Restless Legs Syndrome (RLS) Discussion Board

Hi all, So I came across this site tmswiki.org (see https://www.tmswiki.org/w/index.php?page=The_Tension_Myositis_Syndrome_Wiki), and am curious to know if other RLS folks have gone down this rabbit hole as well. It's almost a shrine to this New York-based pain doctor (Dr Sarno), who promoted emotio...

Iron 145 have you had a ferritin test previously? If so, was it higher or lower? Next time you get a ferritin/iron panel, make sure you get the transferrin as part of the panel, it gives more information about the reason for the ferritin > 100. Also be sure you are fasting, and have not taken any i...

Iron 145 TIBC 273 Iron sat 50 Ferritin 149 The updated guidance sent in the first message above recommended IV iron only if ferritin <100, and said, in a tiny 9 point type footnote, that "Although benefit may occur when the pre-treatment serum ferritin is 100-300 μg/L, current data and experience ar...

Thanks again for all the responses. I guess I'm back to where I started -- treating the symptoms without really knowing what this is. (And, as noted previously, I don't have any of the inflammation markers that you would expect for a rheumatological disorder.) The coping techniques listed for WED/RL...

Thanks so much, Steve and Holland! I really appreciate the feedback! I did see a rheumatologist early on, but he couldn't find any issues with inflammatory markers so sent me to the neurologist. Any reflection on the morning thing: do people with RLS tend to have symptoms upon waking (which then dis...

Hi, I just joined and am still trying to determine if RLS is what I have. I'm a 50yo male. I've been seen by a neurologist though he did not mention RLS. I chanced across the description and it was the first one that seemed to "fit" the fact that my pain reduces with movement, whereas other things l...