Restless Legs Syndrome (RLS) Discussion Board

I'm interested in your assessment of Dr Durphy in Albany. I live in Upstate NY and drove 3 hours to get to an appointment with her but then followed up with telehealth appointments with nurses after thatand I didn't end up having a good or helpful rapport with her. (Maybe because I was only able to...

Hi all, Sorry, it has been so long since to gave an update on my progress with Dr Durphy. I had a great first meeting, and spent over an hour with her, talking about my past treatment and hopefully my future treatment. She was disappointed it took me so long to find her as there were not that many t...

Was able to get an appointment with a recommended doctor on the RLS.org site, Dr. Durphy, who is a neurologist in movement disorders and specializes in RLS, and I was able to get in with her in May. I am hoping she follows the research of the other doctors on this site.

Hi all, Over the past four weeks, the first three weeks, I was not sleeping due to the new hydros, I added magnesium supplements at night to help with sleep and added an antihistamine to help me sleep at night. The antihistamine is a double-edged sword as it has increased my RLS a little bit at nigh...

This is what I found! It did knock me out so you may not even notice anything. "Sertraline, fluoxetine, and amitriptyline appear to increase periodic limb movements that do not disrupt sleep and are thus unlikely to be clinically significant. On the other hand, bupropion may reduce restless legs syn...

Hi, I thought this was one of the drugs that caused issues with RLS? I took this on two occasions, it knocked me out, to the point the sedative was so intense I had to take a sick day from work as I could not wake up in the morning. That may be why it works. My pain management dr said he only prescr...

Deb, That is a good idea. Most of my veggies are in the organic steam in the microwave bags as organic fresh is so expensive right now, but I will make sure to consider boiling. I did notice a difference during the day without eating processed foods yesterday, but not at night. I know it was only 24...

Hey Bannia,
Did you ever find a solution to what happens after Methadone? I am kind of where you are, been on all of the above and now they are putt= me on a very low dose of hydrocodone 5mg that is not even coming close to shutting down my RLS. Would love to know if you found an option.

Hi Steve, thanks for the suggestion! I was able to make an appointment with a doctor Avinash Aggarwal at the Quality Care Canter University of Pittsburgh Medical Center, as that is the closest center to my location but it is still out of my state. I am concerned about how the medication would be pre...

Hi Deb, Yes, I remember Jim @notnowdad mentioning something about avoiding gelatin, I will cut out the marshmallows and see how that goes, and the rice crispy cereal as I did not know they had that much oxalates per 1/2 cup. I ordered the book you mentioned it should arrive today! And I will start r...

Hi Deb, Thank you for responding! Currently, I am eating mostly whole foods, and mostly meat and fresh organic foods only. I do eat some frozen vegetables that are organic too. The only processed foods I am eating are rice crispies, marshmallows and rice as they came in on the low oxalate list, and ...

Hi Steve,

I am taking the hydro three times a day and no I don't think he converted the strength properly! I am glad you validated it for me.
Best,
Mel

Hi all, I have run into a problem on my journey as I have changed medication from tramadol 100 mg 3X per day to hydrocodone-acedamin 5-325 and the hydrocodone is not working at all. I am still on gabapentin which helps at times but it is hit or miss. I have switched to all low oxalate food 90% of it...

Oh that is great news, I thought it was the sauce. Pizza here I come!

Good luck to both of you!