Search found 6353 matches

by Polar Bear
Sun Aug 25, 2019 12:05 am
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 42
Views: 750

Re: Excellent article on opioids

jul2873 thank you, that's what I was thinking
by Polar Bear
Thu Aug 22, 2019 10:59 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 42
Views: 750

Re: Excellent article on opioids

I am at the stage of considering kratom to see if it will help me with sleep. I have previously fought against even considering it. I've never ever taken anything like this despite being 'a child of the 60s'. Another reason is that it is illegal here in UK. Will a company send it to me here in the U...
by Polar Bear
Tue Aug 20, 2019 8:05 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Infusion #3
Replies: 5
Views: 89

Re: Infusion #3

At $167 per month for Injectafer...... Approx $5.50 per day. The cost of a cup of really nice coffee.... Well maybe two cups :) LMW Iron Dextran - The insurance will cover this? Could go for the LMW knowing there is an alternative in the future of LMW isn't up to scratch. Trying the one first that i...
by Polar Bear
Tue Aug 20, 2019 6:56 pm
Forum: Just Joined?
Topic: Tightening in calf
Replies: 5
Views: 74

Re: Tightening in calf

I don't get any tightening feeling in the calf. Yes, to the occasional cramp which is quite separate. Does the feeling in your calf ease/go away if you take a walk. Even if only temporarily. Most of the time I only have one leg affected, my right leg. Occasionally it might be both legs. My arms/shou...
by Polar Bear
Sun Aug 18, 2019 11:22 am
Forum: Just Joined?
Topic: AUGUST 2019 - New Members
Replies: 37
Views: 370

Welcome to adi2019

Sunday 18th August 2019 Welcome today to: adi2019 - who I have a very unusual situation. RLS was diagnosed only one year ago and that makes it tough because adi2019 has also Amyloidosis (a strange protein attacking his/her organs). No sleep, and RLS pills stopped helping. Please do post in the Just ...
by Polar Bear
Sun Aug 18, 2019 10:54 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 123
Views: 3544

Re: Attempting to get off Ropinirole - again

Ooops, didn't do a thorough proof read. END should read NHS.... National Health Service here in UK.
by Polar Bear
Sat Aug 17, 2019 5:00 pm
Forum: Just Joined?
Topic: AUGUST 2019 - New Members
Replies: 37
Views: 370

Welcome RLS4thewin

Saturday 17th August 2018 Welcome today to: RLS4thewin - who I thinks he/she is one of the lucky ones because RLS is only horrible from about 7:00pm on. But, after 7:00 is unable to do anything but pace the house and hope for some sleep. Just started meds and hoping for help Please post in the Just ...
by Polar Bear
Fri Aug 16, 2019 12:28 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 123
Views: 3544

Re: Attempting to get off Ropinirole - again

I could see a private consultant and have done so before but not asking for a particular prescription. Guess you wouldn't know what consultant would be willing to prescribe until having an appointment. At present GP has referred me to an END consultant but there is a waiting time. It is something I ...
by Polar Bear
Fri Aug 16, 2019 10:07 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 123
Views: 3544

Re: Attempting to get off Ropinirole - again

QyX- here in UK at the best of times we don't have easy options to change our drs. And even to do so they will only accept a new patient who lives within a 6 miles radius. At present, Because of lack of funding most practices in my area aren't even accepting new patients. I have no doubt that sugges...
by Polar Bear
Thu Aug 15, 2019 8:29 pm
Forum: General Topics: RLS/WED
Topic: Insomnia
Replies: 6
Views: 93

Re: Insomnia

Trust me, you are not the only one up and about during the night. At 4.30am I was also awake and had been for several hours though not on the discussion board.
Of course as I am in the UK, my 4.30 is not your 4.30.
Most nights I see the sun come up and hear the dawn chorus.
by Polar Bear
Thu Aug 15, 2019 8:20 pm
Forum: Prescription Medications
Topic: Started gabapenten - no relief
Replies: 25
Views: 400

Re: Started gabapenten - no relief

Two or three years ago I became aware of the startle response, it was really quite alarming. At that time I was taking Tramadol and my daughter in law who is a prescribing nurse in pallative care and very familiar with Tramadol immediately had alarm bells. I came off the Tramadol and they lessened. ...
by Polar Bear
Thu Aug 15, 2019 8:12 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 123
Views: 3544

Re: Attempting to get off Ropinirole - again

*Legs*.... You say that in a matter of months my symptoms will be nothing like they have been. (Can't do the quotes because I'm on Kindle and it is limited). I do hope you are right because my symptoms were 24/7 all those years ago and well before I started any medication. But at least I will be off...
by Polar Bear
Thu Aug 15, 2019 7:50 pm
Forum: Prescription Medications
Topic: Lyrica
Replies: 8
Views: 217

Re: Lyrica

I started lyrica at 100mg twice daily, then 150 twice daily. I now take 200mg twice daily, along with other meds, i.e. a med cocktail. I don't know if it would work taking lyrica as a one off, it's not meant to be taken like this. Also, bear in mind that taking any meds for RLS don't work nearly as ...
by Polar Bear
Wed Aug 14, 2019 10:44 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 123
Views: 3544

Re: Attempting to get off Ropinirole - again

Oh Beth, the very idea of cold turkey ran a shiver down my spine. I think I've seen Dr B suggest cold turkey at this dosage but I honestly don't have the strength to do that. When I think how long it took me to build up the courage to start the taper....... Anyways, today I start to drop the 1pm dos...
by Polar Bear
Wed Aug 14, 2019 9:55 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: CBD oil
Replies: 5
Views: 93

Re: CBD oil

I tried CBD Oil for several months without success for symptoms or sleep. Second bottle is sitting at the back of a cupboard.

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