Restless Legs Syndrome (RLS) Discussion Board

I just turned 34 and I have quite severe RLS. It’s been up and down, but humans are adaptive and find ways to live and enjoy life. My way of life has changed and the version of my life I thought I would have is much different because of RLS, but that isn’t a bad thing. I’m 100% sure my situation is...

One thing to remember, LeeroyJenkins, is that if you do, by that time, treatments might be VERY different. It may not happen at all. If it does, make a note somewhere to remind yourself to come back here then and talk to the folks here before you embark down any road. We'll likely be aware of curre...

How do you plan to deal with the insomnia and depression? That is going to be tough. Most times, my doctor would prescribe a sleep med for me, but I have mild sleep apnea and live at high elevation, so that could be risky when combined with the opioids. The "normal" next step for the depression wou...

There are various parts to my RLS that my current treatment addresses differently. There are the RLS urges to move, the insomnia that it causes, I also have PLMS and the depression that is caused by the insomnia and my meds. A recent sleep study found that the meds have the PLMS 100% controlled. I ...

There are various parts to my RLS that my current treatment addresses differently. There are the RLS urges to move, the insomnia that it causes, I also have PLMS and the depression that is caused by the insomnia and my meds. A recent sleep study found that the meds have the PLMS 100% controlled. I ...

You think even if things go south in my case I can find a regime that manages it? Many, if not most, of us on the board have severe or very severe RLS rather than the milder forms. Although there are challenges at times, most of us have found treatments to keep it under fairly reasonable control. T...

That is likely a LONG time from now. You have no idea how things might change. Hopefully. My life has gone down such a path that I spent my 20s building a career and I am yet to find a wife and start a family and if work is taken away I will probably lose my sanity. I did a similar thing. I didn't ...

The simple answer is that life is what you make of it. I am 68 yrs old and have been married for over 47 yrs. I had a very successful professional career and was able to travel on vacation to places that many people can only dream of seeing. I was a very successful competitive runner until I gave i...

I wouldn't be able to exist if I don't work.. That is likely a LONG time from now. You have no idea how things might change. Hopefully. My life has gone down such a path that I spent my 20s building a career and I am yet to find a wife and start a family and if work is taken away I will probably lo...

[quote=stjohnh post_id=103399 time=1598131471 user_id=20297]
Ann has great advice.

I'm 72, got RLS in my 30's, diagnosed about age 60, and started medication a couple of years after that. My mother had fairly severe RLS and a sister of mine also has mild RLS.
[/quote]
When did
you retire?

I wouldn't be able to exist if I don't work..

Leeroy, While your comment about reading internet posts about RLS is indeed depressing, there are several factors that make the situation not quite as bad as it appears. The first is that generally the people that post messages on internet forums such as this are generally those that are having lot...

The simple answer is that life is what you make of it. I am 68 yrs old and have been married for over 47 yrs. I had a very successful professional career and was able to travel on vacation to places that many people can only dream of seeing. I was a very successful competitive runner until I gave i...

I have scoured the internet for RLS communities and on one of them every second post is "Cant work because of RLS", "RLS has ruined my marriage ","Unable to sleep more than 2 hours a night inthe past decade " and etc.I am only 33 is that what i am supposed to look forward to?