Restless Legs Syndrome (RLS) Discussion Board

I seemed to be locked out. I’ll give this another try. If I did something wrong it wasn’t intentional.

I think a couple of my posts have been removed. Im so sorry if I offended anyone. My intentions are good.

Hey Deb….. that’s good to know. The RLS research summit was amazing. The opioid seems to be a big cure for most RLS sufferers but there is serious stigma attached to opioids and doctors are more then hesitant to prescribe them. But since you don’t get high from Buprenorphine there is no illegal stre...

Hi …. A few days ago there was a virtual RLS research summit that I attended. I was very happy to see so much is being looked into for RLS. Buprenorphine seems to have incredible potential. I believe they said it was an opioid that is for moderate to severe RLS and can be prescribed much easier beca...

Oh and thank you rust!!!

Ok so I was able to post a link to a YouTube interview. The interview itself is irrelevant but if you just listen to the first minute you will hear a sound called the shepherd tone. Now as I said earlier my RLS symptoms FEEL like this…. Not as bad however. I mean if you had that going through your b...

I just was watching an interview movie director Christopher Nolan. I don’t know how to put a link on here. I wish I did because I’ve found a pretty good way to describe my main RLS symptom. But you would have to hear it. What I’m attempting to do is describe what I’m feeling with a sound. A special ...

Ragnar… I agree 100 percent that opioids have changed my life. I probably have said this already but prior to being on norco for an extended period of time I had nothing to compare how I felt. And it actually took a while before I figured it out. Yes the media definitely made me think very negativel...

Polar bear and Rustsmith…. I hope you both are doing much better with the headaches…. Bear that’s a rough one…. Actually this reminds me of another situation that went badly. My mother in law was very old worldly and had a stomach ache for months before me and my wife even heard she had a problem. T...

Thanks rust… actually it’s probably for the best. I was really going long and perhaps a bit too personal haha… I think what I really want to say is that any condition like RLS can be difficult to even know where to start. I had three scenarios that were in this kind of category. Headaches, panic att...

Well I just made an extremely long post and for some reason it did not show up. Darn it!…. Well I can’t now. But I want to say thanks to Deb. I can relate to the electric leg feeling and had a whole lot more to say. Hopefully I’ll get it done later tonight or tomorrow.

Buglegs …. Yes yes yes. A type of anxiety inside. And there is no doubt smoking pot helps big time. I have more to say on that. I need some time. Thanks to you all for sharing. You have no idea how alone and misunderstood I felt.

Rustsmith…That is my biggest fear. The fact is now that I have had norco … Now that I know what life can be like with out that horrible feeling… I can’t go back! I am not necessarily saying I need opioids but why in the world would a doctor want to even try something else when this has worked tremen...

Thanks bear Buzzing is an interesting way to describe it. Like a vibration sort of. There is a prank that comes to mind. A joke to pull on friends. I don’t know if they still make them but it was a buzzer that you concealed in your hand and then you shake another man’s hand and it would buzz and sca...