Search found 7604 matches

by Polar Bear
Tue Nov 05, 2024 4:38 pm
Forum: Prescription Medications
Topic: How many mg of Pregabalin will actually work?
Replies: 10
Views: 404

Re: How many mg of Pregabalin will actually work?

It is thought that ropinerole stimulates the dopamine system. It's hard to get off ropinerole because of the severe withdrawal symptoms. Many have come off it in only 1 or 2 weeks.This is a time when RLS symptoms will be off the scale like you've never known before. No sleep at all for about 4 days....
by Polar Bear
Sun Nov 03, 2024 7:50 pm
Forum: Just Joined?
Topic: NOVEMBER 2024 - New Members
Replies: 6
Views: 233

Welcome to Crem

Sunday 3 November 2024

Welcome to
Crem who has RlS issues and is trying to figure out meds differences.

If you have any questions please make a post and ask. If you provide some background information regarding your rls treatment we will do our best to help you.
by Polar Bear
Sun Nov 03, 2024 2:22 pm
Forum: Just Joined?
Topic: NOVEMBER 2024 - New Members
Replies: 6
Views: 233

Welcome to RestlessinMonclova

Sunday 3 November 2024 Welcome today to RestlessinMonclova who has struggled with restless legs since teenage years (didn't understand symptoms at that time). Six years ago, began treating RLS with Requip. Through augmentation, RinM is now at three tablets per day and begun to experience "breakthrou...
by Polar Bear
Sat Nov 02, 2024 1:36 pm
Forum: Prescription Medications
Topic: How many mg of Pregabalin will actually work?
Replies: 10
Views: 404

Re: How many mg of Pregabalin will actually work?

It is now considered best to avoid any of the dopamine agonists if possible as they inevitably lead to augmentation. Augmentation is something you never want to have to deal with. Sometimes a low dose of a DA will help with symptoms, often in conjunction with another medication, but dosage must be c...
by Polar Bear
Fri Nov 01, 2024 6:19 pm
Forum: Prescription Medications
Topic: How many mg of Pregabalin will actually work?
Replies: 10
Views: 404

Re: How many mg of Pregabalin will actually work?

I note the max pregabalin mentioned at 300mg daily.
It would appear to be different here in the UK.
I was taking pregabalin prescribed at 200mg twice daily.
I then attended my Mobility Disorder Doctor who upped the dose to 300mg twice daily.
by Polar Bear
Thu Oct 31, 2024 10:17 am
Forum: Just Joined?
Topic: OCTOBER 2024 NEW MEMBERS
Replies: 25
Views: 1836

Welcome to Yogesh

Thursday 31 October 2024 Welcome to Yogesh who has suffered from RLS since 5 years. Male 65 years. You will find much useful information here, probably starting with the Just Joined Forum. If you have any questions please do make a post, providing details of how your RLS symptoms are being managed a...
by Polar Bear
Wed Oct 30, 2024 7:07 pm
Forum: Prescription Medications
Topic: How many mg of Pregabalin will actually work?
Replies: 10
Views: 404

Re: How many mg of Pregabalin will actually work?

I have had RLS for 40 years, for most of those years it has been 24/7. It took many years to finally arrive at a successful (more or less) treatment regime which I've now been on for about 8 years. I first had the task of weaning off 5mg Ropinerole which was an appallingly high dose and my doctor su...
by Polar Bear
Wed Oct 30, 2024 12:08 am
Forum: Just Joined?
Topic: OCTOBER 2024 NEW MEMBERS
Replies: 25
Views: 1836

Welcome to RLSwhiteknuckler

29 October 2024 Welcome today to RLSwhiteknuckler who has been suffering from severe RLS since 2006. Has augmented on ropinirole in the past. It is still the only thing that has worked. Now that side effects have set in RLSwhiteknuckler is at the same time watching aging. As I understand it, ropiner...
by Polar Bear
Tue Oct 29, 2024 10:04 am
Forum: Just Joined?
Topic: RLS quantification
Replies: 9
Views: 567

Re: RLS quantification

Carbodopa/levadopa should not be taken on a regular basis. It will very quickly cause augmentation. See the document link in my signature for discussion with your doctor regarding treatment.
by Polar Bear
Tue Oct 29, 2024 12:14 am
Forum: Prescription Medications
Topic: Statins
Replies: 5
Views: 943

Re: Statins

According to the UK NHS these are the common side effects from Statins. Headache Feeling sick Digestive issues, such as constipation, diarrhea, indigestion, or flatulence Muscle and joint pain Increased blood sugar levels Increased risk of diabetes Muscle tenderness or weakness The one I hear most f...
by Polar Bear
Mon Oct 28, 2024 8:05 pm
Forum: Just Joined?
Topic: OCTOBER 2024 NEW MEMBERS
Replies: 25
Views: 1836

Welcome to Mabe

28 October 2024 Welcome today to Mabe who has suffered from restless legs syndrome since a child. A few years ago Mabe was put on pramipexole and although it worked at first, the symptoms have now increased to the point of becoming unbearable. Mabe thinks the worst thing was to start taking medicati...
by Polar Bear
Mon Oct 28, 2024 4:38 pm
Forum: Just Joined?
Topic: RLS quantification
Replies: 9
Views: 567

Re: RLS quantification

Have you weaned off the mirapex with the support of your doctor. What is your current medication to treat your rls symptoms. Have you had your Ferritin Serum checked and if so do you know what your Level is. Don't accept being told 'normal' as this can be anything from 20+. Us rls sufferers benefit ...
by Polar Bear
Mon Oct 28, 2024 10:02 am
Forum: Just Joined?
Topic: RLS quantification
Replies: 9
Views: 567

Re: RLS quantification

My symptoms are nowadays reasonably well controlled. Many years ago, over a period of about 3 years, I kept a daily diary which scaled out of 10 for symptoms/pain. I often used the word pain to my doctor. What you describe as your Level 1, I would never feel. Mine would start at your Level 2. Howeve...
by Polar Bear
Fri Oct 18, 2024 5:37 pm
Forum: Just Joined?
Topic: OCTOBER 2024 NEW MEMBERS
Replies: 25
Views: 1836

Welcome to bolingro

Friday 18 October 2024 Welcome today to bolingro who has been living with RLS, Physical neuropathy, and Type 1 diabetes for over 2 years now and needs to talk to other people who have this problem. bolingro has taken Pregablin, and is now on gabapentin but doesn't enjoy life this way. Gabapentin oft...
by Polar Bear
Thu Oct 17, 2024 9:44 am
Forum: Just Joined?
Topic: OCTOBER 2024 NEW MEMBERS
Replies: 25
Views: 1836

Welcome to magamuffin

Thursday 17 October 2024 Welcome today to megamuffin who gets little to no sleep three or four nights a week. Is miserable and dreads going to bed, can't get sleepy enough to sleep more than one-two hours. megamuffin is lucky to have a very patient understanding spouse. Getting our RLS symptoms unde...