Search found 6 matches

by Jackolette
Sat Jun 10, 2023 2:47 am
Forum: Prescription Medications
Topic: Ferritin levels and IV iron
Replies: 20
Views: 14340

Re: Ferritin levels and IV iron

Hi, Sarah, I apologize for the long delay in a response. Thank you for the info on your experience with IV iron infusions. I’m not very optimistic after everything that I have read, that the infusions would give me the miracle cure we all dream of! I ended up getting very frustrated with the doctors...
by Jackolette
Sat Apr 29, 2023 2:24 pm
Forum: Prescription Medications
Topic: Ferritin levels and IV iron
Replies: 20
Views: 14340

Re: Ferritin levels and IV iron

Thanks for your reply! Wow-$5000.is a lot of money to have spent with no relief! Do you know what your ferritin level was after the iron infusion? I’m so sorry that you didn’t get any relief! I’ve read that some people only got relief with a ferritin level of 200-600, but have no idea how many IV ir...
by Jackolette
Wed Apr 26, 2023 3:52 pm
Forum: Prescription Medications
Topic: Ferritin levels and IV iron
Replies: 20
Views: 14340

Re: Ferritin levels and IV iron

Hello, Stainless! I apologize for my late response. As I’m sure you know, time has a way of getting away from you when you are chronically sleep deprived! Regarding Mayo- Jacksonville- I read all the reviews online and they pretty much confirmed my thoughts. I used to be an RN who worked at the hosp...
by Jackolette
Fri Apr 21, 2023 3:09 pm
Forum: Prescription Medications
Topic: Ferritin levels and IV iron
Replies: 20
Views: 14340

Re: Ferritin levels and IV iron

That information is extremely helpful! I am hopeful…..😊
by Jackolette
Thu Apr 20, 2023 10:18 pm
Forum: Prescription Medications
Topic: Ferritin levels and IV iron
Replies: 20
Views: 14340

Re: Ferritin levels and IV iron

Thank you for your response, Rustsmith! I’ve been trying to navigate the system with RLS for awhile and like most people, rarely feel that I make any headway at all! It was that specific article that I presented to my neurologist that convinced him to refer me to a hematologist for the iv iron infus...
by Jackolette
Thu Apr 20, 2023 8:01 pm
Forum: Prescription Medications
Topic: Ferritin levels and IV iron
Replies: 20
Views: 14340

Re: Ferritin levels and IV iron

Hello! I am new to this forum and still trying to figure out how to post my RLS story! I’m 72, so not very computer literate. Any help would be greatly appreciated! I was just recently able to convince the neurologist treating me for RLS to try an IV iron infusion. I have received the same pat respo...