Search found 23 matches

by necron99
Tue Aug 12, 2008 8:32 pm
Forum: Physical Treatments
Topic: MSG
Replies: 9
Views: 3245

I have had a sneaking suspicion that MSG drives my legs crazy, but I have never done the elimination diet. I first noticed it after eating some rice crackers that had MSG on them as a snack before I went to brunch. By the time I went the restaurant my legs were completely out of control. Could have ...
by necron99
Wed Nov 21, 2007 9:26 am
Forum: General Topics: RLS
Topic: THANKSGIVING......WHAT ARE YOU THANKFUL FOR??
Replies: 15
Views: 1723

-First and foremost, for a wife that loves me and understands all of me, even my stupid legs, ADD, artistic craziness, and hyperactive silliness.... and never holds them against me. - For having medication to keep my RLS under-control most of the time. -For a doctor I can finally feel comfortable ta...
by necron99
Thu Feb 01, 2007 11:54 pm
Forum: Physical Treatments
Topic: quick info on a herb that works very well
Replies: 3
Views: 2127

quick info on a herb that works very well

I posted this before, but it was deep in another thread in another section Ok, quick post on the herbal stuff. I will do a whole write up in the non pharm section as soon as I get a minute to do a major write up. anyways, for the last two months I have been unmedicated due to a ignorant doctor, and ...
by necron99
Fri Jan 19, 2007 8:56 pm
Forum: Prescription Medications
Topic: today I was labeled a drug seeker, please help
Replies: 46
Views: 15929

Score one for the RLS'ers So yesterday, I recieved a letter in the mail from the doctor. It was a full apologie for what happened and a offer to refer me to a more experienced doctor. In it she explained that at the time she did think I was drug seeking, but after review of my medical records from ...
by necron99
Fri Jan 05, 2007 8:15 pm
Forum: Prescription Medications
Topic: I'll Sleep When I'm Dead
Replies: 26
Views: 6788

Ok, quick post on the herbal stuff. I will do a whole write up in the non pharm section as soon as I get a minute to do a major write up. anyways, for the last month I have been unmedicated due to a ignorant doctor, and have had some really rough times during it, but I have found a herb that works t...
by necron99
Mon Dec 18, 2006 8:02 pm
Forum: General Topics: RLS
Topic: Rosie O'Donnel Says There is No RLS
Replies: 89
Views: 22459

Tonight when I get home from work I will be writing a few letters to them. That is unexceptable, That sort of ignorance is the reason so many of us feel ashamed to even mention what we are going thru to people, not to mention our fight with doctors to understand how crippling this is to us hardcore ...
by necron99
Sat Dec 16, 2006 10:31 am
Forum: Prescription Medications
Topic: More on doctors, fear, and opioids
Replies: 21
Views: 6953

Wow, The things we have to go thru...I am so sorry about your change in doctors. For me, there is nothing in the world that is as scarry as knowing that your insurance has changed, or you doctor that you have built a trust with is no longer a option. I am in the same boat, at the moment, and all I c...
by necron99
Sat Dec 16, 2006 10:10 am
Forum: General Topics: RLS
Topic: Loneliness
Replies: 37
Views: 7018

Hi brandy, and every one else, I first must say, I am sorry , and you are not alone. This loneliness, is something we unfortunately have to deal with at the moment, but hopefully it is temporary. At the moment I have no meds, and it seems life could not be harder. the depression that has fallen over...
by necron99
Tue Dec 05, 2006 11:38 pm
Forum: Prescription Medications
Topic: today I was labeled a drug seeker, please help
Replies: 46
Views: 15929

Well, Just a up date, I am sending a letter to the patient relations at the hospital I went to, that my wonderful wife has helped me write. Along with the letter. I am including the Quality of life statement that lynne and becat wrote (with everyones help), and info from harverd, NCBI and Partners a...
by necron99
Tue Dec 05, 2006 5:07 am
Forum: General Topics: RLS
Topic: LAST CALL FOR Q O L STATEMENTS
Replies: 17
Views: 3773

Thank you all , especially lynne and Becat for puttin together this opening letter. I feel you are doing something great, and you will be helping all of us by taking the extra steps and doing this to help the community. I have had a recent disaster with a doctor, and because of this, I am having to ...
by necron99
Sat Dec 02, 2006 12:10 am
Forum: Prescription Medications
Topic: today I was labeled a drug seeker, please help
Replies: 46
Views: 15929

today I was labeled a drug seeker, please help

where to start. I am 27, and have had a lifetime of problems, be it ADHD, insomnia and restless legs. For all these conditions I have run the gamut of medications, side effects and doctors. I am completely lost now Today I had a doctors appointment, with a doctor I have seen twice. I needed to get m...
by necron99
Fri Nov 03, 2006 9:29 pm
Forum: Prescription Medications
Topic: Side effects: Add Yours to Create a Complete List
Replies: 93
Views: 44412

Lets see, gabapentin-form 300-1500mg a day -Only1500mg seemed to do anything, - Extreamly foggy -headaches -Felt emotionally blunted Requip, .125-2.5 - Vomiting -constant nausea -Felt awful -didnt help at all with the rls ( only took for 5 days) Mirapex( lowest dose possible) -Vomiting -constant nau...
by necron99
Fri Nov 03, 2006 8:55 pm
Forum: Prescription Medications
Topic: The Beer Experiments - An Update
Replies: 6
Views: 2565

I am not sure about your situation, but I know from experience that when some people become dependant on a narcotic, sometimes their brain will somehow convince their body that they are in pain or more pain than they are. Actually what happens is with prolonged narcotic use, your endogenous opiate ...
by necron99
Thu Aug 03, 2006 8:04 pm
Forum: General Topics: RLS
Topic: think this could be bad
Replies: 29
Views: 7426

I recently told my grandma about what I have been going thru , and she was very saddend. She said" Oh my poor lil tiger, You have gotten the marshel legs. Your great grandma marshel had it, I have it, you dad gets it every now and then, your sister got it after she had her child, and from the sounds...
by necron99
Thu Aug 03, 2006 7:54 pm
Forum: Prescription Medications
Topic: DA's and vomiting.
Replies: 11
Views: 3774

Thanks for all the replies. I ended up having to quit the requip after taking it for a week and a half, ramping up to .25mg a night. It was not helping with the RLS, I had no appetite in the morning, lots of weird side effects and once I was up to .25mg, I started throwing up in the morning. Between...