Restless Legs Syndrome (RLS) Discussion Board

I had a right hip replacement last June 2024 before I even knew I had RLS! (Diagnosed in Oct. 2024) I received a spinal, but they made sure I was nicely "relaxed" before they gave it to me. I came through the surgery without any accommodations for RLS. Sleeping was difficult for a while because of ...

Thanks for your response. Glad you have found something that works for you.

I'm still titrating up on the Pregabalin that was prescribed for me on 3/13. Currently at 100mg. I tried titrating down on the Pramipexole from .25mg to .125 after a couple of weeks on the Pregabalin, but found I still ...

Steve, Ann, and Beth,

A huge, heartfelt THANK YOU to all of you. I met with the Pulmonologist today. I'd already messaged him ahead of time about wanting to get off pramipexole and getting on an apha-2-delta ligand. He made no small talk, but immediately asked me why I wanted to get off. I told him ...

Great advice! Thank you. I'm going to message the Pulmonary doctor about this today. No point in waiting. I'll let you know how it goes!

Beth,
Thank you for your thoughts. I'm so sorry you had to go through that. Glad you found something that works for you. I'm going to request a trial with a gabapentinoid when I see the pulmonologist next week. What is considered a therapeutic dose of pregabalin? Do you titrate up? Do you stay on ...

Thank you for sharing your story, ViewsAskew. I will be seeing the Pulmonologist next week about sleep apnea so I will revisit my concerns with Mirapex with him then. I have printed out the article on treating RLS from the Journal of Clinical Sleep Medicine and will bring it with me. In the meantime ...

Thank you so much, Rustsmith. What you have said makes sense to me. I really appreciate your quick, comprehensive, and thoughtful reply. I was really feeling alone and confused, and you've been very helpful and kind.

This is my first post. Thanks to the person who welcomed me to submit any questions I might have. I have done my best to read through previous posts and will try not to be redundant.

For background, I was referred to a prominent and well-regarded Pulmonologist because I was diagnosed with severe ...