Restless Legs Syndrome (RLS) Discussion Board

Following up on my (frickets) post above - "Noctrix Nidra Device (TOMAC) – the real deal or snake oil?"

After considerable thought, I contacted my neurologist and declined to pursue Nidra at this time. Apprehension over its effectiveness with extreme cases, the short money-back trial period ...

Noctrix Nidra Device (TOMAC) – the real deal or snake oil? I’ve been following and posting conversations regarding dopamine agonists (DAs), augmentation, opioids and such for years. I’m currently recovering from a horrible years-long DA augmentation and pramipexole detox. I’m hopeful for a ...

Thanks for the note. It’s been a while since my original post and last update. I’m doing ok now but still have some work to do. I was fortunate to find a Neurologist who specialized in movement disorders. I can’t stress enough how important I think it is for RLS patients to be treated by a ...

Closing the loop: for anyone looking for RLS support in the Phoenix area, I can recommend Dr. Nikke Niemann at the Barrow Neurological Institute. It takes several months to get in so you'll need to be patient. Good luck!

Closing the loop: I've been in Prescott, AZ for a little over a year now. It's taken nearly all of that time to find a neurologist. At first, I was only able to use the local Sleep Doctor. He's a pulmonologist treating my apnea, and took over care for my RLS. He has supported my severe RLS and ...

Thank you for your responses. The support extended from others who have endured similar experiences goes a long way toward helping me maintain momentum. Everyone reacts differently to various medications and treatment plans. I’ve been on Methadone for a while and find it extremely helpful. I’m 7 ...

Hello. My 20+ year battle with RLS and using dopamine agonists (DAs) has led to augmentation. After a couple years of failed attempts to get off DAs, I think I’m ready to kick the addiction and reset.

Until a few years ago Pramipexole was sufficient. As I’ve read so many times in this forum, my ...

I used to deny my RLS symptoms and toss around in bed, or get up and walk around completely frustrated. Now I just give up, get up, embrace the suck and do whatever passes the time until I can settle down. I bought a podium that I can stand at while poking around on my computer - could be working ...

I've been taking Methadone for a couple years now and have tolerated it fairly well. It rescued me from augmentation, so I've been a fan. However, I'm facing a move in a few months from VA to AZ. I thought it best to find a new RLS doctor ahead of the move to avoid a gap in care or medications and I ...

I'm currently taking methadone. It helped me get past a bad augmentation experience from Pramipexole, and has worked fairly well the past couple of years. Now I'm facing a move from Virginia to Arizona in a couple months and, looking ahead, I'm finding it impossible to find an AZ doctor interested ...

Thanks for the input.

Hi. I previously posted a request for help finding an RLS doctor in Prescott, AZ. I have since found two, though both were pulmonologists, and neither is willing to support my current Methadone protocol. The next best search area would be Phoenix - more specifically, a neurologist who's focused on ...

I too was led into augmentation as neither me nor my GP understood the risks of dosing and long-term Pramipexole use. I had started with a specialist, but years past and I let my primary care doctor take over my maintenance RX needs. It eventually became an untenable situation and I was in serious ...

Thanks. Appreciate the input.

Hi! I currently live in Virginia. I've had RLS for 20+ years. My former doctor led me into augmentation a couple years ago. Fortunately I found someone who helped me work though it and find a viable treatment. Methadone was the eventual solution for me. Since starting this protocol my RLS symptoms ...