Restless Legs Syndrome (RLS) Discussion Board

Hi Rustmith for the detail explanation and analogy. It's very helpful. I'll continue to keep an eye on my Ferritin level and if it falls well below 100 then I'll look into another infusion.

Lately (in the past several months), I've noticed a slight headache or intense brain fog at the onset of ...

Approximately a year ago (March 2024), I had an Iron Infusion which brought my Ferritin level up to 221 and my saturation was 35.
Fast forward to March 2025. I recently had bloodwork done and noticed that my Ferritin had fallen to 128 and the saturation has remained constant. Is the drop in ...

Thanks @ViewsAskew! I'll give that a try.

Hi Everyone -

Update to my July 2023 Post in this thread.

Previously, I shared that I take 5 mg of Oxy just before bed and an additional 2.5 mg in the middle of the night to manage my RLS. My symptoms not only affect my legs but also cause sensations in my torso and arms—it almost feels like a ...

Yes - I have wondered other other generations dealt with this awful condition. Can't imagine not having anything to deal with the symptoms.
One time when I was taking the Oxy in the middle of the night, the pill didn't go down all the way because I did't drink enough water (I did't want to have to ...

Hi Brynmr - Your current situation is nearly identical to mine except that I only need to take the Oxycodone at night. I start with 5mg around 10:30 - 11pm then I find that I start sensing symptoms around 1:30am. I've been cutting my 5mg tablet in half then taking 2.5mg to get it under control. This ...

My hematologist has also prescribed 3 infusions of Venofer. I too am wondering if this is the correct iron formulation to use.

Hi Lespenney -

I too take 5 MG just before bed and I also have to take 2.5 MG in the middle of the night to address my RLS. When my symptoms start to appear, I also get the sensation in my torso and arms...it almost feels like a sour stomach in a way, which convulsions in my torso/arms...in ...

Thanks for your reply Ann. It means a lot to me that you reached out. I am feeling quite hopeless and will continue educating myself in hoping I find some help.

Reposting for better clarity.

I too suffer from severe RLS and have been educating myself on how SIBO plays a role. I first became aware of SIBO while listening to the webinar conducted by the RLS Foundation in January. I went to see my gastroenterologist and I have SIBO. I am on my second round of ...

Hi Savanna1! - I too suffer from severe RLS and have been educating myself on how SIBO plays a role. I first became aware of SIBO while listening to the webinar conducted by the RLS Foundation in January. I went to see my gastroenterologist and I have SIBO. I am on my second round of antibiotic ...

Hi Everyone - First, I must say that this forum is a lifeline for me. I suffer from severe RLS and have tried the dopamine antagonists (i.e., Ropinerole, etc...) to no avail and my doctor has me taking Oxycodone 5mg at bedtime then a half during then night (.25) so a total of 7mgs per day. This ...

Thank you! Palo Alto is up in the SF Bay area (about 5 hours from here) but from the link you provided above, I see that there is a Quality Care Center in the San Diego area (La Jolla). It's a 2 hour drive from here. I'll be reaching out to them. Again, thank you sooo much!

Hi Everyone,

I have severe RLS and I'm at my wits end. Is anyone knowledgeable of a neurologist or physician that specializes in RLS in the Los Angeles Area. I've seen Dr. Daniel Norman at the Santa Monica Sleep Disorder Clinic but was wondering if there were others.

I also saw a neurologist in ...

Hi Everyone,

Just recently came across this forum and it's been a big help and given me a sense of comfort while coping with RLS.

I came across a wearable therapy option that requires a prescription and was wondering if anyone has heard of or used this device to treat their RLS symptoms? It ...