Restless Legs Syndrome (RLS) Discussion Board

Perfect ty!

So this time the doctor gave you feraheme and you notice no difference in the quality of symptom reduction between the two intravenous drugs? Yes I love Doctor who he's always available and he seems very knowledgeable. He truly cares about his patients. The quote was toward the end of the discussion...

I think a spinal tap measures brain iron. He had asked me to do one prior to being medicated-which I declined. He answers my emails within hours every time. Sometimes he will call me. I'll highlight for him and copy and paste your response. I'll ask him why he did not use injectifer and if he could ...

Ok. So I'll print it and email a copy to my doctor. I can't understand which is best. Lol. He's supposed to be an international expert. Dr. Brian Koo at Yale as well as the veteran's hospital in West Haven CT. He does test all 4 levels. My ferritin went up to 95. Then back down to 65. I just got ano...

Wow! I hope I'm not one of those that do build a tolerance as I fear. Maybe I'll talk to my doctor to keep doing infusions to get my iron up higher.

So what happens on days you don't take a DA or methadone? Do you have withdrawals?

:D I've suffered from restless legs since I was a child. Early on, my RLS was very mild and intermittent. As I got older it became more precedent, but still manageable. But when I got pregnant for my first child, 12 years ago, my RLS became severe. At that point, I would take every home remedy, mela...

:cry: So about 5 months ago I was put on methadone 5mg. It was a miracle. No RLS symptoms at all! This week, I've had symptoms. They have become increasingly worse and worse, starting just in the afternoon when I take a nap and now all night again! What does this mean?? Bad batch? Tolerance? Based o...