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by Sojourner
Sun Feb 04, 2018 8:37 am
Forum: Everything Else...just no RLS/WED!
Topic: super bowl LII
Replies: 2
Views: 904

super bowl LII

Anyone watching the game tomorrow--or rather today? Rooting for the Eagles myself. Heard on the news today that the temp in Minny tomorrow will be a balmy 6 degrees. Coldest ever for a super bowl. Good thing they are playing inside.
by Sojourner
Sun Feb 04, 2018 8:34 am
Forum: Everything Else...just no RLS/WED!
Topic: 3 billboards outside ebbing missouri
Replies: 5
Views: 1097

3 billboards outside ebbing missouri

Saw this movie several days ago....thought it was a good story and appreciated that it got to "the point" in about 30 seconds. Didn't like the ending at all.
by Sojourner
Mon Feb 13, 2017 2:38 am
Forum: Everything Else...just no RLS/WED!
Topic: Whacha readin?
Replies: 73
Views: 12550

Re: Whacha readin?

Have "All the Light..." on my Hold list at the e-library. Don't know when it will become available but I appreciate the heads up about it being a good read. Some days melancholy is not necessarily a bad feeling. Wishing all who visit here some peace this night. Finally got my turn to down...
by Sojourner
Sun Dec 11, 2016 9:42 am
Forum: General Topics: RLS/WED
Topic: Renewing Membership
Replies: 8
Views: 1837

Re: Renewing Membership

I have learned a lot more about the Foundation just from reading this thread. I agree that this discussion board is worth the donation. A really, really, really, really, really big Foundation plus for me is that I periodically take things to my doctor i.e. articles from the Nightwalkers and she will...
by Sojourner
Sun Dec 11, 2016 9:20 am
Forum: Everything Else...just no RLS/WED!
Topic: Whacha readin?
Replies: 73
Views: 12550

Re: Whacha readin?

Have "All the Light..." on my Hold list at the e-library. Don't know when it will become available but I appreciate the heads up about it being a good read. Some days melancholy is not necessarily a bad feeling.

Wishing all who visit here some peace this night.
by Sojourner
Mon Nov 28, 2016 11:17 pm
Forum: Prescription Medications
Topic: Neupro or gabapentin encarbil?
Replies: 21
Views: 1951

Re: Neupro or gabapentin encarbil?

Beth, I was on sinimet in the mid 1990's. My current neuro put me on .125mg pramipexole in mid-August of this year. Initially it stopped the RLS completely. At about 22 days the RLS started waking me rlat 4-5am and then the pramipexole stopped working at all. He increased the dose to .375mg on 9/14...
by Sojourner
Fri Nov 11, 2016 4:45 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 60
Views: 12974

Re: RLS, Depression and Anti-depressants

Darned if you do and darned if you don't!
by Sojourner
Thu Nov 10, 2016 8:44 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 60
Views: 12974

Re: RLS, Depression and Anti-depressants

Experienced very terrifying, vivid, unbelievably violent, and lifelike "nightmares" using Ambien. Difficult to separate them from reality when awake and to dismiss then. Led to what could be described as a "nervous breakdown" of sorts. I wound up at the University of Michigan anx...
by Sojourner
Wed Nov 09, 2016 5:25 am
Forum: Everything Else...just no RLS/WED!
Topic: Whacha readin?
Replies: 73
Views: 12550

Re: Whacha readin?

About half-way through The Light Between the Oceans. Somewhat of a leap from the genre I usually gravitate to but so far I am enjoying it. While I did not get to see the movie (based on the book) this Fall, I am looking forward to seeing it when it appears on TV in a year or two. Wishing all who vis...
by Sojourner
Sat Nov 05, 2016 5:10 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 60
Views: 12974

Re: RLS, Depression and Anti-depressants

I dont have a target dose but I talked to the pharmacist and he said there are 100s of mg to go up to. The increase to 100mg has been easier than the increase to 75mg was. The dizziness has pretty much resolved and the move to 100mg didnt seem to worsen it. Im still missing that "window" ...
by Sojourner
Fri Nov 04, 2016 5:20 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 60
Views: 12974

Re: RLS, Depression and Anti-depressants

Sojourner, my neurologist put me on trazadone at the beginning of this month for RLS related insomnia. Maybe my experience will help you with it. I've gone from 25mg to 50mg to 75mg at night since I first started it. I also take .25 ropinirole after dinner and .25mg clonazepam (tapering off) immedi...
by Sojourner
Thu Oct 27, 2016 9:01 am
Forum: Prescription Medications
Topic: Worse on GABA? Or crazy?
Replies: 10
Views: 737

Re: Worse on GABA? Or crazy?

leggo, Sorry for the difficulties you are having. Even this short thread illustrates how difficult it is to treat this disease and how varied our individual responses are to medications--getting on them, getting off them, whether they work or not etc. And still, we are often the laughing stock of th...
by Sojourner
Thu Oct 27, 2016 8:50 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 60
Views: 12974

Re: RLS, Depression and Anti-depressants

Some of us regard the insomnia as an integral part of the disease. A number of researchers care of the same opinion, mentioning how the hyper-alertness that we have, which enables us to keep swalking and talking almost as if we;re normal after 31 nights in a row with 2 hr sleep each. Not that that ...
by Sojourner
Tue Oct 25, 2016 5:30 am
Forum: Prescription Medications
Topic: Question about pharmas, augmentation, etc...
Replies: 15
Views: 1337

Re: Question about pharmas, augmentation, etc...

Crazy is providers who won't prescribe medications that they know or believe will provide relief but are too afraid or ?? to do so and want to shift that burden on to someone else. Maybe that's what someone just said. In that case, ditto!

Wishing all who visit here some peace this night.
by Sojourner
Tue Oct 25, 2016 5:19 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 60
Views: 12974

Re: RLS, Depression and Anti-depressants

Thanks for checking in on my question(s). Much appreciated. At this particular point, insomnia seems to be more of a difficulty for me than rls (knocking on wood). Neuro suggested I may want to try and AD to see if this would help the sleep pattern. Toying with the idea but as per usual don't want t...

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