike the Trazadone which he blamed for my symptoms but which I have been off for weeks). And since I had read online several sources indicating Wel...
by jerrymeadlucero
Sat May 04, 2019 6:09 pm
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 22
Views: 298

Re: New here, just diagnosed but not sure it really is RLS...

Beth, you are truly amazing. Thank you so much for putting that document together for me. I have read through it once already and think I will probably need to read through it several more times to digest it all. I am going to mark it up and bring it with me to my neurologist visit on Monday. It doe...
by jerrymeadlucero
Fri May 03, 2019 3:57 am
Forum: Augmentation
Topic: How long before I should worry about augmentation?...
Replies: 8
Views: 310

Re: How long before I should worry about augmentation?...

Good point Beth! I will focus on my post in the "Just Joined" section moving forward I think. And apologies to all if I have been overdoing it with posts in multiple sections of the forums.
by jerrymeadlucero
Fri May 03, 2019 3:55 am
Forum: Prescription Medications
Topic: Anyone ever been told trazadone caused their RLS?...
Replies: 8
Views: 99

Re: Anyone ever been told trazadone caused their RLS?...

Beth, I just replied to your reply post to my first post in the "Just Joined" section, so if you haven't seen that yet, take a look. But I want to say again, thank you, thank you, thank you! You have gone above and beyond with your replies. On the Wellbutrin - Roughly 5 or 6 days after my ...
by jerrymeadlucero
Fri May 03, 2019 3:41 am
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 22
Views: 298

Re: New here, just diagnosed but not sure it really is RLS...

Beth, first I really want to thank you! You have gone above and beyond reading my posts and responding to my questions and concerns. I really owe you a debt. If by some odd chance we ever happen to meet I at least owe you a dinner or a drink or something, LOL! No seriously, your insights are invalua...
by jerrymeadlucero
Thu May 02, 2019 5:55 am
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 22
Views: 298

Re: New here, just diagnosed but not sure it really is RLS...

First off, thank you all for your very thoughtful and helpful replies! It means so much to get your insight as I feel like I am in a black hole of despair at the moment over this. Beth (badnights) what a great through reply. Thank you. To answer your specific questions... Ferritin level: I took a bl...
by jerrymeadlucero
Tue Apr 30, 2019 6:30 pm
Forum: Prescription Medications
Topic: Anyone ever been told trazadone caused their RLS?...
Replies: 8
Views: 99

Re: Anyone ever been told trazadone caused their RLS?...

stjohn and QyX, thank you both for your thoughtful and insightful responses. They are certainly much appreciated. QyX I am very intrigued by what you say as you are the first person to suggest like my neurologist that Trazadone could be an RLS trigger. The pharmacists and a psychiatrist I spoke with...
by jerrymeadlucero
Tue Apr 30, 2019 6:12 am
Forum: Prescription Medications
Topic: Anyone ever been told trazadone caused their RLS?...
Replies: 8
Views: 99

Anyone ever been told trazadone caused their RLS?...

Hi All, My neurologist is convinced my RLS (if that is truly what I have) which started 3 weeks ago was caused by taking Trazodone. I started taking Trazadone at night and Wellbutrin during the day a little over a month ago for mild anxiety and depression. My RLS symptoms started two weeks later. I ...
by jerrymeadlucero
Tue Apr 30, 2019 3:56 am
Forum: Augmentation
Topic: How long before I should worry about augmentation?...
Replies: 8
Views: 310

Re: How long before I should worry about augmentation?...

Rustsmith, thank you so much for your reply. I am really desperate and depressed and any info is really welcome right now. To answer your questions, on ferritin levels, I took a blood test a week ago. I have not heard back from my neurologist yet. I am going to call tomorrow to see if they have the ...
by jerrymeadlucero
Mon Apr 29, 2019 10:35 pm
Forum: Augmentation
Topic: How long before I should worry about augmentation?...
Replies: 8
Views: 310

How long before I should worry about augmentation?...

I have been on 1 mg tablets nightly of ropinirole for over two weeks now. It seems to have helped some but not fully relieved my symptoms. With 1 mg of ropinirole and 600 mg of gabapentin the burning sensation in my legs is gone and they are less sensitive to touch but I still feel some muscle twitc...

Go to advanced search