Restless Legs Syndrome (RLS) Discussion Board

Exactly josh, I'm so dissapointed becaus she was totally uninterested in even looking at what I brought in. She saw that I had notes written down and the algorithm out and info from several different sources and she treated me like I had just grabbed some random thing off of the internet because clo...

Well I went to that doctor this afternoon. Unfortunately I'm here to say that it was the absolute most disconcerting and terrible interaction I have ever experienced with a medical professional. I'm really shaken right now. I was alloted a half hour appointment and I went in with my thoughts and no...

Emily, I hope you're feeling ok. please let us know how the patches are working out for you. I was considering asking for one of them to try if I can't find something else to last long enough. Thanks!

That's brutal Andy, I take Lyrica and the same thing kind of happened to me last night. It usually makes me fuzzy and tired but last night I tossed around for almost two hours feeling all jittery and awake. It's not a fun feeling. Good luck with the narcotics. I'm going to a new doctor today so we'l...

Emily, opioids are the only meds for that fight ALL of the symptoms of rls. And they eliminate them almost completely for me, often they do eliminate them completely. The relief just doesn't last a long time. However, nothing else that I've taken has had an impact on all of the symptoms at the same ...

this seems to be the thread that most of us check back on most often so I thought I'd throw this in here as I found it rather interesting. I've been taking Lyrica (pregabalin) for a few weeks now. Today I went on Lyrica's website to learn a little more about it since I was kind of freaked out by all...

I remember back in my younger and care free days that smoking seemed to always have the exact opposite effect on me that it had on other people or that it was supposed to have. Where other people got relaxed and mellow I got tense and my pulse raced and my nervous system went into hyperdrive. I reme...

Amen to that Andy!!

Hi all. I'm reading a lot about withdrawl from Neurontin and the plateau of effectiveness after a couple of years. As some of you know from, previous explanations, I'm uninsured and have been surviving on Lortab and free samples of Lyrica for my doctor. The Lyrica has been wonderful for getting rest...

Well I just called my dr because I ran out of dilaudid and again he "urged" me to get in touch with a pain specialist or primary doctor asap. I also found out that he can't refill my dilaudid so I'm back to hydrocodone at least until I see him next if not for good. That sucks. I hate taking the acet...

I read somewhere in my research that most rls patients proved not to have any vein associated problems. I don't know that for a fact and I don't remember exactly who cited that but I just found this and found it interesting as I experience pain and aching heaviness in my legs as well as all of the o...

Josh, I remember that show! It's a game show right? Where each contesant swallows a handful of pills selected at random and then as the room begins to spin for each contestant the audience guesses from a list of drugs, which one is making it spin. And whoever gets the most correct guesses wins a lov...

no problem Emily. I think hearing eachothers personal experience is what helps us know eachother and helps us find comfort in our own experience. I'm sorry to hear how sudden your onset was. I can imagine how scary that would feel. Mine was the same with remembering the urge to move a long time ago ...

Thanks Ann, unfortunately i'm uninsured at the moment so I can't get many tests but I will ease off of the iron just in case. Take it every few days or once a week or something and see if that changes anything. It hasn't seemed to help my symptoms so It's not like I'll really miss it if I back off a...

I didn't know Josh was a pharmacist. Well Josh, You have given people lots of helpful information and we do appreciate it. Thanks!