Restless Legs Syndrome (RLS) Discussion Board

During a consult with my RLS/Sleep Doc. today, it was suggested that NIDRA would be worthwhile for me to try. My RLS symptoms date back to childhood and I've tried most meds. Currently, I'm using 1.8 ml methadone. Yes, ml since the pills can't be cut that small. I have some breakthrough symptoms at ...

I have a jury duty notice and when I completed the online response, there was a question as to whether I am physically and mentally capable of serving. I checked no, then I got an email response with a form. NJ courts only allow excuse for a set amount of time; there is no permanent exemption. I ...

I had augmentation from ropinirole and successfully got off of it with the help of a sleep specialist/neurologist I sought. She introduced 5 mg methadone with the option of going up to 10 mg. Fortunately, I've been able to use only 2.5 mg for almost a year. I can sit at night to watch TV, I can sit ...

Thank you

The experience of most of us has been that CBD is not strong enough to handle even day to day RLS movement problems, much less the issues during DA withdrawal. And the experience of most has been that Lyrica is also not strong enough to cover the symptoms during withdrawal.

So, the general ...

I've been trying to get off Ropinirole for 4 years, also unsuccessfully. It seems to be the only thing that works. I am currently experiencing augmentation symptoms. I really think that doctors don't understand/know how to treat this disease.

Getting off of ropinirole requires finding a doctor ...

I've been trying to get off Ropinirole for 4 years, also unsuccessfully. It seems to be the only thing that works. I am currently experiencing augmentation symptoms. I really think that doctors don't understand/know how to treat this disease. Keep fighting and I wish you well on your journey!


I ...

I just now saw your post. I saw a new doctor for my refractory RLS. I've been experiencing augmentation for a number of years. She prescribed 5 mg. methadone to assist with weaning off 2 mg ropinirole. My prescription plan refuses to fill the prescription, stating it's not medically necessary. I'm ...

I inquired about this recently during an RLS support group meeting, and as far as I know, it has not yet been approved.

Thank you for your post. It is so helpful hearing other people's struggles trying to get off ropinirole!
I have been searching for a specialist for refractive RLS. I've been on ropinirole 1 mg twice daily for 8-10 years, and was up to 3 mg at one point. My work requires me to sit all day and even ...