Search found 6166 matches

by Polar Bear
Wed Jan 23, 2019 4:34 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 42
Views: 1457

Re: Attempting to get off Ropinirole - again

Qyx - absolutely, at least one year to see a Neurologist. There are other lists that are much longer. This is an extract of a Report dated August 2018 which shows just what crisis we are facing (generally). The latest performance data shows more than 5,771 (31.9%) trauma & orthopaedics patients ...
by Polar Bear
Wed Jan 23, 2019 3:38 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 42
Views: 1457

Re: Attempting to get off Ropinirole - again

Qyx.......I live in Northern Ireland and we do not have an RLS Specialist. My daughter in law is a prescribing nurse practitioner in our main and world wide respected hospital. She is very familiar with my situation and my medical regime, and my wish to come off the ropinerole. She has spoken in thi...
by Polar Bear
Tue Jan 22, 2019 7:19 am
Forum: Everything Else...just no RLS/WED!
Topic: where is everyone?
Replies: 18
Views: 553

Re: where is everyone?

They have indeed calmed down. At present we are having a short break, going home today. It’s nearly 6am and I’ve been awake all night. I’ve managed to get ready for the day in the dark using the torch on my phone. Had to do something as I was going stir crazy. C
by Polar Bear
Fri Jan 18, 2019 7:57 pm
Forum: General Topics: RLS/WED
Topic: Esophageal Spasm and RLS
Replies: 9
Views: 67

Re: Esophageal Spasm and RLS

With regard to chest pain I was in A & E twice in the space of two years with suspected heart attack. The chest pain was very severe and lasted approximately 15 minutes and indeed went up into my throat. There was no pain of any sort during the time between these two incidents. Had the camera do...
by Polar Bear
Fri Jan 18, 2019 6:01 pm
Forum: Just Joined?
Topic: New to group.
Replies: 31
Views: 413

Re: New to group.

I'm sorry the Wellbruitin is not right for you. A psychiatrist who also specialises in movement disorders sounds qyite a find. I take citalopram 10mg and have done for many years, it seems to work ok (for me). I started Lyrica several weeks ago, starting at 75mg x 2 daily and am now up to 150 x 2 da...
by Polar Bear
Thu Jan 17, 2019 4:44 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 89
Views: 2446

Re: Back Surgery and RLS plus spasms

So you are averaging one spasm-free-night per week.
Good luck with your rls as you reduce :thumbup:
by Polar Bear
Wed Jan 16, 2019 3:15 pm
Forum: Just Joined?
Topic: New to group.
Replies: 31
Views: 413

Re: New to group.

Gayle - forgive me if I have missed it. Are you now completely off your Mirapex?
I applaud you having coped with such bad time and getting to where you are now.
by Polar Bear
Wed Jan 16, 2019 3:30 am
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 10
Views: 357

Re: Update, Funny but True

The weird thing is I go to work and work 8 hours in a row with hardly any breaks and I have no trouble doing my work. I wonder how I can even function...... EeFall - I can fully understand this state of sleep affairs. Absolutely. I can keep on keeping on.... my husband cannot understand how this is...
by Polar Bear
Sat Jan 12, 2019 9:08 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 42
Views: 1457

Re: Attempting to get off Ropinirole - again

Yes, Holland. But I didn't think it would be considered a moderate dose with regard to RLS.
Possibly it was meant as a general comment and not specifically relating to RLS.
by Polar Bear
Sat Jan 12, 2019 7:49 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 42
Views: 1457

Re: Attempting to get off Ropinirole - again

Yes, thanks for that, Ann and Beth. That's how I see it, more or less. Do the taper until I can do it no longer. That's when I will visit my gp looking to jump and seeking whatever guns he is willing to give me. That bit seems quite far ahead just yet. I was surprised at the suggestion to go cold tu...
by Polar Bear
Wed Jan 09, 2019 6:53 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 15
Views: 330

Re: Cannabis

I hope this proves positive for you.
by Polar Bear
Wed Jan 09, 2019 6:50 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 42
Views: 1457

Re: Attempting to get off Ropinirole - again

I checked with Dr B and he has confirmed that it is ok to come off ropinerole 3.5mg cold turkey, that he often does this with patients. He called it a moderate dose. But that it would need the heavy guns opioid to ease the path. I will taper.
Thanks for your support.
by Polar Bear
Tue Jan 08, 2019 6:49 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron supplementation & Constipation
Replies: 21
Views: 465

Re: Iron supplementation & Constipation

Never heard of that perineum pressing solution before - it's inspired - so obvious - like slicing bread before selling it - obvious and yet elusive until someone thinks of it. Never did I think I would be discussing this particular aspect of this particular subject.... and be happy to be discussing...
by Polar Bear
Tue Jan 08, 2019 6:45 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 34
Views: 1452

Re: Experience with Injectafer?

Holland - such a wonderful result, you deserve it.
It's heart warming for us to hear of members who have benefited from our Discussion Board.
Thank you for keeping us updated.

I echo legsbestill..... you are a great support to so many posters. :thumbup:
by Polar Bear
Tue Jan 08, 2019 6:35 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 42
Views: 1457

Re: Attempting to get off Ropinirole - again

Legs ... How difficult it must have been for you without even Codeine. I applaud you. A family member is a Prescribing Nurse and I have shown her my Meds regime, the Pregabalin, Ropinerole, Codeine. She reckons my GP will increase my Pregabalin at 25mg each time. I am now on 3.5 Rop/100 Pregab. It h...

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