Restless Legs Syndrome (RLS) Discussion Board

I was able to get completely off Ropinirole in August and I am taking 12.5 mg of hydrocodone at night and getting good sleep. I can also nap in the afternoon without any RLS symptoms. I feel like I have gotten my life back. I am also playing Pickleball 2 to 3 times a week. The exercise is helpful bu...

When I met with Neurologist on Thursday, he suggested dropping .5mg of Ropinirole and see if the dosage of hydrocodone is sufficient. He wants to test that before going with an iron infusion. I made it through Thursday, Friday and Saturday night with no sleep. I bumped up my dosage of hydrocodone fr...

Here are my current meds for my RLS: 7.5mg hydrocodone, .5 mg ropinirole, 1 mg clozapine. Sleep varies from 4 hours up to the occasional 7 hours. Napping during day is not possible due to RLS but thankfully my legs are usually calm during day unless I get sleepy. Just had blood work and my iron leve...

Glad to hear my post encouraged you. You have helped so many of us on this forum with your advice.

Sharing an update for my benefit as well as anyone who may glean some hope or direction from my journey with RLS. The counseling did help with my communication with my wife and uncovered some of my wrong assumptions. It turned into marriage counseling, and we attended the counseling sessions togethe...

Once again it has been several months since my last post. It is helpful for me to capture my thoughts and current status. I welcome any input but I don't have a question in this post just an update. Thanks again to RLS Foundation for providing this forum and to everyone who has given me advice along...

I took 1.5 mg of Ropinirole again tonight. I got about 5 hours sleep last night. I’ll drop back to 1 mg tomorrow, Saturday night. Doctor appt on March 30 so just doing what I can to get sleep so I can function. Getting busy with work so I don’t have option to sleep at odd times like 6 am to 10am. Ba...

Ann, It is okay that you did not see my post until today. It was helpful for me to post and capture my thoughts. I went back on ropinirole at 1 mg and was able to sleep about 5 hours on Thursday, March 18, I had to go up to 1.25 mg by Saturday and by Monday night I only got spotty sleep 11 p.m. - 1 ...

The 1mg dosage on the Neupro patch was not effective after a couple of nights, and my doctor increased it to 2 patches for a total of 2 mg. I slept great for one night. The next two nights I got little sleep and felt disoriented especially in the afternoon. My doctor is out of the office until Tuesd...

Steve, Thank you. I stopped taking pramipexole and told my neurologist that I was unable to sleep using it. Using it also left me feeling sedated all day but unable to sleep. Today, I started the neupro patch at 1mg/24hour release. I don't expect this to work, but apparently this needs to be tried b...

I have not been on the discussion boards since December. I am sharing an update tonight because it is helpful to me to share, and I hope it is a help others who are at various stages in their own RLS journey. In February I had to increase dose of ropinirole to .75 mg and then to 1 mg. I did not want...

I had to get sleep so I went back to ropinirole. A .5 mg dose is enough for me to get sleep and I am not going above that dosage. This will be my third night taking it again. I am working on getting doctor appointment but expect he will tell me to stay on ropinirole as long as I get results at this ...

badnights, Thank you. I'll try to get a doctor appointment before February and complete the sleep diary. This is my 12th night on Horizant. Tonight I also took .5 mg of Clozapine also took 2 Ibuprofen. I laid down at 11 pm and woke at 1 am and am still awake due to sensation to move. It is 4:30 a.m....

Badnights, This is my 8th night taking Horizant and I still have to take hydrocodone to get sleep. I took 5 mg of hydrocodone tonight and symptoms are still enough to keep me awake. The symptoms are tolerable as long as I do something to keep my mind occupied. But when I try to fall asleep, the twit...

I got a prescription of Horizant on December 11 so this is my third night using it. I did not get any sleep the night of the 11th and had to take 7.5 mg hydrocodone on the 12th around 2 a.m. after I was still unable to sleep due to the RLS symptoms. I took Horizant a bit earlier today at 5 p.m. and ...