Restless Legs Syndrome (RLS) Discussion Board

Debbie
Thanks. I have had no nausea just sleepy. I tend toward low tolerance with all drugs. I’m doing better, I wrote under prescription meds section. Everyday it changes so ? Rollercoaster ride.

I am sure of nothing. For the past two night, I’ve slept at night, for 8-9 hours. One night I did not get up to pee! For 9 hours. After an entire lifetime of always being more awake than asleep, I find this disorienting. To wake up , look at the clock, and it’s been 9 hours! I thought I might have g...

Deb bluebird I’m happy to know that you haven’t had to increase the methadone for years. I had a terrible reaction to garbapentin and it also did not help. I’m hoping I can manage on methadone alone for awhile. I saw a 2nd doc at Kaiser and he is willing to prescribe methadone in very low dosage. I ...

I’ve asked this before I think but I’ve been taking 5 mg of methadone for 2 weeks now. I’m sleeping a lot, some days as much as 4 hours at night, then 6 hours in two 3 hour naps during the day. Then back to bed at 7-8 pm for the night again. I wake two ot three times at night but not for more than a...

Thanks VA,
I have an appointment with a support group tomorrow. Maybe it’s the one you are referring to.
Bedbboc

Thanks to you both. I have a lot to learn. St.johnh- funny that is my pen name - St. John. My ferritin is about fifty. That’s all I really wanted from the recent visit with Dr G. He is opposed to my getting iviron. I could try oral again. I am fairly certain it caused stomach problems that improved ...

I made an appointment with Dr. Buchffuhrer. Next week.

Thanks

I hope this is an appropriate space to post this topic. It is long so please bear with me. I’m new, joined about a week ago. I’ve been diagnosed with RLS for nearly 28 years, on sinemet (S) and mirapex (M). I’ve been seeing the same neurologist, Dr I, not sleep specialist for 16 years who has been o...

View Askew
Please help. I have sent and saved to draft a PM to you twice, it was long and involved and now lost, is there a way to retrieve? If not how do I get a message to you.

Wow, this is really helpful. He gets it? I’m ok with $300. Is it too much to ask how one purchases insurance from the exchange?

If anyone knows anything about kaisers position on opioids I would appteciate it. Thanks View Askew

Has anyone experienced a reduction in appetite while taking methadone? My appetite is much lower. It might be due to compulsive eating related to dopamine side effects no longer being an issue. I took mirapex and sinemet for almost thirty years and I did not realize that I was experiencing compulsiv...

I live in Los Angeles area and I have Kaiser. I’m seeing a new RLS doc early July. If he does not work out I may have to go outside of kaiser. Although I may not be able to afford it. Anyone who knows a Kaiser doctor in LA or Ventura County or a non Kaiser doctor in this area please let me know. Tha...

View Askew and All I got my best nights sleep last night in a long time. Nice dreams. I stayed with half a 5 mg tab afternoon and half at bedtime, total of 5 mg of methadone. I slept from 8:30 pm until 11:30 pm. I was awakened by leg movements that persisted for about 5-10 minutes after I got up. I ...

I used just 2.5 in afternoon and 2.5 at bedtime yesterday. I woke up with leg movements 3 x but the restless legs did not persist after getting out of bed. I was able to go back to sleep within 30 minutes. Usually once I awaken or am awakened by RLS symptoms I am up all night. The symptoms do not go...