Search found 29 matches

by James7
Wed Sep 16, 2020 7:21 pm
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Re: Need advice

Your ferritin indicates your BLOOD iron is fine, however that is not the same as BRAIN iron. RLS is caused by BID (Brain Iron Deficiency). Many people with RLS can have their symptoms markedly reduced or even eliminated with IV Iron treatments. This is the only treatment that gets at the basis for ...
by James7
Fri Aug 28, 2020 9:05 pm
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Re: Need advice

This is an excellent book that you may find very informative, it is easy to read and can be used for discussion purposes with your doctor. Clinical Management of Restless Legs Syndrome by Lee, Buchfuhrer, Allen and Hening. Make sure to get the second edition. These Authors are at the top of the lea...
by James7
Thu Aug 27, 2020 4:08 pm
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Re: Need advice

Augmentation is indeed caused by dopaminergic substances - pramipexole, ropinerole, etc. It almost always goes away once you stop the meds. BUT, if you've been augmented a long time (some of us had doctors who didn't understand it and we kept increasing doses for years), you can have progression at...
by James7
Thu Aug 27, 2020 1:14 am
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Re: Need advice

badnights, That's a wealth of information. Augmentation confuses me. I get that RLS worsens with time/age, but augmentation is specific worsening due to medicine (Mirapex); but, it will get better once you're off the med? Whereas breakthrough RLS due to the meds not working will not get better unles...
by James7
Wed Aug 26, 2020 1:46 am
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Re: Need advice

Early this year my doctor told me to stop taking the small dose of Mirapex (0.25mg) that I had been on for about five years. After about a week or so, I found that I needed to increase my methadone dose from 5 to 7.5mg/day to cover my RLS. But after a few more weeks, I found that 7.5mg of methadone...
by James7
Wed Aug 26, 2020 12:11 am
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Re: Need advice

It might be helpful to try and increase your ferritin. It could do with being higher. Also have you ever tried reducing your mirapex. With movement in your shoulders and arms it does sound like DA (mirapex) augmentation. How can you be sure that augmentation of Mirapex is not the issue? It is very ...
by James7
Tue Aug 25, 2020 6:23 pm
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Re: Need advice

Your combined meds are not that different than mine. Your use of buprenorphine is where I am hoping to go in about six months (I have to rotate opioids due to side effects from each). So I don't really have any suggestions beyond that you can try tweaking some of the doses to see what might help. A...
by James7
Tue Aug 25, 2020 6:17 pm
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Re: Need advice

James, Are you taking the dipyridamole for RLS? If so, was it suggested by your doc or some other way? It was effective in a very small demonstration trial but would be considered experimental by most docs. Does it help? Your ferritin indicates your BLOOD iron is fine, however that is not the same ...
by James7
Tue Aug 25, 2020 5:30 pm
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Re: Need advice

Hi James7 - I am not thinking correctly (meds working and I was up early today). What I'd like to know if what meds you started on, how long did you take it at that dose, then what/how much you added, and when. Also - what symptoms dp you have taking this combination? Do you still have an urge to m...
by James7
Tue Aug 25, 2020 4:27 am
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Re: Need advice

I've been taking mirapex for about 1.5 years. My iron level is 72mcg and ferritin is 87ng. I start a new med and get better sleep for about 3-5 months and then symptoms worsen again. Sleep is my goal.
by James7
Tue Aug 25, 2020 12:41 am
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 791

Need advice

I need advice. I am taking a cocktail of sorts and I see a RLS specialist at one of the RLS centers. I am young at 52 years old. My dad has Parkinson's and RLS seems to run in the family, but my case is the most severe. I need advice. What do you guys think of my regimen? I will post the times and d...
by James7
Mon Aug 10, 2020 5:14 am
Forum: Prescription Medications
Topic: dipyramidol 75mg for RLS
Replies: 7
Views: 382

Re: dipyramidol 75mg for RLS

Holland, I take an otc iron supplement, SlowFE. My iron levels look okay according to my neurologist who is a restless leg specialist. Unfortunately I cannot get to sleep and stay asleep because of the leg and other movements. I have movements in my face my arms my legs my shoulders Etc. My doctor a...
by James7
Fri Aug 07, 2020 5:47 pm
Forum: Prescription Medications
Topic: dipyramidol 75mg for RLS
Replies: 7
Views: 382

dipyramidol 75mg for RLS

Has anyone tried dipyramidol 75mg for reduction in RLS symptoms? It is a platelet reducer. New research in 2018 showed promise. I am just wondering if anyone has tried it and what the results were? Side effects? Advice?
by James7
Sun May 31, 2020 2:27 pm
Forum: Prescription Medications
Topic: Buprenorphine vs Methadone
Replies: 4
Views: 424

Buprenorphine vs Methadone

All, I appreciate any input you have regarding how methadone affects mental health and how alerting it is compared to buprenorphine. I am on tramadol Er and buprenorphine currently. I also take clonazepam for mood stabilization. Buprenorphine has really helped RLS, but lately I've noticed significan...
by James7
Sat May 30, 2020 2:03 am
Forum: General Topics: RLS
Topic: Involuntary leg movements & knee surgery
Replies: 7
Views: 474

Re: Involuntary leg movements & knee surgery

Thank you so much