Restless Legs Syndrome (RLS) Discussion Board

One more question. How would I know if it’s withdrawal related or augmentation? Severe RLS is encountered in both. As I mentioned, my other symptoms are chills that come and go, exhaustion (haven’t slept in days), and pain in my lower legs that doesn’t always lead to RLS, only when it starts in my a...

When you say withdrawal period, are you referring to how long it takes to wash out Sinemet? Is that period proportional to length of time on the DA and dose? How long after stopping would the withdrawal be expected to start and can it cause chills? I don’t remember it being more than a few days when...

I stopped taking methadone 14 days ago. For 7 days, I took Sinemet in higher than normal doses—4 pills—to stop the rebound RLS and get a little sleep. I stopped Sinemet 3 nights ago, and last night I had terrible RLS symptoms again, including in my arms, and it lasted into the morning. I also had it...

Thanks for the suggestion. It went beyond the apathy and lack of emotion. I had a weird problem develop where I felt like complete garbage every single morning. It started around 2 months in and got progressively worse. From around 20 minutes after waking until around noon, my head felt disoriented ...

I have not tried cold water. I will definitely give that a try. Thanks for the tip!

Thanks for the reply. Unfortunately, everything you mentioned, other than the oxys, I have used. Tramadol was fantastic for a long time, but I did ultimately augment. That lead to Suboxone, which was much worse for me than methadone. I just couldn’t find stability at a dose for very long, so I felt ...

I was on methadone for around 7 months for my RLS. My doctor said it was pretty much the last option, as I augmented on all DAs and Horizant didn’t work for me. I even tried a couple of other things, but can’t remember the names of the meds. I stopped methadone 10 days ago, because the side effects ...

I started taking methadone around 3 months ago for RLS. At first, it was great. It stopped my RLS symptoms, and I felt mostly ok. I had some lightheadedness at 5 mg, so I went back to 2.5 mg, and things were better. Around a month ago, that started to change. I was tapering and stopping Trazodone, s...

I’m starting to think this is a methadone issue. It has been over 3 weeks since I last took trazodone, and I am having some issues. My head feels really off in the mornings. Not quite dizzy or lightheaded, but just feels weird. After I take the methadone, that goes away for the rest of the day, but ...

I was on it for around 3 years. I switched to it after I augmented from Tramadol. It definitely stops RLS, but my experience wasn’t great. However, I think that was because they started me on a dose that was way too high, so I spent most of the time trying to reduce that dose to find something that ...

Thanks for the feedback. It’s day 15, and I am still having issues. Had one day that was quite a bit better, but then right back to the same issues. Hope that it’s just the Trazodone, and that it resolves soon. The doctor said that things should improve after 7-10 days, but they typically undershoot...

Horizant works well for some people, but not others. I got very little benefit from it, other than it made me very sleepy at night. It is very expensive, but my doctor was able to set me up with a mail order pharmacy in Minnesota that made it much more affordable, although I think it was still aroun...

I have been on methadone for around 2 months. I am taking 2.5 mg once per day. When I started it, I was taking trazodone for sleep. My doctor wanted me to discontinue that, so I weaned down from 25 mg to around 6 mg over a few weeks and then stopped. During the weaning process, I would get around 4 ...

I was started on methadone 5 mg 6 days ago. It has definitely relieved my RLS symptoms, but I’m struggling with some side effects. I feel quite lightheaded and almost dizzy about half the day, with quite a few bad headaches. I take 2.5 mg at around 9:00 AM and the other 2.5 around 4:00 PM. I origina...

Thanks very much. I reduced the Horizant dose, and it got somewhat better. Some days are better than others. Amazing how muddled my thoughts can get from Horizant.

Really appreciate your help.