Search found 19 matches

by Monolight1
Mon Jun 09, 2025 4:19 am
Forum: Prescription Medications
Topic: THC/CBD oil worked for me
Replies: 4
Views: 14302

Re: THC/CBD oil worked for me

So glad you’re finding relief, RLS that extends into the arms is no joke. I’ve seen a few others say they didn’t notice much until a small amount of THC was added too.

If anyone’s looking for a place to start, Joy Organics has some good blended options. I like that they’re third-party tested and ...
by Monolight1
Fri Aug 23, 2024 5:03 pm
Forum: General Topics: RLS
Topic: Need to convince my Primary Care
Replies: 3
Views: 8538

Re: Need to convince my Primary Care

Your doctor may be skeptical, which sucks I know, but presenting information from reputable sources can help build trust and change their mind, that is if you really need him
by Monolight1
Fri Aug 23, 2024 4:59 pm
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 863
Views: 441580

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Polar Bear wrote: Fri Aug 16, 2024 7:01 pm I can't see a cure for RLS being available in my lifetime
I hope that doesn't linger too much on your mind, healthy mind, healthy body, that's what I tell myself
by Monolight1
Fri Aug 23, 2024 4:55 pm
Forum: Augmentation
Topic: Keep weaning my ropinirole or wait for doctor's advice?
Replies: 27
Views: 19940

Re: Keep weaning my ropinirole or wait for doctor's advice?

Even without reading any of the content of the thread or the OP's post it must always come to hand that you should always just wait for the doctor's advice, no?
by Monolight1
Thu Aug 22, 2024 9:38 am
Forum: Prescription Medications
Topic: THC/CBD oil worked for me
Replies: 4
Views: 14302

Re: THC/CBD oil worked for me

CBD helps me sleep like a normal person. Can't imagine not taking it now.

For reference, this page mentions that an 80% improvement in the quality of sleep was reported using medical cannabis oil by patients with RLS.
by Monolight1
Wed Jun 19, 2024 3:44 pm
Forum: Prescription Medications
Topic: Opioid Constipation
Replies: 22
Views: 21440

Re: Opioid Constipation



Anyone try Fleet? Probably not good for me but every 3 days and I'm good to go (no pun intended). I'm hoping it's no worse for my body than any other treatment.


Works well for my husband (the magnesium that works for me does NOT work for him - go figure).


Eh, maybe it's because of the ...
by Monolight1
Wed Jun 19, 2024 3:32 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Severe rls subdued using Allulose. Seriously.
Replies: 12
Views: 15093

Re: Severe rls subdued using Allulose. Seriously.


Hello

First I would like to thank the RLS foundation for this forum. It is very helpful to me and to many other people suffering from RLS.

It seems allulose is not available yet in Europe but I would definitively try it when possible.

For some reason kiwi fruits and blackcurrant (from frozen ...
by Monolight1
Wed Jun 19, 2024 9:08 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: RLS from personal diet rhythms--easy solution
Replies: 6
Views: 9568

Re: RLS from personal diet rhythms--easy solution

Using small amounts of those trigger foods before bed as a preventive measure sounds super smart and effective.It's also pretty cool that you found relief with quinine sulfate, despite all the controversy around it.Sharing your experience inspires me to look into dietary and environmental factors as ...
by Monolight1
Mon Jun 17, 2024 4:39 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 526
Views: 189374

Re: Medical Marijuana

Sorry for reviving this thread, but I think it should raise some interest in others.
What do you guys like now? I'm into gummies.
I've been using Delta-9 THC gummies for a while now, and they've been quite effective. The gummies provide noticeable relief, helping me to relax and ease the discomfort ...
by Monolight1
Wed Jun 12, 2024 12:12 pm
Forum: Prescription Medications
Topic: Anyone Heard of Nedria Tomac Therapy?
Replies: 8
Views: 19236

Re: Anyone Heard of Nedria Tomac Therapy?


I just read about this device today. Very interested in finding a doctor to discuss this with. I have been on gabapentin for 4 years, but it has recently seemed to stop working as well. I keep waking up with symptoms; it doesn’t help to take more than five 300 mg pills, I am no longer getting ...
by Monolight1
Wed Jun 12, 2024 12:09 pm
Forum: Prescription Medications
Topic: Abilify
Replies: 21
Views: 25088

Re: Abilify


There are a few hits regarding abilify in this forum -- which of you have taken Abilify and in which doses? Specifically, has anyone been on low dose Abilify?

Background is that low-dose Abilify is pretty much the only drug that seems to work for ME/CFS, where people take Abilify around 1mg/d as ...
by Monolight1
Wed Jun 12, 2024 12:08 pm
Forum: Prescription Medications
Topic: Opioid Constipation
Replies: 22
Views: 21440

Re: Opioid Constipation

Glad you're finding some relief with that combo! Colace and Phillips can be a lifesaver for constipation, and the Seneca pills must be helping too. Fingers crossed it keeps working for you!
by Monolight1
Wed Jun 12, 2024 12:05 pm
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 103
Views: 95754

Re: Reversing Restless Leg Syndrome


Just thought I'd post an update on my dopamine agonist free journey....It's been 63 days since taking my last dose of a Requip and my withdrawal symptoms continue to slowly diminish with time. I've been getting approx. 6-7 hours of good sleep nightly, poor sleep greatly contributes to activation ...
by Monolight1
Wed Jun 12, 2024 12:03 pm
Forum: Prescription Medications
Topic: Spine surgery
Replies: 9
Views: 12873

Re: Spine surgery


I have had the back surgery a couple of weeks ago and doing pretty good I think. Things have been real strange, I walked out of the hospital AMA, and haven't talked to anyone, and there are no medical records any where. As far as the anesthesia, I talked to the Dr before surgery about the RLS ...
by Monolight1
Tue Jun 11, 2024 9:50 pm
Forum: Physical Treatments
Topic: Success
Replies: 14
Views: 16284

Re: Success

I'm so thankful that you could recover from RLS without any medication, I'm jelous in a good way, not many get to say the things you spoke in this thread