Search found 10 matches

by retiredfg5
Mon Feb 15, 2021 1:28 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 25
Views: 890

Re: going "cold turkey"

well I'm into the "cold turkey" project of going off pramipexole. So far, not so good, as I was told it would be. For the last week I have been taking half of my usual dose. .25 mg at 2 pm and .25 at 9 pm. My doctor has me doing the dose decrease at one month intervals. So 3 more weeks at this dose,...
by retiredfg5
Mon Jan 18, 2021 12:22 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 25
Views: 890

Re: going "cold turkey"

Thanks for addressing my questions. I am one week into a1/4 dose less of my pramipexole (.75 daily instead of 1.0 daily.). So far so good. My doctor wants me to stay on this dosage for one month, then decrease it by .25 for the next month. About the gabapentin, I'm pretty sure that it does nothing a...
by retiredfg5
Wed Jan 13, 2021 2:20 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 25
Views: 890

Re: going "cold turkey"

Just a quick question/comment or two. I checked on my ferritin and iron levels. In September the ferritin was 171 (normal range of 8-252) and iron was 153 (n9rmal range of 50-170). So from what you say, it's not bad, but not sure it's good enough. Why all this hype about gabapentin? I've been taking...
by retiredfg5
Sat Jan 02, 2021 8:21 pm
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 25
Views: 890

Re: going "cold turkey"

Thanks for the reply. First off you asked if I was going to try the gabapentin encarbil during the weaning from pramipexole. I will check with my pharmacy to see what the price is since my insurance won't pay. Since the price on the mirapex ER was in the $thousands, I expect I will find out the cost...
by retiredfg5
Wed Dec 30, 2020 10:03 pm
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 25
Views: 890

Re: going "cold turkey"

Update on going cold turkey: I am. Going cold turkey. Starting in two weeks. I had a phone appointment with my neurologist last Thursday and we discussed what to do. She appreciates the information I am getting from you and is very willing to listen. We decided, after I told her my pulmonologist was...
by retiredfg5
Thu Dec 24, 2020 5:40 pm
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 25
Views: 890

Re: going "cold turkey"

I just had my appointment by phone with my neurologist. We decided to try using gabapentin encarabil instead of plain gabapentin. Then early next year we will work on going off of the pramipexole. I'm trying some non-medication options. I got the weighted blanket, plan on walking daily for 20 minute...
by retiredfg5
Thu Dec 10, 2020 3:24 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 25
Views: 890

Re: going "cold turkey"

Update 12/9 - I got a response from my insurance company, they will not cover the mirapex ER. I certainly can't afford it, so when I have my next appointment with neurology in mid January we will have to discuss going off pramipexole. Until then I will continue to take 0.5 mg of pramipexole twice da...
by retiredfg5
Thu Dec 03, 2020 9:45 pm
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 25
Views: 890

Re: going "cold turkey"

Thank you all for your valuable input. By the way badnights, you sure sit at your computer at odd hours, 1:27 am. Sounds like me. To fill in the blanks : sleep apnea - I have been on CPAP since 2002, when my rls was also diagnosed. Unfortunately I usually only sleep 2-3 hours with it on and then wak...
by retiredfg5
Tue Dec 01, 2020 9:16 pm
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 25
Views: 890

Re: going "cold turkey"

Update to going cold turkey. I have contacted my neurologist P.A. about my latest findings about mirapex. Basically, the pharmacies say they can get mirapex ER but not plain mirapex. She has ordered mirapex ER .75 mg daily for me. She also asked me to send her this discussion board conversation whic...
by retiredfg5
Sun Nov 29, 2020 11:14 pm
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 25
Views: 890

going "cold turkey"

I am fairly new to the group, and would like some help/suggestions. I am finally seeing a neurologist and she seems well-versed in rls. Actually, she is a physician assistant who started out as a medical technologist, and I retired 6 years ago after 42 years as a medical technologist. So we speak th...