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by SquirmingSusan
Tue Oct 08, 2019 2:37 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New Kratom User - when to take
Replies: 42
Views: 1162

Re: New Kratom User - when to take

It actually depends on the person as far as which strains will work the best. I have issues with some of the stronger reds, like hulu or wild red. They make me weak and shaky, and sometimes act as a stimulant for me. For me, some of the non-energetic greens are the best, like green Bali or green ele...
by SquirmingSusan
Tue Oct 08, 2019 2:28 am
Forum: Prescription Medications
Topic: Infusion #3
Replies: 28
Views: 683

Re: Infusion #3

I had my second iron infusion of this series on Friday. They are giving me Ferrlecit, 125 mg. at a time, in monthly infusions. I get my ferritin level rechecked in November, after the 3rd infusion. My RLS got much better within a couple weeks after the first infusion. I think I'm one of the few peop...
by SquirmingSusan
Sat Sep 07, 2019 2:59 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Problems with Kratom
Replies: 16
Views: 391

Re: Problems with Kratom

In various kratom forums, people say to rotate strains and suppliers of kratom. I don't know if it's really a thing, but they call it "same strain syndrome." Also, kratom varies in potency from season to season, and from supplier to supplier. I do know that it's possible to build tolerance...
by SquirmingSusan
Sat Sep 07, 2019 2:51 am
Forum: Prescription Medications
Topic: Infusion #3
Replies: 28
Views: 683

Re: Infusion #3

ViewsAskew wrote:My first is scheduled for next Tuesday.


Hurray!

I wonder if Beth is getting some soon...

My doctor has me getting them once a month for 3 months, and then getting labwork. Strange scheduling, but sitting in the infusion center once a month is better than every week.
by SquirmingSusan
Wed Sep 04, 2019 10:32 pm
Forum: Prescription Medications
Topic: Infusion #3
Replies: 28
Views: 683

Re: Infusion #3

When you go for your first infusion of the series, be sure to ask the nurse exactly what the label on the IV bag says, both name of med and dose (# of mg.).


I got ferrlecit. The nurses had no idea why; they said the most common one they give is Venofer. One down, 2 to go!
by SquirmingSusan
Wed Sep 04, 2019 12:44 am
Forum: Prescription Medications
Topic: Clonidine
Replies: 12
Views: 290

Re: Clonidine

... My ferritin was 8 and my iron saturation was 25%. No wonder I get out of breath riding my trike and walking up hills. I start a series of 3 iron infusions on Wednesday. Are you anemic? Very likely you are with a ferritin that low. If doc didn't say, what was your hemoglobin or hematocrit, those...
by SquirmingSusan
Sat Aug 31, 2019 5:19 am
Forum: Prescription Medications
Topic: Infusion #3
Replies: 28
Views: 683

Re: Infusion #3

I'll be starting a series of 3 iron infusions next Wednesday. I'm assuming the doctor ordered Injectafer, since I told him I had a great experience with it last time around, except for the cost. It was several thousand dollars, and I'm still making monthly payments. And, our $4000 deductible resets ...
by SquirmingSusan
Sat Aug 31, 2019 4:54 am
Forum: Prescription Medications
Topic: Clonidine
Replies: 12
Views: 290

Re: Clonidine

That's great if it helps you reduce the methadone, Ann! I did get my own prescription, and it is very much a miracle drug for me. I had no trouble talking my neurologist into prescribing it, especially since my blood pressure that day was 148/98. (But I had ridden my trike 15 miles to get there, and...
by SquirmingSusan
Tue Aug 13, 2019 2:41 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: velvet bean extract?
Replies: 1
Views: 141

Re: velvet bean extract?

Search the forum for mucuna pruriens. I'm sure many people have tried it. It's a natural source of L-Dopa.
by SquirmingSusan
Tue Aug 13, 2019 2:39 am
Forum: Prescription Medications
Topic: Clonidine
Replies: 12
Views: 290

Re: Clonidine

I've been dealing with augmented RLS for a long, long time. Have gone through the whole litany of medications, and have mostly been managing with kratom, with an occasional boost from methadone. Oddly, when we traveled to Japan last fall, I had to get a prescription for methadone because kratom is i...
by SquirmingSusan
Sun Aug 11, 2019 4:08 am
Forum: Prescription Medications
Topic: Clonidine
Replies: 12
Views: 290

Clonidine

I'm surprised that this medication doesn't have heading in this message board yet. At least, I couldn't find one. Is anyone else taking this and having success with it? I was getting desperate because between methadone and kratom, I'm not sleeping at night lately. In desperation, I borrowed a half a...
by SquirmingSusan
Sun Jun 24, 2018 1:31 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 78
Views: 3486

Re: Experience with Injectafer?

I had 2 infusions of Injectafer a little over a year ago. It certainly was a lot more convenient than the other iron infusions I've had. Just 2 short sessions instead of 5 or 6 sessions of several hours each. It helped some, but iron doesn't get rid of my RLS entirely.
by SquirmingSusan
Tue May 29, 2018 4:28 am
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 2583

Re: Hot Tub?

You can get Jacuzzi bathtubs (and other brands) that have jets and heaters, just like a hot tub, but fit right into the spot where the bathtub goes... I was just thinking that I've never had RLS when sitting in a hot tub. We have a hot tub sitting in our basement that we don't use because it leaks, ...
by SquirmingSusan
Fri May 18, 2018 4:01 am
Forum: Physical Treatments
Topic: Alpha Stim again
Replies: 3
Views: 1517

Re: Alpha Stim again

I have an Alpha-Stim. It helps me with pain, but not with RLS.
by SquirmingSusan
Sun May 13, 2018 9:11 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom physiology
Replies: 16
Views: 2577

Re: Kratom physiology

I want to let you know about a couple of good vendors for kratom, in addition to SoCal, which is a great vendor. These all have good quality kratom, and are reasonably priced: Kat's Botanicals: https://katsbotanicals.com/ Valkyrie Botanicals: https://www.valkyriebotanicals.com/ Tea Time Botanicals: ...

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