Search found 6695 matches

by Polar Bear
Tue Dec 01, 2020 1:46 pm
Forum: Just Joined?
Topic: DECEMBER 2020 - New Members
Replies: 0
Views: 7

DECEMBER 2020 - New Members

1st December 2020 Welcome today to: SallyAnn - who has had RLS on and off for 50 years. Now it is mostly on. It adversely affects her life and well-being because she can not commit to any morning activities in case of a sleepless night. It becomes a vicious cycle of fear of sleep because of fear of ...
by Polar Bear
Mon Nov 30, 2020 5:46 pm
Forum: Prescription Medications
Topic: Weaning off Methadone
Replies: 20
Views: 792

Re: Weaning off Methadone

I always have notes with me at an appointment, with bullet points. Thing is, I have to prioritize the bullet points. And time limitation means you're trying to say what you need to on a bullet point while knowing that there's other bullet points you need to get to. i'ts nigh impossible to cover all ...
by Polar Bear
Sun Nov 29, 2020 7:51 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 287
Views: 14191

Re: Attempting to get off Ropinirole - again

Yankiwi - Absolutely. Although there is a fine line between being firm, seeking to be taken seriously - and risk being considered 'difficult'. Still, we must push. As for getting test results, I only get a telephone call if there is a problem. To find out results for our own information it takes a p...
by Polar Bear
Sat Nov 28, 2020 8:16 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 287
Views: 14191

Re: Attempting to get off Ropinirole - again

Thank you Beth. I agree wholeheartedly. We must fight our corner and look out for ourselves using all means possible.
by Polar Bear
Thu Nov 26, 2020 2:18 pm
Forum: Physical Treatments
Topic: acupressure
Replies: 5
Views: 419

Re: acupressure

Beth - thankyou for your very informative update. Feedback like this is really useful to someone who is just thinking about buying a weighted blanket.
by Polar Bear
Thu Nov 26, 2020 2:08 pm
Forum: Just Joined?
Topic: NOVEMBER 2020 - New Members
Replies: 31
Views: 654

Welcome to Virtdan

26 November 2020 Welcome today to: Virtdan - who suffers from RLS and needs to understand how to get help and what has worked for others. As you read through the posts you will see that what has worked for others does not work for everyone. Most of us have tried just about everything until we find w...
by Polar Bear
Thu Nov 26, 2020 2:01 pm
Forum: Just Joined?
Topic: NOVEMBER 2020 - New Members
Replies: 31
Views: 654

Welcome to Eking

26 November 2020 Welcome today to: Eking - who suffers from RLS and is interested in others experiences. You will read many stories here of the difficulties rls sufferes can face and how we try to cope. We always try to help other sufferers and are glad that found us, but sorry that you needed us. P...
by Polar Bear
Tue Nov 24, 2020 6:33 pm
Forum: Augmentation
Topic: trying no medication at all
Replies: 3
Views: 47

Re: trying no medication at all

If you are getting 8 hours good solid sleep that can only be good. I can't see that you'd be sleep deprived. I guess we all dealt with RLS 'old style' before we found the medication route. To go back to no RLS medications is a big step. It involves weaning off your current medications and not all at...
by Polar Bear
Sat Nov 14, 2020 3:33 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom questions
Replies: 3
Views: 431

Re: Kratom questions

I take 1 level teasp of Kratom Red Borneo as a dose. Sometimes one before bed and often one during the night as well. This helps with comfort but would need higher doses for it to help with sleep. I also make sure there are nights that I don’t take it to avoid tolerance. I add a little boiling water...
by Polar Bear
Wed Nov 11, 2020 10:08 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 287
Views: 14191

Re: Attempting to get off Ropinirole - again

Thank you Steve. In life in general I have at times missed out through doing the right thing. I agree with you and am delighted.
by Polar Bear
Wed Nov 11, 2020 2:52 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 287
Views: 14191

Re: Attempting to get off Ropinirole - again

I am very happy to say that today I received a telephone call from the Respiratory Nurse at the hospital to which I have been referred and which has the 3 year waiting list for cpap assessment. I have been on the list about 4 months and it is one month since my daughter in law intervened. The nurse ...
by Polar Bear
Tue Nov 10, 2020 2:46 pm
Forum: Just Joined?
Topic: need RLS doc
Replies: 3
Views: 190

Re: need RLS doc

I would suggest that you read up on our Augmentation Forum. See how others have coped coming off a dopamine agonist i.e. ropinerole. As you read and learn you will be in a better position to understand and to ask questions when you do see a doctor.
by Polar Bear
Sat Oct 31, 2020 4:02 am
Forum: Augmentation
Topic: Augmentation
Replies: 4
Views: 251

Re: Augmentation

Well done on cutting down your pramipexole. It was the right thing to do and you did so well. When coming off the last of your pramipexole you are likely to find your RLS symptoms go into overdrive. Sleep is likely to become difficult again because the gabapentin won't be enough to deal with this 'o...
by Polar Bear
Thu Oct 29, 2020 12:15 pm
Forum: Just Joined?
Topic: OCTOBER 2020 - New Members
Replies: 48
Views: 1187

Welcome to DicCarlson

Thursday 29 October 2020 Welcome today to: DicCarlson - who had severe RLS 2016, somewhat "cured" with iron supplements. But, severe Insomnia since then. Severe insomnia is something we are all very familiar with and RLS insomnia appears to be a type all of its own where the usual sleeping pills don...
by Polar Bear
Wed Oct 28, 2020 7:36 am
Forum: Just Joined?
Topic: OCTOBER 2020 - New Members
Replies: 48
Views: 1187

Welcome to katlin

Wednesday 28th October 2020 Welcome today to katlin - who suffers with this awful condition day and night, katlin rarely sleeps and needs magnesium baths through the night also taking medications every 4 hours. Electric pain is unbearable. We are glad that you have found us and we will do our best t...