Search found 32 matches

by Elfrieda
Fri Jul 15, 2005 12:59 am
Forum: General Topics: RLS/WED
Topic: In incredible pain - what the ^%$@@!
Replies: 28
Views: 6027

Ann, I'm glad you figured out what was causing your pain. It is bad enough to be in pain, yet another thing to live with uncertainty of what is causing it. I have never heard of FM attacking that quickly. It's been my experience that FM kind of sneaks up on its victims. I do want to warn all of you ...
by Elfrieda
Fri Jul 15, 2005 12:33 am
Forum: General Topics: RLS/WED
Topic: Virus?
Replies: 2
Views: 1243

Virus?

Was there a virus on this website recently? During the past week I signed on a few times and got really strange messages.

Elfrieda
by Elfrieda
Mon Feb 21, 2005 4:34 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: No RLS, just FM & RA and despair
Replies: 11
Views: 10089

Good news

The blood work for RA came back negative. I still have all the same aches and pains. My fingers and toes are still stiff, and my little finger does a trick about popping into place when I move it, but I don't have to worry, for now, about RA.

Elfrieda
by Elfrieda
Fri Feb 04, 2005 11:33 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: No RLS, just FM & RA and despair
Replies: 11
Views: 10089

Thanks

Thank you all for your kind words. It was just what I needed, just when I needed it. ViewsAskew: It would be rare for your husband to have FM. There are men who have it, but not often. It's another of those things that we ladies have mostly to ourselves. I was about to say we wouldn't mind sharing, ...
by Elfrieda
Thu Feb 03, 2005 4:33 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: No RLS, just FM & RA and despair
Replies: 11
Views: 10089

IBS is just another component of FM. Some people have it without having FM, but many FM people have it. I have a great gastro-guy whom I trust. He is also familiar with FM. Can't beat that. One great side effect of the methadone I'm on everyday is constipation-- beats chronic diarrhea all to pieces....
by Elfrieda
Thu Feb 03, 2005 12:22 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: No RLS, just FM & RA and despair
Replies: 11
Views: 10089

ViewsAskew, No, you don't have to have all 18 tender points to have a FM diagnosis. I was diagnosed years ago. However, I do have all points. I've had that long list of stuff for years, but I was coping with it quite nicely until a little over a year ago when I took a dive I couldn't get out of. I s...
by Elfrieda
Wed Feb 02, 2005 9:30 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: No RLS, just FM & RA and despair
Replies: 11
Views: 10089

No RLS, just FM & RA and despair

Hello people, I needed a place to complain, and you people were so kind to me in the past. I haven't posted to this board in ages. It was once suspected that I had full-body RLS, but it turned out that I had neuropathic pain from my fibromyalgia that was causing my wiggly, antsy, restless feeling I ...
by Elfrieda
Sun Sep 19, 2004 7:26 pm
Forum: Just Joined?
Topic: Is there anyone like me?
Replies: 51
Views: 18365

If it ain't broke...

I finally found something that seems to be giving me some relief from the terrible pain of FMS plus the weird sensations I was experiencing without a lot of side effects. I'm happy. I don't think I'll tamper with it. :D

Elfrieda
by Elfrieda
Sun Sep 19, 2004 4:25 am
Forum: Just Joined?
Topic: Is there anyone like me?
Replies: 51
Views: 18365

guarded optimism

Today I had very little of my horrible restless feelings. I am beginning to think that my new drug combination might help. I had my usual 1200mgs of Neurontin and my half pill of Methadone. I only needed a half Tylenol 3 twice today to keep the feelings at bay. I have been doing something like three...
by Elfrieda
Thu Sep 16, 2004 3:19 am
Forum: Just Joined?
Topic: A disease? Give me a break
Replies: 55
Views: 19364

Sardsy's reply

Sardsy wrote: Oh, we're open to friendly debates alright ... but there's a knack to starting a friendly debate, which you kinda forgot to use. You came in attacking with guns blazing right from the outset and then expected us to be nice? Don't attack a group who have worked hard as a family to resea...
by Elfrieda
Wed Sep 15, 2004 9:45 pm
Forum: Just Joined?
Topic: A disease? Give me a break
Replies: 55
Views: 19364

Ariana "Guest" seems like a very bitter person, maybe even somewhat troubled by something. If she wants friendly debate, she should approach people in a friendly manner. I find plenty debate on the boards, but I also find discussion, support, and information, which I'm certain all members would exte...
by Elfrieda
Tue Sep 14, 2004 5:06 am
Forum: Just Joined?
Topic: Is there anyone like me?
Replies: 51
Views: 18365

FMS

Jumpy, In many books on FMS there is mention of RLS as one of the symptoms of FMS. That's all I knew about it before I found this forum. So I'm not surprised that many people have both. Many people I know who have FMS as their primary condition also have RLS. I'm taking the Neurontin and Methadone (...
by Elfrieda
Mon Sep 13, 2004 10:54 pm
Forum: Just Joined?
Topic: Is there anyone like me?
Replies: 51
Views: 18365

another part of the story

The last time I checked in here I told you that I had "fired" my neuro and refused to take any of his meds. For the past week, I've been treating myself with a half Tylenol 3 as needed for whatever it is that I have. I finally saw my rheumatologist today. He's the one treating me for the fibromyalgi...
by Elfrieda
Fri Sep 10, 2004 3:42 am
Forum: Prescription Medications
Topic: My RLS Mountain....
Replies: 183
Views: 46885

paranoia runs rampant

I, too, have wondered what doctors write about me and pass on to new doctors who always ask for records. Maybe if we polled everyone on this board we'd hear more concerns about what those mysterieous markings are in our medical records. No matter, in many ways we are dependent on the docs although t...
by Elfrieda
Fri Sep 10, 2004 2:25 am
Forum: Prescription Medications
Topic: My RLS Mountain....
Replies: 183
Views: 46885

thanks for your story

Becat. your story is so heartening. Just a little over a week ago, I decided to "fire" my neurologist. I have been kind of medicating myself this week until I can see my rheumatologist tomorrow. You have given me the courage (I hope) to tell him honestly what I think.

Elfrieda

Go to advanced search