Search found 6654 matches

by Polar Bear
Fri Sep 25, 2020 10:09 pm
Forum: General Topics: RLS
Topic: When Do Symptoms Occur? And, For How Long?
Replies: 1
Views: 12

Re: When Do Symptoms Occur? And, For How Long?

Oozz - My RLS is severe in my legs, usually the right leg. Occasionally in the arms. I've had it for some 30+ years. I take medication spread over the 24 hour day, less in the morning and more in the evening. Also during the night. Without medication I would have constant symptoms. At least that is ...
by Polar Bear
Fri Sep 25, 2020 9:53 pm
Forum: Prescription Medications
Topic: Success!!! Iron infusions ordered!
Replies: 7
Views: 43

Re: Success!!! Iron infusions ordered!

Well done. I wish you well.
by Polar Bear
Fri Sep 25, 2020 9:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: A few questions about iron tablets
Replies: 12
Views: 110

Re: A few questions about iron tablets

If you defiinitely have IV iron infusions coming up then I don't reckon there's much point in continuing taking oral iron. Especially considering how long it takes to have an effect.
by Polar Bear
Thu Sep 24, 2020 7:01 pm
Forum: Prescription Medications
Topic: Success!!! Iron infusions ordered!
Replies: 7
Views: 43

Re: Success!!! Iron infusions ordered!

What a wonderful outcome. Can't wait to hear how you get on with them.
by Polar Bear
Thu Sep 24, 2020 6:49 pm
Forum: Just Joined?
Topic: New to this board
Replies: 8
Views: 77

Re: New to this board

At a dose of 4mg ropinerole you would need to wean off them if you ever wanted to stop.
How did you get on last night using just 2mg.

I think to drop from 4mg to 2mg is too big a step. I would go down only .5mg at a time. Splitting your pills if necessary. They are an awkward shape to split.
by Polar Bear
Thu Sep 24, 2020 6:40 pm
Forum: Just Joined?
Topic: Medication problem
Replies: 7
Views: 68

Re: Medication problem

I very slowly weaned off a high dose of ropinerole (a similar drug to mirapex) by adding Lyrics (a similar drug to gabapentin). I asked my Dr to prescribe the usual daily dose requirement but to have it made up in low dose pills. This gave me the leeway to reduce gently at each step. As the ropinero...
by Polar Bear
Tue Sep 22, 2020 12:41 pm
Forum: Just Joined?
Topic: New to this board
Replies: 8
Views: 77

Re: New to this board

As Steve has said, you are taking the maximum recommended daily dose of ropinerole at 4mg. Just to note, many of our esteemed RLS experts would now consider that 1mg daily should be the max daily dose in order to try and avoid augmentation. Coming off Requip/Ropinerole is a challenge but there is a ...
by Polar Bear
Fri Sep 18, 2020 11:44 am
Forum: Just Joined?
Topic: SEPTEMBER 2020 - New Members
Replies: 33
Views: 341

Welcome to Ria

18th September 2020 Today we welcome Ria - who is an RLS sufferer and has been for 20 years. Ria wants to learn from other sufferers what they are doing and what is helping them and share experiences. You will find a great deal of information and I suggest you start with the Just Joined Forum. When ...
by Polar Bear
Fri Sep 18, 2020 11:22 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 132
Views: 7280

Re: 1st post after 24 years of RLS

Referring to your post of 11 Sept I see that you changed the dosages of several of your medications at the one time. Speaking only from my own experience, does this not make it complicated to figure out which change is caused by which medication adjustment because we know that meds don't always perf...
by Polar Bear
Thu Sep 17, 2020 6:53 pm
Forum: Just Joined?
Topic: Hello from newbie in Rugby
Replies: 3
Views: 40

Re: Hello from newbie in Rugby

First of all you are taking Nytol. This is actually diphenhydramine which is the same as Benadryl...... An absolute no no when it comes to RLS. It is a big aggravation for RLS and is on our list of things to be avoided. Your ropinerole dose is 1mg and this is what out RLS experts would consider to b...
by Polar Bear
Tue Sep 15, 2020 8:16 am
Forum: Just Joined?
Topic: Hello from Newbie in Birmingham, AL
Replies: 8
Views: 142

Re: Hello from Newbie in Birmingham, AL

Have you tried a netti pot. I haven't myself but have several friends who swear by them. They cost very little and are available from Amazon.
by Polar Bear
Sun Sep 13, 2020 9:58 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 264
Views: 12282

Re: Attempting to get off Ropinirole - again

With regard to the hospital waiting list being 3 years to have treatment for sleep apnea despite having an up to date diagnostic sleep test my daughter in law is going to make enquiries. She works in one of the big city hospitals and is acquainted with person who runs the respiratory department (sle...
by Polar Bear
Mon Sep 07, 2020 11:42 pm
Forum: Just Joined?
Topic: SEPTEMBER 2020 - New Members
Replies: 33
Views: 341

Welcome to MessyJessy

8 September 2020 Welcome today to MessyJessy - who has had restless legs for two years. Currently having a hard time finding a Dr. who will Rx the medication combo that works. Current Dr. has her just taking iron supplements and exercise. She doesn't absorb iron via pill and usually has to get infus...
by Polar Bear
Fri Sep 04, 2020 7:22 pm
Forum: Augmentation
Topic: What To Do?
Replies: 37
Views: 6659

Re: What To Do?

You now have a plan with the support of your doctor. Do you feel the better for having a positive goal. It is likely to be difficult but just maybe not as difficult as you imagine. If you do find yourself starting to the waver please do speak further with your doctor. She sounds like she has your ba...
by Polar Bear
Thu Sep 03, 2020 1:05 pm
Forum: Augmentation
Topic: What To Do?
Replies: 37
Views: 6659

Re: What To Do?

I very successfully weaned off ropinerole, not pramipexole but it is a similar drug. I did it very slowly, over 10 months, and supplemented with Codeine and Pregabalin..