Restless Legs Syndrome (RLS) Discussion Board

Update on my withdrawal process. I saw my GP today for the first time since this all happened. Up until now I had been working with Dr. Moore- a neurologist from the sleep center at Mayo. My GP is usually awesome but even working at Mayo himself, he had no idea there was a new algorithm for treating...

WB Margaret! I have been worried!! The site was down for me as well for a few days. Thank goodness it happened this week and not last week. I would have been lost. Badnights, I think you MAY be on to something with the THC. I don't think it always helps me mellow out at the very least. The other nig...

Wow.. Just read back through my first post. This has been a brutal ride. I took my final dose of Ropinirole on 8/14 so 10 days ago. I feel like the withdrawal is leveling out, but boy there were huge chunks of time when I didn't think I would make it even another half hour with the restlessness, anx...

My friend lives in Ft. Collins. This will be our third trip. I just love it out there. And we go the way of the Badlands (From MN) and sightsee along the way. We always hit the recreational shops and of course look like tourists as we exclaim about the different offerings. Marijuana has come a long ...

How close are you to Jacksonville? The Mayo Clinic there has a decent neuro program and since they just published that new algorithm they may be more inclined to follow its guidelines that say low dose opioids are a successful treatment of RLS. Good Luck to you... and welcome to the party!

I grew up in the Fingerlakes region of NY. Newark, N.Y. I got my BSN from UB. Still a big Yankees and Bills fan. I need to go back for a visit as I still have a brother up in Watertown, NY. Medical Marijuana has been approved in MN. I THINK the cannabis helps take the edge off now during the days. I...

I am currently toying with the Delta 8 and even the Delta 9. I was prescribed medical marijuana and I can honestly tell you that for me (I have used marijuana on occasion since 1985) the Delta 8 is WAY stronger than the marijuana I was prescribed. I was super paranoid the first time I used it becaus...

Hello and thanks for your replies! Ugh this has been HORRIBLE. I have been off the Ropinirole for one week officially. I had been on 4-6 mg for the past 3 years. I managed to wean down in 20 days. The good news is that my daytime symptoms are just about gone for the RLS. A tiny dose of Tramadol at n...

Do you think the Pramipexole withdrawal is causing the anxiety and depression? I am 4 days post Ropinirole and am just being mauled by anxiety and abject sadness yesterday and today. I wondered if it was like a rebound effect of the Ropinirole. Do you have any more info on this? Do you think its tem...

Please tell me this will be short-lived. I have been off Ropinirole for 4 days now. I would say my daytime symptoms are really reduced and easily managed with a puff off my cannabis vape or 25 mg Tramadol. Years ago I had panic attacks and was started on Prozac. I had stopped taking it a few months ...

So the cannabis didn't really help at all. I suffered through the first weekend and then after reading more posts from you all, messaged my doc to have him give me tramadol. I sent this huge email and referenced Mayo's own paper (I work and see a Neurologist at Mayo) and basically spent an hour tryi...

Yay that you slept! Funny how even a few hours of sleep makes you feel unstoppable. Imagine how us RLSers would change the world if we all got 8 hrs of sleep a night?? We all have learned to be successful even going through life on 2-3 hrs a night. We would totally dominate the whole world... Imagin...

I did get Tramadol ordered today. My neurologist was really nice and said what I was going through was no joke and he called in my prescription and told me if it isn't enough to let him know. I have found there is a pattern. The night I decrease is horrible, the next night is blah and the third nigh...

If you are already a patient at mayo it might not hurt to see if you can have a virtual visit. My neurologist there prescribed medical marijuana just last week. I am going through augmentation and am weaning off Ropinirole so for me the THC hasn't been enough to keep me from wanting to chop my legs ...

I have been slowly tapering off Ropinirole. I found this site during one of the first of many horrible nights. It has literally been a lifesaver. I raised 3 kids alone going to nursing school at the same time. I'm tough. This whole process has been demoralizing and has even changed the trust I used ...