Search found 2550 matches

by SquirmingSusan
Sat Dec 02, 2017 4:23 am
Forum: Everything Else...just no RLS/WED!
Topic: Is it Only Me ?
Replies: 33
Views: 783

Re: Is it Only Me ?

My parents used to go to Florida every winter, and then gloat about how nice the weather was, and how they were playing golf and picking seashells on the beach, etc. We threatened to send them a spring-loaded snowball-in-a-box if they didn't cut it out. ;)
by SquirmingSusan
Thu Nov 30, 2017 6:09 am
Forum: Everything Else...just no RLS/WED!
Topic: Harassed by repair person
Replies: 13
Views: 279

Re: Harassed by repair person

Ugh. As "leggo" said, that is gross, gross, gross! And we're surrounded by it these days.
by SquirmingSusan
Thu Nov 30, 2017 6:06 am
Forum: Everything Else...just no RLS/WED!
Topic: Is it Only Me ?
Replies: 33
Views: 783

Re: Is it Only Me ?

Sleep deprivation is one of the worst stresses that our bodies and brains can endure. I was an absolute crazy person for many years, before finally being diagnosed with RLS and eventually narcolepsy. Fortunately I have a good combination of medications that help my narcoleptic brain get deep sleep, ...
by SquirmingSusan
Sun Nov 19, 2017 3:46 am
Forum: Everything Else...just no RLS/WED!
Topic: Harassed by repair person
Replies: 13
Views: 279

Re: Harassed by repair person

Ugh, what a creep.
by SquirmingSusan
Sun Nov 12, 2017 4:07 am
Forum: General Topics: RLS/WED
Topic: Experimental treatment for Parkinson's disease - stimulating spinal cord
Replies: 4
Views: 287

Re: Experimental treatment for Parkinson's disease - stimulating spinal cord

I hope they figure out something to better treat RLS as well as Parkinson's. I know so many people with Parkinson's, and not a one has had deep brain stimulation. I don't know if it's an insurance thing or it's too risky or another reason.
by SquirmingSusan
Sun Nov 12, 2017 3:58 am
Forum: General Topics: RLS/WED
Topic: random rant about a doctor
Replies: 14
Views: 289

Re: random rant about a doctor

Some doctors just don't get it. I think they're motivated by prestige and the desire to make money rather than to care for patients and help relieve suffering. I good doctor is literally worth their weight in gold.
by SquirmingSusan
Sun Nov 12, 2017 3:54 am
Forum: General Topics: RLS/WED
Topic: Painful RLS
Replies: 11
Views: 280

Re: Painful RLS

My RLS used to be really painful, but turned to the creepy-crawlies when I brought my vitamin D levels up. When I reacted/augmented on Requip and Mirapex, it was painful like someone lit my legs on fire, along with having to literally dance around to control the urge to move. I hate this disorder, a...
by SquirmingSusan
Sun Nov 12, 2017 3:50 am
Forum: General Topics: RLS/WED
Topic: Issues feel insurmountable
Replies: 31
Views: 1027

Re: Issues feel insurmountable

It's almost impossible to lose weight when sleep-deprived, leggo. It messes with insulin, cortisol, and every other hormone system there is. The best you can do is eat healthy, manage stress, pet the dogs a lot, get some sunshine, and get exercise. I'm guessing water aerobics will help your pain som...
by SquirmingSusan
Sun Nov 12, 2017 3:15 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 10
Views: 315

Re: Iron Patches

Actually I realized the patches are said to be nano particles. They seem to be scientifically impossible, since the weight of the patch is less than 1/10 of the claimed weight of the nutrients in them. When I asked them about it, they said it was due to their special dehydration process, and basical...
by SquirmingSusan
Sat Nov 11, 2017 4:37 am
Forum: Everything Else...just no RLS/WED!
Topic: Moving Mayhem
Replies: 82
Views: 2517

Re: Moving Mayhem

Hurray! Enjoy all that sunshine and warmth, and having Dr. B close by! My neuro doesn't like it when I take my full methadone prescription, which is 2.5 5 mg. pills a day. When my ferritin is low, I need at least 3 whole tablets. When my ferritin is higher, I need 2 a day. Now I'm just taking kratom...
by SquirmingSusan
Fri Nov 10, 2017 3:27 am
Forum: Just Joined?
Topic: New to Site but not to RLS
Replies: 5
Views: 261

Re: New to Site but not to RLS

That sounds terrible! I do have narcolepsy and have not heard of anyone developing it suddenly like that, but it's possible to develop secondary narcolepsy or idiopathic hypersomnia. For most of us, sleep issues started in the teens or early 20s. It didn't become obvious that I had narcolepsy, thoug...
by SquirmingSusan
Thu Nov 09, 2017 3:24 am
Forum: Prescription Medications
Topic: Suboxone mixed results
Replies: 7
Views: 308

Re: Suboxone mixed results

Wow, that's terrible. I've wondered if anyone around here was on Suboxone for RLS. A few years ago I read information that it could be better than methadone for long-term use. Something about methadone causing depression and hormonal issues in the long run. Don't ask me to find that article again, t...
by SquirmingSusan
Tue Nov 07, 2017 7:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 10
Views: 315

Re: Iron Patches

Here's another iron supplement I came across. Much less vitamin C. 6.5 mg per serving. Not sure I like "nano" anything, and their science is a bit questionable, but it looks interesting.

https://shoppe.listentoyourgut.com/angs ... -32-fl-oz/
by SquirmingSusan
Tue Nov 07, 2017 1:23 am
Forum: Everything Else...just no RLS/WED!
Topic: Moving Mayhem
Replies: 82
Views: 2517

Re: Moving Mayhem

Oh Ann, you must be in the thick of it all right now! I read that one paragraph as the renters stole your stuff, too. Haha, glad they didn't! Lately I feel like I've donated more than most people own, just to have some space in the house. Then our daughter came to visit from Japan, where she lives n...
by SquirmingSusan
Mon Nov 06, 2017 11:46 pm
Forum: Physical Treatments
Topic: Power Plate
Replies: 28
Views: 1836

Re: Power Plate

Funny discussion! I would much rather skim a page of writing than watch a video about most things. And the times I do want to watch a video, I speed them up a bit. Fortunately YouTube and most other video sites have the option to change the speed to 1.25 or 1.5 speed. Also, I'm thinking that vibrati...

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