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by Polar Bear
Sun Oct 13, 2019 10:00 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

Ican'tsleep - I hadn't been thinking of multiple visits to a Quality Care Centre, more of one visit/consultation for advice on how to move forward. However, having read your most recent post it is clear that this is not a option. Beth's post is magnificent. I agree that while your post was long it w...
by Polar Bear
Sat Oct 12, 2019 8:15 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 37
Views: 460

Re: 1st post after 24 years of RLS

Icantsleep - that is such an awful experience with your RLS doctor. He is not a kind man. My guess is that he is stuck and doesn't know what to do but his ego doesn't allow him to admit this. Your situation is so so difficult - As Holland has suggested, is it possible that you could make it to one o...
by Polar Bear
Sat Oct 12, 2019 5:44 am
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 17
Views: 224

Re: I'm finally getting an infusion

I'm sure Dr B would respond to an email regarding why he recommended this dosage. I think we all feel more satisfied when we understand the whys and wherefores. I'm sure you didn't ask at the time simply because you had so much on your mind.
by Polar Bear
Sat Oct 12, 2019 5:32 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Missouriwalker, Thank you for your comments. The RLS Foundation publishes many brochures on the treatment of RLS. There are also many links on this discussion board to these publications and research. I have printed out many of these and also Mayo Clinic information. My GP who left the practice last...
by Polar Bear
Fri Oct 11, 2019 7:00 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Debs ....as I mentioned previously my d-in-law in very familiar with lyrica and gaba says she is prescribing it/adjusting it up or down it daily. What she told me is that the med does not put on weight by itself, we gain weight by what we eat, and we have to remember this. Even though we may feel hu...
by Polar Bear
Fri Oct 11, 2019 4:51 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Qyx - I think that with the NHS problems and waiting lists, this is why the private neurologists are booked up. Patients could usually have booked a consultation for around £200 and thereafter if the Consultant also worked NHS, the patient could be added to his NHS list. By paying to for the initial...
by Polar Bear
Fri Oct 11, 2019 1:47 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

At my last GP appointment she was at the stage where she felt we needed specialist help......Dr E. (I am already at least on the referral list for 6 months). Yesterday I have contacted Dr E's Secretary and he doesn't do private work. The main private hospital has 4 neurologists who are fully booked ...
by Polar Bear
Thu Oct 10, 2019 1:16 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

debbluebird - that must have been a horrific weekend. Such awful treatment or actually no-treatment while you where there.
by Polar Bear
Wed Oct 09, 2019 10:59 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Oceanwalker..... Thank you for your acknowledgements. If We all share our experiences we can hope that we learn from each other. Time and again I am blown away by the support shown when needed.
by Polar Bear
Wed Oct 09, 2019 7:26 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Qyx - I've had a look on line and everything I find states that Codeine max daily should be 240mg.
by Polar Bear
Wed Oct 09, 2019 7:22 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Ann - Live long, and prosper :)
by Polar Bear
Wed Oct 09, 2019 6:46 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Qyx - regarding a cancer patient requiring potent opioids I think their prescribing would be done at Consultant level and probably advised/approved to the GP. I didn't know that DHC was twice the strength of Codeine. I am presently on Codeine Phosphate 15mg x 14 pills daily.= 210mg. daily. Nothing l...
by Polar Bear
Wed Oct 09, 2019 11:38 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Absolutely Qyx. Also it doesn't help.that our (separate) parliament has not sitting for nearly two years and the health service/schools etc are not properly having their grants signed off. I.e. No health minister of education minister or Roads minister or any other minister is officially working and...
by Polar Bear
Tue Oct 08, 2019 4:32 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 174
Views: 4387

Re: Attempting to get off Ropinirole - again

Qyx and Holland.... As far as was possible I think Dr understood. While with her I remained standing, doing stretches and walking around her office. I could have been seated but wanted to show how it could be. Indeed I was so frustrated that there were a few tears. She was most sympathetic, put her ...

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