Restless Legs Syndrome (RLS) Discussion Board

Hi Polar Bear, I've been taking pramipexole long-acting about 4 months. Previously, I had been prescribed ropinirole but only took it 2 months b/c it didn't help me. Until my iron levels get straightened out, it's hard to say if it's augmentation. I hope not b/c it's so soon, but I am aware of the r...

Thanks Steve. I also am wondering about iron levels. Mine were 76 (non fasting), and I started taking a supplement when I read 100 might be needed for severe RLS (mine is). But then at my next test, my iron was 66 despite the supplement. My doc doubled the dose & I test again in 3 months. I take pra...

Does anyone else have intestinal problems with their RLS? I'm curious about SIBO and see it's a topic at this year's patient symposium. I get stomach pain (not nausea) after eating, have lost weight and often have diarrhea. My RLS is severe, but treated with long-acting pramipexole & opioid. Thanks.

Thanks for the welcome, which came to me in January. This is my first post. My symptoms started many years ago, but my doctors and I thought it was nerve damage from an infection following a lower bowel resection. I was treated for years and years for nerve pain. I did everything I could to heal - P...

Hi Bill. I was just diagnosed & find a thick, fake-fur throw helpful when symptoms are mild.