Restless Legs Syndrome (RLS) Discussion Board

I want to post a final word on my long slow taper - down journey: Ropinirole 1.5 mg to NONE! 4 nights ago I took my final dopamine agonist dose, a trip that took me nearly 7 months to accomplish. I take 500mg Gabapentin, and oral iron as dictated by regular blood draws, coordinated by my sleep medic...

I have another update to my long slow taper off Ropinirole: at the 4 month mark, I am down to 1/3 of my original dose (0.5mg out of 1.5mg). Am also taking Gabapentin 400mg. I drop down every 19 days or so, and things are going pretty well! Most nights are very manageable-especially compared to last ...

I have been tapering/transitioning off my dopamine agonist since early September, using Gabapentin. Yes-the use of both drugs at the same time is a common strategy. I’d been on 1.5mg Ropinirole for 3 years, with mild augmentation. Since I’m over 65, I was started on 100mg of Gabapentin, and over 3-4...

One more thing: you will have to have regular Ferritin blood draws, especially if you cannot tolerate oral iron. This means perhaps every 6 months, because the infusion only treats the symptom-it is NOT a one time cure.

It’s great that you had an iron infusion! Depending on which actual iron preparation it was, you may need more than one. I also am a long-time vegetarian, and had a Ferritin of 14. I am able to tolerate oral iron, but my Internist saw the wisdom of greatly speeding up the process, so I had 2 infusio...

I am currently in the process of tapering down from 1.5mg Ropinirole. I already had optimized my Ferritin level with oral and IV iron (and still am on it orally to assist with the taper - per my Sleep Med Dr). First I was started on Gabapentin, escalating the dose to control the RLS symptoms. Once t...

I’ve had just 2 infusions of Iron Sucrose (Venofer) and while I also was upset to not be offered the Mayo Clinic “gold standard”, these 2 infusions did raise my Ferritin (along with continuous daily oral iron pills) from 14 to 132 over 4 months.

I want to post a (very early!) update to my Ropinirole taper-down story. It’s a very slow journey, but I’ve dropped from 1.5mg Ropinirole to 1.25mg over 3 weeks, while still on just my “starter dose” of Gabapentin 300mg. While I have a long way to go, with challenges ahead, I am very pleased at how ...

I recently bought some “compression” type yoga pants, specifically for wearing in bed. I have found that pressure on my thighs is a minor help with my night time RLS symptoms, so I watched for a sale and got just what I needed. I’ve worn them several times, and I do think the compression works. If y...

I’ve been on Ropinirole 1.5mg for almost 3 years. I have pretty mild augmentation. My Internist didn’t know about augmentation, and my dose was increased slowly to manage symptoms until I stopped asking for more (2 months ago) after joining the RLS Foundation. I credit this organization for fully ed...