Restless Legs Syndrome (RLS) Discussion Board

Hello, I am now on Lyrica. Gabapentin was pretty effective for RLS for me. The main reason I was taken off gabapentin is; I have pretty bad pain in my feet from neuropathy and it didn't help with my feet, So, I am now using Lyrica---it has helped a little.

I too weaned myself off ropinorole.The neurologist had me slowly titrate down and then he started me on gabapentin, adding it to a higher dose. 300 mg am, 600 mg (suppertime) then 45 minutes before bedtime 1,200 mg. for the first time in years I started getting some sleep. Of course, I could not tak...

For about two years now, the neurologist slowly took me off the DA and increased the gabapentin. It has been pretty effective.

A very good friend of ours had pulmonary fibrosis and died last October. The pulmonologist told him he was a pretty good candidate for a transplant. However, he did not want to go through with it. So he progressed fairly quickly. You know how difficult this is since your father suffered with it.

To Moonstars,
Please see a neurologist asap if you have not already.

What does your neurologist think about your symptoms?

I had been on pramipexole for a few years, then ropinirole for five more years. (higher than maximum dose) I didn't think I would ever be able to get off these pills. I saw a new neurologist a few months ago who has experience with RLS patients. I am following the protocol exactly as he told me. He ...

Hello Bob! Was that you in the RLS support group? That was great to put these words and face together! Lori

Hello Jerker, I was given a femoral nerve block both during the knee replacement and again when manipulation was performed 5 weeks later. (2013) It was a nightmare. I didn't know until after the manipulation that injecting my nerve (and leaving needle in there for duration of operation) was a nerve ...

Hello Jerker,
I will write you today when I have time. I wrote a lengthy reply, then lost it when had an interruption. Lori

Normally I get about 4 hours sleep. It's pretty common for me to wake up at 2 hours, then go back to sleep. If I get 5 hours, that was a good night.

This has been my experience: First I was on pramipexole for a couple of years, I began to augment. Then my neurologist switched me to ropinorole instead. Then a couple more years--I began to augment again. So the neurologist had me slowly taper off the ropinorole and take oxycodone for 10 days. This...

I used to be on tramadol before the restless leg diagnosis. My primary physician took me off tramadol so I could begin pramipexole for RSL.(at that time) She said the two meds conflict. I didn't have any problem when I stopped.

I hear what you are saying---my husband told me a week ago to suck it up--work through the pain. I never said it was painful. ( I have lots of pain--but it's not RSL) NOBODY understands unless they have same condition. RSL has affected both of our lives for sure, I do the best I can. I have learned ...

Several years ago I had to stop pramipexole as well. If my memory serves me correctly---my neurologist had me slowly taper off pramipexole while at the same time slowly begin ropinirole. It controlled my symptoms for several years. then I augmented on ropinorole. The neurologist then had me slowly g...