Restless Legs Syndrome (RLS) Discussion Board

Thanks for your reassurance about my son. He has a demanding job and the pandemic has made more demands, with child care, etc. This is not the time to go into the depths of withdrawal. The future, however….Mom will continue to worry about the future. Hopefully, more research and options will be ther...

Good morning, Leslie et al. Yes…good. It was another good night, though I learned the hard way that it is too early to push myself. I was feeling good enough to put off my Tramadol by a few hours yesterday afternoon, then had to do some yoga at midnight. I think I have to accept that I will be on Tr...

Good morning, Leslie and all. I’ve been having trouble with this site for four days. Finally it is responding again. It sounds as if you, like me, are on the mend. I, too, was worried about the depressed breathing on Tramadol. Death might have been a relief, but I was not suicidal. Now I am down to ...

Leslie—So glad to hear from you. I do think of you often. I think it amazing t hat you are able to do as much as you are doing despite your symptoms…the gardening, the painting, the canning. I sit and knit or play the piano or go to bed—after I force myself to do one or two productive things. Today,...

Leslie—I re-read what I wrote last night and decided it needed some upgrades. Also, wondering how you are. For me, it is an up and down fight. I get frightened when I read about those who have on-going withdrawal symptoms for months or years and decided it is best if I stay away from those notes.Tho...

Leslie—I have felt the incredible sadness too. AWFUL I have been off pramipexole for 3 weeks and I still feel some sadness and anxiety, but not as desperately. I went out with friends this evening, and actually enjoyed myself. I now know the desperation is temporary, and I know Tramadol helps. Pleas...

Thanks so much. I especially like Rustsmith’s comment that I may not be taking enough Tramadol. Despite my GP’s prescription for a higher dose (up to 200 mg a day), I have been afraid I am taking too much. I definitely notice an improvement in mood when I take it. So rather than force myself to endu...

Thanks. Important info. I can handle the hot flashes rather than more complications.

Thank you. You have been most helpful. I have decided to follow my GP’s advice for a SHORT time, then re-assess when my head gets clearer. She is willing to prescribe whatever dose Tramadol-Xanax-Ambien I want but I am almost certain she was unacquainted with augmentation and DAWS before my problem ...

Thank you. I suddenly get it, after reading your explanation. Or I think I do—in other words, the symptoms tell the story. The blood tests are not for diagnosis but are a way of monitoring for safety. My doctor is not in favor of supplemental iron. In any form. She just wants me to take Tramadol. I ...

After 10+ years of pramipexole, I am at the tail end of augmentation and tapering. I tapered off over 6 weeks, have now been without any for 3 weeks. It’s been rough. I am feeling better, but not my best yet. My doctor has been supportive with Tramadol. She wants me to stay on it: I’m trying to keep...

Your solution makes sense to me. I have SIBO—small intestine bacterial overgrowth. A recent study —-somehow associated with STanford University, I think—indicates that those who have SIBO often have RLS also.

Just wondering how you are, Leslie. I thought of you at midnight, when the slightest symptoms woke me, and I hoped you were making it through the night. I find your THC experience interesting…it is available if I take a 45 minute drive over the border. A few moths ago, I did drive over the border an...

Good news—I slept last night. I had an email consult with my GP, cited the Mayo clinic and she told me to go up to 200 mg of Tramadol. She also ordered the bloodwork for iron. I hope I can taper down on the Tramadol someday, but won’t even try for another few weeks. Life is good again. (Tramadol doe...

It works within 5 minutes…but then doesn’t last more than 20 minutes. Power of suggestion? My guess is that “Not intended to treat RLS” is an attempt to keep the lawyers away. The good news—I succumbed to recommendations, including my doctor’s, and took enough Tramadol to equal 200 mg over 24 hours....