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by Polar Bear
Wed Jan 16, 2019 3:15 pm
Forum: Just Joined?
Topic: New to group.
Replies: 25
Views: 282

Re: New to group.

Gayle - forgive me if I have missed it. Are you now completely off your Mirapex?
I applaud you having coped with such bad time and getting to where you are now.
by Polar Bear
Wed Jan 16, 2019 3:30 am
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 10
Views: 281

Re: Update, Funny but True

The weird thing is I go to work and work 8 hours in a row with hardly any breaks and I have no trouble doing my work. I wonder how I can even function...... EeFall - I can fully understand this state of sleep affairs. Absolutely. I can keep on keeping on.... my husband cannot understand how this is...
by Polar Bear
Sat Jan 12, 2019 9:08 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 38
Views: 1405

Re: Attempting to get off Ropinirole - again

Yes, Holland. But I didn't think it would be considered a moderate dose with regard to RLS.
Possibly it was meant as a general comment and not specifically relating to RLS.
by Polar Bear
Sat Jan 12, 2019 7:49 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 38
Views: 1405

Re: Attempting to get off Ropinirole - again

Yes, thanks for that, Ann and Beth. That's how I see it, more or less. Do the taper until I can do it no longer. That's when I will visit my gp looking to jump and seeking whatever guns he is willing to give me. That bit seems quite far ahead just yet. I was surprised at the suggestion to go cold tu...
by Polar Bear
Wed Jan 09, 2019 6:53 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 10
Views: 290

Re: Cannabis

I hope this proves positive for you.
by Polar Bear
Wed Jan 09, 2019 6:50 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 38
Views: 1405

Re: Attempting to get off Ropinirole - again

I checked with Dr B and he has confirmed that it is ok to come off ropinerole 3.5mg cold turkey, that he often does this with patients. He called it a moderate dose. But that it would need the heavy guns opioid to ease the path. I will taper.
Thanks for your support.
by Polar Bear
Tue Jan 08, 2019 6:49 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron supplementation & Constipation
Replies: 21
Views: 424

Re: Iron supplementation & Constipation

Never heard of that perineum pressing solution before - it's inspired - so obvious - like slicing bread before selling it - obvious and yet elusive until someone thinks of it. Never did I think I would be discussing this particular aspect of this particular subject.... and be happy to be discussing...
by Polar Bear
Tue Jan 08, 2019 6:45 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 28
Views: 1291

Re: Experience with Injectafer?

Holland - such a wonderful result, you deserve it.
It's heart warming for us to hear of members who have benefited from our Discussion Board.
Thank you for keeping us updated.

I echo legsbestill..... you are a great support to so many posters. :thumbup:
by Polar Bear
Tue Jan 08, 2019 6:35 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 38
Views: 1405

Re: Attempting to get off Ropinirole - again

Legs ... How difficult it must have been for you without even Codeine. I applaud you. A family member is a Prescribing Nurse and I have shown her my Meds regime, the Pregabalin, Ropinerole, Codeine. She reckons my GP will increase my Pregabalin at 25mg each time. I am now on 3.5 Rop/100 Pregab. It h...
by Polar Bear
Mon Jan 07, 2019 6:53 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 9
Views: 185

Re: What DA to take

Jul2873.... wasn't it just as well you mentioned the kratom to the clinic, see how careful they are being. We are often unaware of what interactions might be occurring even with seemingly innocent over the counter stuff or natural products.
by Polar Bear
Mon Jan 07, 2019 6:45 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 38
Views: 1405

Re: Attempting to get off Ropinirole - again

Legs ....... I have already emailed Dr B and attached a document detailing my daily medical regime. What a star he is. I wrote last night and his reply arrived this morning. Dr B says that I will need methadone or oxycodone which he feels is not readily prescribed here. His alternative suggestion us...
by Polar Bear
Mon Jan 07, 2019 12:09 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 38
Views: 1405

Re: Attempting to get off Ropinirole - again

I spoke wih my GP this morning. He is increasing the Pregabalin from 75mg x 2, to 100mg x 2 daily and I am to ring him in two weeks. If no problems he says we can go up eventually to 300mg x 2. Regarding the Ropinerole, I think he is just happy that at 3.5mg, it is below the 4mg max. (covering his b...
by Polar Bear
Sun Jan 06, 2019 12:34 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 38
Views: 1405

Re: Attempting to get off Ropinirole - again

On 23 December 2018 my 5mg daily dose of ropinerole was reduced to 4mg which is the max guideline. I also started on Gabapentin 75mg x 2 daily. There didn't seem to be much of a presence from the gaba. On 1 and 2 Jan 2019 I did an experiment and took 2 gaba at 9pm and slept much better, just up once...
by Polar Bear
Sat Jan 05, 2019 9:33 am
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 86
Views: 2377

Re: Back Surgery and RLS plus spasms

A blessed 8 hours. That's wonderful.
by Polar Bear
Sat Jan 05, 2019 9:32 am
Forum: General Topics: RLS/WED
Topic: RLS and Adrenaline - it's an ill wind ...
Replies: 4
Views: 155

Re: RLS and Adrenaline - it's an ill wind ...

Nothing to do with adrenalin but on an occasion when I was ill and was in bed with some sort of a 48 hour bug, rls wasn't even an issue. As though the bug kicked the rls into a corner.

I'm very sorry that you are going through such difficult issues at the moment. Hugs from me.

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