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by Polar Bear
Tue May 15, 2018 3:59 pm
Forum: General Topics: RLS/WED
Topic: What is augmentation?
Replies: 2
Views: 60

Re: What is augmentation?

Augmentation is when a DA medication such as mirapex or ropinerole ceases to be effective. The symptoms come earlier in the day and often start to affect the arms, shoulders, other parts of the body. If you go to the Augmentation Forum there is a lot of information to be found. http://bb.rls.org/vie...
by Polar Bear
Tue May 15, 2018 3:56 pm
Forum: General Topics: RLS/WED
Topic: Frantic...RLS 24/7
Replies: 4
Views: 81

Re: Frantic...RLS 24/7

I'm so sorry that you are suffering. Sometimes symptoms do indeed seem worse after surgery. Some types of medications used as part of the anaesthetic can worsen RLS symptoms. Also if there was blood loss this might cause iron levels to drop and this could worsen RLS symptoms On the other hand usuall...
by Polar Bear
Tue May 15, 2018 10:26 am
Forum: Prescription Medications
Topic: Uh-oh... methadone hassles?
Replies: 25
Views: 252

Re: Uh-oh... methadone hassles?

mudslide - I came to post with regard to how much information you present to your doctor. Steve has covered that in his post :) I don't know how long your appointment will be, here in the UK we get 10 minutes. This means that if I want to show/suggest something to my GP I highlight it, and know from...
by Polar Bear
Mon May 14, 2018 8:54 am
Forum: Prescription Medications
Topic: Uh-oh... methadone hassles?
Replies: 25
Views: 252

Re: Uh-oh... methadone hassles?

mudslide - not a good position to be in. To know what works for you and yet a doctor can't use his initiative to treat you. I don't know how the system works in the US regarding requesting certain medications from a new doctor but it does seem that a certain process is started from the very beginnin...
by Polar Bear
Fri May 11, 2018 7:16 pm
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 146
Views: 6172

Re: Dipyridamole

yawny - Benadryl is to be avoided at all costs, it's really bad for rls symptoms.
by Polar Bear
Fri May 11, 2018 7:14 pm
Forum: Prescription Medications
Topic: Airsickness meds?
Replies: 13
Views: 185

Re: Airsickness meds?

I saw crystalised ginger today in the supermarket. It was amongst the home baking produce, the flour, raisins etc.
It's too strong for me but my husband is very fond of it.
by Polar Bear
Fri May 11, 2018 1:34 pm
Forum: Augmentation
Topic: "drug holiday" from Mirapex
Replies: 14
Views: 359

Re: "drug holiday" from Mirapex

mhp - I have my ferritin checked yearly, sometimes more often. If I have reason to have bloods done I would often ask the Dr..... could we do a ferritin serum while we're at it. He is usually quite amenable. Your Dr really should be keeping tabs on your ferritin but it's the same for many of us, we ...
by Polar Bear
Thu May 10, 2018 8:47 am
Forum: Augmentation
Topic: "drug holiday" from Mirapex
Replies: 14
Views: 359

Re: "drug holiday" from Mirapex

If doctor said not to worry about your ferritin being low then he doesn't know a lot about RLS. It is important to your well being to get it higher, up towards 100. At the last test mine was 147 and I am fortunate that this is a natural level and iron supplements are not needed. I have read that the...
by Polar Bear
Wed May 09, 2018 9:36 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 21242

Re: What Severe RLS is Like

Excellent. Kindle iused with me constantly, very useful when waiting about. Mine is now synced with my phone so I use it when reading on the go.... bus/train etc

Now what to do with the paperbacks stored in boxes. I doubt that charity shops would be interest any more.
by Polar Bear
Wed May 09, 2018 8:35 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 21242

Re: What Severe RLS is Like

Eefall I was going to advise putting your phone alarm on, then I came to where you tell Alexa to turn off your alarm. Guess you need to tell Alexa to ignore you - when you tell it to turn off the alarm :wave: A few years back we went through a spell where we had friends and relatives passing within ...
by Polar Bear
Wed May 09, 2018 9:40 am
Forum: Prescription Medications
Topic: Tramadol
Replies: 7
Views: 283

Re: Tramadol

A DA is a Dopamine Agonist such as Requip/Ropinerole or Mirapex. There was a time that this was considered the first line for treating RLS and still is by many doctors. Also over the years what was thought to be a suitable max dose has been reconsidered and is now much less. i.e. Ropinerole from 4mg...
by Polar Bear
Wed May 09, 2018 8:05 am
Forum: Just Joined?
Topic: MAY 2018 - NEW MEMBERS
Replies: 27
Views: 451

Re: MAY 2018 - NEW MEMBERS

9 May 2018 Welcome today to: janislaraine - whose RLS has gone from moderate and intermittent to severe and nightly. janis is getting very little sleep quality of life has been greatly diminished. Please post and tell us about yourself and your medication treatment. Sleep deprivation is something we...
by Polar Bear
Wed May 09, 2018 7:57 am
Forum: Prescription Medications
Topic: Recent restrictions on length of opioid prescriptions
Replies: 14
Views: 214

Re: Recent restrictions on length of opioid prescriptions

Having a 'cushion' is a comfort to us, it's our safety net.
How much worse would our quality of life be if there is no safety net and no way to build one.
by Polar Bear
Tue May 08, 2018 10:46 am
Forum: Prescription Medications
Topic: Recent restrictions on length of opioid prescriptions
Replies: 14
Views: 214

Re: Recent restrictions on length of opioid prescriptions

Just from an administrative point of view, if a prescription is issued for only one week that is 4 x per month, versus once per month. 4 times the admin. 4 times the cost of doctor writing the script, 4 x pharmacist issuing the script. 4 x Fuel and time for the patient. In your case debs... a 120 mi...
by Polar Bear
Tue May 08, 2018 10:41 am
Forum: Everything Else...just no RLS/WED!
Topic: Exercise
Replies: 5
Views: 248

Re: Exercise

Not so fun times - the positive is that you've exercised 16 miles. I'd rather have peaceful legs and sleep.

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