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by Polar Bear
Sat Aug 19, 2017 6:00 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 176
Views: 8416

Re: What Severe RLS is Like

:thumbup: EeFall - you tried, and you have learned
by Polar Bear
Sat Aug 19, 2017 1:16 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 176
Views: 8416

Re: What Severe RLS is Like

Suboxone has quite a long half life (24 - 72 hours) and at first I was thinking it's possible that although you had cut down your dosage there was still some 'half-life' floating around your system. But really that might only account for the first 3 or 4 days and following that you were still feelin...
by Polar Bear
Fri Aug 18, 2017 7:01 pm
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 46
Views: 1322

Re: tapering off ropinirole

The movement disorder specialist suggested upping your ropinerole to 1.5 mg.!! Oh dear, another specialist who needs educated.
How good to know that you were well informed on the usage of ropinerole.
by Polar Bear
Thu Aug 17, 2017 9:31 pm
Forum: Just Joined?
Topic: August 2017 - New Members
Replies: 27
Views: 221

Welcome to ranwil

Thursday 17th August Welcome to: ranwil - whose RLS is ruining life. Augmentation following high dose Requip for 10 years. Only thing that works is a benzo/opiate cocktail and ranwil is having an extremely difficult time getting even low dose , effective medication. Please read the Just Joined Forum...
by Polar Bear
Wed Aug 16, 2017 1:00 pm
Forum: Augmentation
Topic: What To Do?
Replies: 29
Views: 1040

Re: What To Do?

Thanks for your very informative post. Details of how you progressed is of benefit to all of us.
by Polar Bear
Tue Aug 15, 2017 12:53 pm
Forum: Everything Else...just no RLS/WED!
Topic: Unhappy
Replies: 4
Views: 46

Re: Unhappy

I fully understand the empty nest syndrome, all of our adult children now have their own lives and half of them are spread across the globe. When I am with those grandchildren who live nearby it gently increases the absence of those who are across the seas. A saying I always remember is --- We will ...
by Polar Bear
Tue Aug 15, 2017 12:30 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kava?
Replies: 6
Views: 74

Re: Kava?

I have never used this and It is illegal here in the UK.
I'd imagine it produces calmness but would do research on how it may affect the organs or indeed interact with prescribed medication.
by Polar Bear
Fri Aug 11, 2017 7:23 pm
Forum: Just Joined?
Topic: August 2017 - New Members
Replies: 27
Views: 221

Welcome to romani008

Friday 11th August Welcome to: romani008 - who has lost jobs because RLS has prevented sleep. We all understand how this can happen, take a look around the discussion board especially the Just Joined / A Good Place to Start - Managing RLS. When you are ready we'd like to hear how you have been manag...
by Polar Bear
Fri Aug 11, 2017 7:18 pm
Forum: Everything Else...just no RLS/WED!
Topic: You what?
Replies: 2
Views: 1046

Re: You what?

How did I miss this ? :lol:
by Polar Bear
Fri Aug 11, 2017 12:56 pm
Forum: Just Joined?
Topic: August 2017 - New Members
Replies: 27
Views: 221

Welcome to tshardin

Friday 11th August

Welcome today to:

tshardin - whose mother has RLS and tshardin looking for help.

When you are ready please post and tell us how your mother has been coping, what medication (if any) she is taking. We are here to try to help.
by Polar Bear
Fri Aug 11, 2017 12:52 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 176
Views: 8416

Re: What Severe RLS is Like

I am so happy for you.
I'd agree with Deb and not move down too quickly.
Well done.
by Polar Bear
Fri Aug 11, 2017 8:10 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 68
Views: 4556

Re: Infusion Update

fuz_mind - in general an RLS sufferer should aim to have their ferritin level up around 100 which is higher than the accepted 20 as being normal. However, for some people a level of 100 is not sufficient and they find their symptoms can be easier controlled and augmentation better avoided if their f...
by Polar Bear
Thu Aug 10, 2017 6:53 pm
Forum: Just Joined?
Topic: August 2017 - New Members
Replies: 27
Views: 221

Welcome - Steven1953

Welcome today 10th August to: Steven 1953 - who has been living with RLS since 1984. He believes that it is important to stay connected with RLS Foundation for both the education and support elements. That is a long time to be coping with RLS symptoms. You will find a lot of information in the Just ...
by Polar Bear
Thu Aug 10, 2017 8:32 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 176
Views: 8416

Re: What Severe RLS is Like

EeFall - you are doing so well :thumbup:
by Polar Bear
Wed Aug 09, 2017 5:28 pm
Forum: Physical Treatments
Topic: Power Plate
Replies: 17
Views: 232

Re: Power Plate

Me too !! I can't stand the videos, I don't have time for videos. And then there's the video that won't load !!

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