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by Polar Bear
Fri Jun 22, 2018 10:25 pm
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 37
Views: 568

Welcome to MarkOttenberg

22 June 2018 Welcome today to MarkOttenberg - whose RLS is worsening and current sleep doctor is clueless how to deal with the condition. For health reasons It seems impossible to ingest sufficient iron and a series of 4 iron infusions, while momentarilly effective, did not hold and kicked the red b...
by Polar Bear
Thu Jun 21, 2018 10:40 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: CBD oil
Replies: 12
Views: 519

Re: CBD oil

I haven't yet listed to the webinair but I have heard before that a little THC is helpful. The CBD Oil in our local health food store comes in 2.75% and 5% strengths. The 5% meets specification requirements of less than 0.05% THC. The instructions say to " "put a few drops under the tongue...
by Polar Bear
Thu Jun 21, 2018 8:17 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: CBD oil
Replies: 12
Views: 519

Re: CBD oil

*legsbestill* and *veldon75* We spoke earlier in this thread about the CBD Oil and how it is available in Holland & Barratt. It is indeed quite expensive. Anyways, I think I will buy some this weekend and have a go, see if it is helpful with sleep and/or symptoms. I see that yourself and veldon7...
by Polar Bear
Tue Jun 19, 2018 7:21 pm
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 37
Views: 568

Welcome to MBB1921

Tuesday 19th June 2018 Welcome to: MBB1921 - who has signed up for my 97-year-old mother as mother's RLS is now extremely debilitating. Mother used to be able to overcome her RLS by walking or lying down, plus traditional meds for RLS. Now she is having it for hours with no relief and it is keeping ...
by Polar Bear
Tue Jun 19, 2018 9:19 am
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 37
Views: 568

Welcome to SY6XX

Tuesday 19 Jue 2018 Welcome to SY6XX - who finds It was impossible to relax. The pills take way to long to work if they worked. It was absolutely miserable. We are glad that you have found us. Please tell us a little about yourself using the Just Joined Forum. We want to help. Something to bear in m...
by Polar Bear
Mon Jun 18, 2018 1:42 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 707
Views: 42495

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Eefall - thank you for telling us how you are, we care how you are. As I write this in is 14.30 my time. I am standing doing a jig from one foot to the other... unable to get on with some paperwork because sitting down is impossible. Perhaps I will do some ironing until these symptoms hopefully sett...
by Polar Bear
Sat Jun 16, 2018 12:27 pm
Forum: Prescription Medications
Topic: Desperate
Replies: 27
Views: 459

Re: Desperate

KDJM wrote: I still have RLS earlier in the day, particularly if I try to sit and watch TV. But, the medications seem to be working very, very well in the evening. I can't believe it.


I feel a joy in my heart when I read this.
by Polar Bear
Fri Jun 15, 2018 6:13 pm
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 37
Views: 568

Welcome Jacquie

15 June 2018 Welcome today to Jacquie - whose symptoms are becoming worse and has to take more meds. Jacquie wakes in the middle of the night every night to medicate. When waking in the morning has symptoms until out of bed. You are among friends here who totally understand your difficulties. I also...
by Polar Bear
Thu Jun 14, 2018 9:37 pm
Forum: Just Joined?
Topic: Stem Cell Transplant
Replies: 4
Views: 96

Re: Stem Cell Transplant

I am not familiar with the use of methadone but others will be along who should be able to advise further.
Your dad is in good hands with Dr Rye.
by Polar Bear
Thu Jun 14, 2018 4:55 pm
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 37
Views: 568

Welcome to MezaJarJarBinks

14 June 2018 Welcome today to: MezaJarJarBinks - RLS has led to the need for MezaJarJarBinks and his wife to sleep in different bedrooms. We are glad that you have found us. is it yourself, or your wife, or perhaps both of you who are suffering from RLS. Please post and tell us of your situation and...
by Polar Bear
Thu Jun 14, 2018 4:30 pm
Forum: Just Joined?
Topic: Stem Cell Transplant
Replies: 4
Views: 96

Re: Stem Cell Transplant

kelleydaniel - welcome. We are glad that you found us but sorry that you and your father are in such need. With regard to the RLS has your father had a Ferritin test done, this is pretty important. It is a blood test that is not normally done with routine blood works and you need to ask for it. This...
by Polar Bear
Sun Jun 10, 2018 8:57 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 23
Views: 728

Re: What Calms You in the Night?

Mental agony from physical symptoms - says it all !!
by Polar Bear
Sat Jun 09, 2018 9:30 pm
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 37
Views: 568

Welcome

9th June 2018 Welcome today to: bexter - RLS has increased stress level tremendously and obviously, the older bexter get sthe more frequent episodes become. It makes for a lousy evening and even worse bedtime. omarv13 - who has undiagnosed RLS and omarv13's 18 year old daughter has an official RLS d...
by Polar Bear
Sat Jun 09, 2018 7:57 pm
Forum: Augmentation
Topic: Augmentation- Cold Turkey
Replies: 16
Views: 531

Re: Augmentation- Cold Turkey

Do you think your doctor would be open to reading information provided by an RLS Expert? There are some links in the Just Joined Forum - RLS A Good Place to Start. Also in the Augmentation section. Printing off a few relevant papers could be useful. Also, this is a great book, it is easy to read and...
by Polar Bear
Sat Jun 09, 2018 7:44 pm
Forum: Just Joined?
Topic: Hello from Kentucky
Replies: 8
Views: 171

Re: Hello from Kentucky

SleepyJudy - take note that when you are given your Ferritin result, please ask for the numbers. This is because it is generally accepted that a level of around 20 is OK. However, for those of us with RLS (Especially if using a DA such as Ropinerole) we want and neee the level to be up around 100.

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