Restless Legs Syndrome (RLS) Discussion Board

Please be aware that the "gaba" prefix in gabapentin has nothing to so with GABA, the receptors that benzodiazapines work on. Gabapentin does not act on GABA receptors. sorry, I don't have any references at my fingertips, but you can look it up. FWIW (not much I'm afraid), I'm an MD (a dirty word on...

I am new to cannabis. Moved from Colorado to Massachusetts, two cannabis-legal states, but until just recently hadn't used it since adolescence. did some research and it seemed that an equal balance of THC and CBD was the theoretical recommended prescription. Tried a gummy and seemed to help at firs...

Gahh!! I am so frustrated. First my insurance wouldn't cover a visit to the RLS specialist in my state, and now it will only cover 2 IV iron preparations that are not supported by RLS research. I specifically requested 1st choice, Injectafer, 2nd choice, InFeD; and was told I could only get Venofer ...

Hi jul2783, Thanks for replying to my post. I have now heard from a few people who had no trouble with kratom, so maybe I will give it another try, but i'm very scared about possibility the kratom is causing augmentation (can anyone else weigh in?). Augmentation is scary for me, since it appears, fr...

I have never been able to see an RLS specialist and so have been trying to understand and manage my disease be myself by reading and experimenting. With all my reading I have not found any definitive statement as to whether the altered symptoms due to augmentation completely go away with discontinua...

Addendum: I remember now, the reason I had the sleep study and saw the Sleep specialist was because of Excessive Daytime Sleepiness, not RLS specifically. I had been diagnosed with mild-mod sleep apnea (normal BMI) several years prior and assumed that was the cause of my sleepiness. After the sleep ...

Hello, I am new to the group and want to ask what the group thinks of my story and whether I augmented on DAs as I believe I did. My symptoms appear to be different from most of the people posting; for instance my RLS has always, from day one (15 years ago) been in my hands, never my legs. Same deal...

EternityRoad, I am interested in your story about kratom. I took kratom for about a year and a half and it was a godsend for me when I couldn't get anything else to treat my RLS after I augmented (I think) on DAs. but recently I became of the opinion that the kratom was causing augmentation too (ver...

I am new to the group and have been reading about augmentation trying to figure out if that is what happened to me 3 years ago. My symptoms are similar or maybe identical to those of Haven. I realize his post was 9 years ago but I am responding anyway. i, too developed symptoms originating in the ce...

Ken, I am getting to the point where I'm not sure what is going on anymore; what is helping, what is making me worse. All I know is that I feel awful most of the time. Yes, I originally thought my dose escalation was because of worsening of my disease over time, but in my case having started and sto...

Ricky, that sounds awful. Just to clarify--have you had IV iron infusions and are your ferritin levels above 100?

That's great. I have been on oral iron for 3.5 months and just had my f/u iron panel drawn prior to the weekend. Anxiously awaiting results so I can get my IV iron --I am assuming my ferritin will be <100. It was 41 when I started oral iron but I understand oral absorption drops off once ferritin ge...

Thank you, Polar Bear! That helps my decision-making. BTW, today, after taking pregabalin at 8PM last night I once again felt shaky, weak and brain foggy in the morning. My mood was better today (no depression or suicidal ideation) thanks to a 2-hour virtual meditation sit, however I still was shaky...

Just re-read my last post and it sounds very flippant and pompous. I'm sorry. I am not used to these discussion boards and have not learned proper etiquette. I'm really not that person. And of course, I just don't feel very well and am cognitively impaired by chronic sleep-deprivation, medication si...

P.S. I will continue to keep you updated as I continue my treatment with pregabalin.