Search found 6737 matches

by Polar Bear
Wed Feb 24, 2021 12:57 pm
Forum: Just Joined?
Topic: FEBRUARY 2021 - New Members
Replies: 36
Views: 581

Welcome to Tialoca1

Wednesday 24th February 2021 Today we welcome: Tialoca1 - Tialoca's WED/RLS has gotten so bad that Tialoca1 only gets two hours sleep per night and can’t function in the day time. He/She feels desperate and unable to go on like this. We all understand exactly how you feel and would love to try and h...
by Polar Bear
Fri Feb 19, 2021 9:20 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 1488

Re: Spinal stimulation?

Makes going to bed at night a pleasure rather than something to be endured. I am so happy for you.
by Polar Bear
Thu Feb 18, 2021 12:57 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 302
Views: 16090

Re: Attempting to get off Ropinirole - again

Ann, 'road blocks' .... that's a phrase I will remember to use if necessary.
by Polar Bear
Tue Feb 16, 2021 4:45 pm
Forum: Just Joined?
Topic: FEBRUARY 2021 - New Members
Replies: 36
Views: 581

Welcome to PhyllisV

Tuesday 16th February 2021 Welcome today to PhyllisV - who has had severe RLS for many year and is Searching for any treatments that may help. We are happy that you have found us. If you start with the Just Joined forum there is a lot of information. When you feel ready you can join an existing rele...
by Polar Bear
Mon Feb 15, 2021 8:23 pm
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 787
Views: 64765

Re: Riding the Big One (RLS 24/7, Hanging Ten)

EeFall - you made me laugh.... I saw... "My wife and I made a baby" ...then read the full sentence correctly. I love your green headed Yoda snowman. Interesting to read your comment on your shoe inserts as my podiatrist had made to measure supports sorted for me. They are great for taking the pressu...
by Polar Bear
Sat Feb 13, 2021 12:06 pm
Forum: Augmentation
Topic: new member - transitioning from ropinirole to gabapentin
Replies: 33
Views: 3160

Re: new member - transitioning from ropinirole to gabapentin

tagalongbuddy - I'd like clarify your medication. Are you saying that you are on 6mg Ropinerole daily and that this is what your neurologist is calling a low dose? The pharmaceutical company generally says Ropinerole is ok at up to 4mg max daily dosage but the RLS Experts from their experience of tr...
by Polar Bear
Fri Feb 12, 2021 11:25 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 1488

Re: Spinal stimulation?

What a wonderful result. Here's to many nights of restful sleep.
by Polar Bear
Thu Feb 11, 2021 8:55 pm
Forum: General Topics: RLS
Topic: Covid vac/RLS
Replies: 10
Views: 178

Re: Covid vac/RLS

I got my Astra Zeneca vaccination yesterday. A slightly tender arm today and a little headache-y. Didn't even feel the needle go in. Just the usual RLS last night, no difference.I EDIT: one week on. By the second day my upper arm was tender and the arm was stiff. It was difficult to raise my arm abo...
by Polar Bear
Thu Feb 11, 2021 8:50 pm
Forum: General Topics: RLS
Topic: Pharmacists and Opioids
Replies: 9
Views: 78

Re: Pharmacists and Opioids

Ann, what a frustrating, upsetting and infuriating situation. Sometimes pharmacists take too much on. I can't understand them questioning the decisions and prescription of your doctor. It distant happen here as far as I know. It means you have to battle with the doctor and then still not be sure of ...
by Polar Bear
Thu Feb 11, 2021 8:35 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 1488

Re: Spinal stimulation?

I hope your surgery has gone well and that the future is positive.
by Polar Bear
Fri Feb 05, 2021 8:08 pm
Forum: Just Joined?
Topic: Itching
Replies: 2
Views: 32

Re: Itching

Did you switch to the Neupro before your surgery. Just wondering at what stage the itching started with regard to elimination.
by Polar Bear
Fri Feb 05, 2021 1:33 am
Forum: Augmentation
Topic: Getting off Pramipexole
Replies: 4
Views: 296

Re: Getting off Pramipexole

Just to say congratulations on getting this far, you are doing brilliantly. Two years ago after augmenting on ropinerole I decided I had to come off it and did so by weaning very slowly over a period of ten months. I used Codeine to help this along, and I now take Codeine and Lyrica. The Lyrica is a...
by Polar Bear
Wed Feb 03, 2021 10:30 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 302
Views: 16090

Re: Attempting to get off Ropinirole - again

Ugh indeed Ann .... I am scraping by on the 12 pills. For some reason my couple of hours wakefulness during the night has now become wakefulness with rls and neuropathy. To have a full dose of codeine at 3am means I give up my mini dose at lunch time and so get earlier twitches. I do have Kratom (no...
by Polar Bear
Sat Jan 23, 2021 8:48 am
Forum: Augmentation
Topic: Augmentation
Replies: 6
Views: 455

Re: Augmentation

Going through augmentation twice you will be well aware how awful.itbis. In glad you are at present on a successful regime.
What medications are you currently taking, what was the second med that was added.
It is always good to hear of someone doing ok.
by Polar Bear
Fri Jan 22, 2021 10:05 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 302
Views: 16090

Re: Attempting to get off Ropinirole - again

Absolutely correct Yankiwi, there is no relationship or built up trust when joining a new medical practice. But in the absence of this I had hoped for some respect for the decisions of my previous doctor. Today in starting the reduced regime I had symptoms early evening but got rid of them in an hou...