Search found 2564 matches

by SquirmingSusan
Sat Sep 07, 2019 2:59 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Problems with Kratom
Replies: 16
Views: 240

Re: Problems with Kratom

In various kratom forums, people say to rotate strains and suppliers of kratom. I don't know if it's really a thing, but they call it "same strain syndrome." Also, kratom varies in potency from season to season, and from supplier to supplier. I do know that it's possible to build tolerance...
by SquirmingSusan
Sat Sep 07, 2019 2:51 am
Forum: Prescription Medications
Topic: Infusion #3
Replies: 20
Views: 326

Re: Infusion #3

ViewsAskew wrote:My first is scheduled for next Tuesday.


Hurray!

I wonder if Beth is getting some soon...

My doctor has me getting them once a month for 3 months, and then getting labwork. Strange scheduling, but sitting in the infusion center once a month is better than every week.
by SquirmingSusan
Wed Sep 04, 2019 10:32 pm
Forum: Prescription Medications
Topic: Infusion #3
Replies: 20
Views: 326

Re: Infusion #3

When you go for your first infusion of the series, be sure to ask the nurse exactly what the label on the IV bag says, both name of med and dose (# of mg.).


I got ferrlecit. The nurses had no idea why; they said the most common one they give is Venofer. One down, 2 to go!
by SquirmingSusan
Wed Sep 04, 2019 12:44 am
Forum: Prescription Medications
Topic: Clonidine
Replies: 10
Views: 165

Re: Clonidine

... My ferritin was 8 and my iron saturation was 25%. No wonder I get out of breath riding my trike and walking up hills. I start a series of 3 iron infusions on Wednesday. Are you anemic? Very likely you are with a ferritin that low. If doc didn't say, what was your hemoglobin or hematocrit, those...
by SquirmingSusan
Sat Aug 31, 2019 5:19 am
Forum: Prescription Medications
Topic: Infusion #3
Replies: 20
Views: 326

Re: Infusion #3

I'll be starting a series of 3 iron infusions next Wednesday. I'm assuming the doctor ordered Injectafer, since I told him I had a great experience with it last time around, except for the cost. It was several thousand dollars, and I'm still making monthly payments. And, our $4000 deductible resets ...
by SquirmingSusan
Sat Aug 31, 2019 4:54 am
Forum: Prescription Medications
Topic: Clonidine
Replies: 10
Views: 165

Re: Clonidine

That's great if it helps you reduce the methadone, Ann! I did get my own prescription, and it is very much a miracle drug for me. I had no trouble talking my neurologist into prescribing it, especially since my blood pressure that day was 148/98. (But I had ridden my trike 15 miles to get there, and...
by SquirmingSusan
Tue Aug 13, 2019 2:41 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: velvet bean extract?
Replies: 1
Views: 82

Re: velvet bean extract?

Search the forum for mucuna pruriens. I'm sure many people have tried it. It's a natural source of L-Dopa.
by SquirmingSusan
Tue Aug 13, 2019 2:39 am
Forum: Prescription Medications
Topic: Clonidine
Replies: 10
Views: 165

Re: Clonidine

I've been dealing with augmented RLS for a long, long time. Have gone through the whole litany of medications, and have mostly been managing with kratom, with an occasional boost from methadone. Oddly, when we traveled to Japan last fall, I had to get a prescription for methadone because kratom is i...
by SquirmingSusan
Sun Aug 11, 2019 4:08 am
Forum: Prescription Medications
Topic: Clonidine
Replies: 10
Views: 165

Clonidine

I'm surprised that this medication doesn't have heading in this message board yet. At least, I couldn't find one. Is anyone else taking this and having success with it? I was getting desperate because between methadone and kratom, I'm not sleeping at night lately. In desperation, I borrowed a half a...
by SquirmingSusan
Sun Jun 24, 2018 1:31 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 74
Views: 2972

Re: Experience with Injectafer?

I had 2 infusions of Injectafer a little over a year ago. It certainly was a lot more convenient than the other iron infusions I've had. Just 2 short sessions instead of 5 or 6 sessions of several hours each. It helped some, but iron doesn't get rid of my RLS entirely.
by SquirmingSusan
Tue May 29, 2018 4:28 am
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 2433

Re: Hot Tub?

You can get Jacuzzi bathtubs (and other brands) that have jets and heaters, just like a hot tub, but fit right into the spot where the bathtub goes... I was just thinking that I've never had RLS when sitting in a hot tub. We have a hot tub sitting in our basement that we don't use because it leaks, ...
by SquirmingSusan
Fri May 18, 2018 4:01 am
Forum: Physical Treatments
Topic: Alpha Stim again
Replies: 3
Views: 1462

Re: Alpha Stim again

I have an Alpha-Stim. It helps me with pain, but not with RLS.
by SquirmingSusan
Sun May 13, 2018 9:11 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom physiology
Replies: 16
Views: 2482

Re: Kratom physiology

I want to let you know about a couple of good vendors for kratom, in addition to SoCal, which is a great vendor. These all have good quality kratom, and are reasonably priced: Kat's Botanicals: https://katsbotanicals.com/ Valkyrie Botanicals: https://www.valkyriebotanicals.com/ Tea Time Botanicals: ...
by SquirmingSusan
Sun May 13, 2018 8:52 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom physiology
Replies: 16
Views: 2482

Re: Kratom physiology

I started taking kratom in place of methadone last November. It worked great for me until I had oral surgery and needed a lot of it to control the pain. Now it takes a lot of it to manage the RLS. About every year I try a keto diet again to see if it helps manage my narcolepsy symptoms or RLS. Since...
by SquirmingSusan
Sat Dec 02, 2017 4:23 am
Forum: Everything Else...just no RLS/WED!
Topic: Is it Only Me ?
Replies: 33
Views: 5411

Re: Is it Only Me ?

My parents used to go to Florida every winter, and then gloat about how nice the weather was, and how they were playing golf and picking seashells on the beach, etc. We threatened to send them a spring-loaded snowball-in-a-box if they didn't cut it out. ;)

Go to advanced search