Restless Legs Syndrome (RLS) Discussion Board

I love the way you preface everything with you not being a doctor. *S* I personally the advice of most of the members here are worth alot...its people that know what you are feeling and talking about. I have some clonazepam that I can use for about a week or so, so I may give it a try. If its not to...

I have been on mirapex for 4 weeks now, 4 glorious, restful weeks of NO rls, I am starting to get hints of my legs bothering me again. If any of you remember, I live in an RV and travel and at the moment I am 3,000 miles away from my doctor. SO...my question is should I go ahead and stop taking the ...

Well the very good news is that I have been 2 whole days with no trouble with my legs!!! I have, for 33 years, prayed for just a couple of days without it and now I have experienced it. The mirapex is working I hope and when I get up in the morning I have no after effects of it. I am so, so happy an...

Ok....he gave me mirapex to try..0.5, one or two a night. He said my insurance won't cover the patch yet..although if I wanted to pay for it he would have given me a script for it, but it is too much $$ right now. He was impressed with my material I brought from Mayo, and actually had already glance...

Thanks so much for all the info everyone. I am on my way to the doc and will let you all know how it goes. I have the info from the clinic printed out to let him read and I am going to ask about the patch and if not I think I am going to give the mirapex a try.

Thanks again....*S*

Ok...I have an appointment with my doc this afternoon and am armed with all the new info I have been able to get from many here. I have been on permax for years and it worked for a long time, but was starting to augment when they took it off the market. I am now quite confused over what to try next....

My biggest problem with getting to the doc right now is that I am in a place where believe it or not there are very few doctors. I am at the Outer Banks of North Carolina and won't be home for my doc visit till mid July. I have a few hydrocodine that I am saving and am deinitely taking one tonight. ...

This goes along with bharrod's tale of horror. Last night had to be one of the worst ones I have had in my 32 years of rls. I was not able to even sit down for 2 minutes...none of the meds seemed to help, my back started hurting because I was standing so long. I cried and cried and prayed..for just ...

Please allow me a moment on this topic. There have been many good things said in this thread...it is quite obvious that no one has meant to hurt anyone else deliberately. The great thing about this board is that we all have one thing in common and that is our agony over rls. Everyone here knows how ...

It is so horrible to be up all night long walking the floor. I can't even post on my puter when I am like this because I can't sit down to type on it. I know how you feel...depressed, lonely, frustrated, but you know deep in yourself that distancing yourself from people that care and can offer, more...

I heard of this the other day and have been in a panic since. I have been taking permax for a few years now and it is the only drug so far that has given me relief. My doc and I discussed requip when it first came out, but decided against it when I read all the problems so many have had. I don't kno...

Has anyone heard of a patch with rotigotine helping us? I read that it is already in use in Europe and is in the process of approval by FDA here.

Well, here it is another morning...didn't get to sleep at all last night because of my "good ole legs". And what always seems to make it worse is that the morning after a night like I have had, my back is killing me since I can't sit at all when I get this bad. There are only so many things you can ...

Well, I have been taking the permax for almost 5 years now and it didn't seem to be working as well as it used to. When I mentioned this to him, we talked for a while about other options and he said he had several patients having good luck with the klonpin. I don't know if maybe it is not enough or ...

I am going CRAZY!!!!! This is my 3rd night of no sleep....well I did sleep for 4 hours last night...night before not at all and I'm off to a good start on no sleep at all tonight. My doc changed my meds from permax to klonopin and it is not working at all. I am so so exhausted and my back is hurting...