Search found 6757 matches

by Polar Bear
Mon Apr 12, 2021 2:20 pm
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 34
Views: 1345

Re: going "cold turkey"

retiredfg5 - Thankyou for updating us on your progress. How wonderful, you've done it. I'm so glad that we were able to help and support you, Sleep is wonderful.
How lovely to hear you now have a cat, (I love cats).
Enjoy your beautiful cat and your plants.
Please do stay in touch.
by Polar Bear
Sun Apr 11, 2021 5:59 pm
Forum: General Topics: RLS
Topic: Must I have a sleep study done?
Replies: 9
Views: 245

Re: Must I have a sleep study done?

I'm sorry that your appointment with Dr Rye and your attempted follow up communication was so disappointing. I do understand why you have for the moment cancelled your zoom appointment with Dr Walters. It can often be difficult to talk adequately about how awful your rls symptoms are when you are ac...
by Polar Bear
Fri Apr 09, 2021 4:31 pm
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 39
Views: 2312

Re: Spinal Stimulator

Debbluebird - Thank you for this, it is always good to hear of some positives.
by Polar Bear
Sun Apr 04, 2021 4:57 am
Forum: General Topics: RLS
Topic: How many hours do you sleep?
Replies: 16
Views: 180

Re: How many hours do you sleep?

I was getting 2 - 4 hours of fragmented sleep and eventually after many years had a sleep test. This showed moderate sleep apnea and I was provided with a cpap machine. The result from the first night was wonderful. I now on average manage between 6 to 8 hours in 2 (occasionally 3) shifts and what I...
by Polar Bear
Thu Apr 01, 2021 1:43 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Stressless Chairs
Replies: 12
Views: 449

Re: Stressless Chairs

Yankiwi, I also keep a journal similar to yours but handwritten in a book. I include any deviations to 'usual' medication such as Kratom or an extra pill. debbluebird, I also very often have my legs up, left leg underneath me and right leg stretched out in front. This is nothing to do with rls, it's...
by Polar Bear
Wed Mar 31, 2021 4:15 pm
Forum: Prescription Medications
Topic: Experience of having IV iron
Replies: 9
Views: 1114

Re: Experience of having IV iron

I have not used IV iron but several of our members have done so with success for their rls symptoms. There is a criteria to qualify for IV iron involving blood/ferritin levels. My understanding is that you need to be referred by your GP to a haematologist. It does not work for everyone but several o...
by Polar Bear
Wed Mar 31, 2021 4:03 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Stressless Chairs
Replies: 12
Views: 449

Re: Stressless Chairs

Yankiwi - I am in the same position in that even if my legs don't hurt when I wake up I need to get up, usually for a couple of hours. This is not occasional, it is every night. As you say very frustrating and I do try to accept that this is just how it is. Fortunately being retired I can sleep for ...
by Polar Bear
Sat Mar 27, 2021 12:51 am
Forum: Physical Treatments
Topic: Chiropractor
Replies: 3
Views: 66

Re: Chiropractor

I also have never been to a chiropractor. It's not something I think of as being a treatment for rls although a quick search does show that many chiropractor's say that they can help treat the condition ..... this is general theme and an extract from on article I read... "" a commonly overlooked cau...
by Polar Bear
Fri Mar 26, 2021 7:06 pm
Forum: Augmentation
Topic: What To Do?
Replies: 53
Views: 8748

Re: What To Do?

What a wonderful post. You have done so well. Good luck as you continue to reduce and I hope it goes very well.
by Polar Bear
Fri Mar 26, 2021 7:02 pm
Forum: Prescription Medications
Topic: Horizant
Replies: 5
Views: 196

Re: Horizant

I took ropinerole for about 15 years very quickly reaching 4mg daily which at That time was considered acceptable. Eventually I was on 5mg daily and obviously to me was augmenting. I was fearful of the effects of coming off the ropinerole and was taking codeine to try offset the augmentation. Member...
by Polar Bear
Fri Mar 26, 2021 1:12 am
Forum: Prescription Medications
Topic: Horizant
Replies: 5
Views: 196

Re: Horizant

Your dose of ropinerole is pretty high at 2mg. Most rls experts through their experience would now say that the max daily dosage of ropinerole should be 1mg. I do understand that it is so tempting when the 2mg dose lets you sleep through the night but really it would be best to be reducing it. Views...
by Polar Bear
Wed Mar 24, 2021 12:01 pm
Forum: Augmentation
Topic: new member - transitioning from ropinirole to gabapentin
Replies: 48
Views: 4732

Re: new member - transitioning from ropinirole to gabapentin

Please do be careful of your ropinerole dose. The max is considered to be 1 mg daily. You recently went from 1mg to 1.25mg and are now at 1.5mg you are at 50% over max - and still suffering RLS symptoms. I think you need to reconsider whether you should be taking ropinerole. Bearing in mind that you...
by Polar Bear
Sat Mar 20, 2021 12:16 am
Forum: Just Joined?
Topic: MARCH 2021 - New Members
Replies: 41
Views: 957

Welcome to Bbiluvflorida

Friday 20 March 2021 Welcome today to: Bbiluvflorida - who has been suffering with rls for 30+ years. The only med that helps is pramipexole but side effects are ruining Bbiluvflorida's life as well as having to continue with higher doses. We are so glad that you have found us and we hope to be able...
by Polar Bear
Fri Mar 19, 2021 12:19 am
Forum: Just Joined?
Topic: RLS and the COVID Vaccine
Replies: 7
Views: 255

Re: RLS and the COVID Vaccine

I had my vaccine about one month ago and it didn't affect my RLS symptoms in any way.