Restless Legs Syndrome (RLS) Discussion Board

How I would love to 'get knocked out at night'.
I do hope you make some progress with this, your spasms sound so awful.

deb - benadryl is not a friend to RLS and is best avoided.
Also, Amitriptyline, which is used for so many issues nowadays, can be a trigger for RLS.

I also just have RLS but unfortunately had no success with melatonin.

When my GP was trying to help me find sleep he wanted me to try the Melatonin as a course of 13 weeks. He said it was best for older people, I was in my early 60s at the time. I found it of absolutely no benefit whatsoever but felt it necessary to complete the 13 weeks course in order to progress fu...

There is also the study of Richard P. Allen Ph.D which shows that those of us with RLS seem to have abnormally higher Glutamate than non RLS folks. The higher the glutamate the worse the sleep. https://www.hopkinsmedicine.org/news/media/releases/restless_legs_syndrome_insomnia_and_brain_chemistry_a_...

Yankiwi --

Here in UK we get offered the Shingles (Zostavax) vaccine over the age of 70 with one shot in the upper arm via our NHS. Shingrix is not mentioned.

It is sold here as a Food Supplement. With regard to general health issues (not including RLS) I read of good results and I read of no difference. But hey, I'll have a go. This from the lady who put a bar of soap in her bed

I have a magnesium spray which I've used according to instructions, 11 sprays is a dose. but I've not felt any benefit. Another item to fill up the cabinet. Yes, I have also on occasion used a topical rub which helps (Volterol or Feldene) when my legs ache though not sure if the ache is from RLS or ...

Views...... Definitely the bleeding needs checked as soon as possible. I also get random spasms, such agony and they come from out of nowhere. My first words are 'don't touch me, don't help me'..... and when the spasm eventually eases it takes a few days for it to fully disappear. My fibromyalgia wa...

I also feel that Doctors often use the label/diagnosis of Fibro as a kind of coverall when they don't really know what it is.
I have a diagnosis of Fibro this last 10 years of so but I'm not convinced. I do have osteoporosis/arthritis without doubt but the Fibro I'm not so sure.

I am also a member having discovered the Foundation site in the middle of one night when I was desperate. That was 12 years ago. They provide this Discussion Board. There is also the main Foundation Web Site where there lots of documents of relevance. We need to help keep them so that they can help ...

Sleepless, you are sounding quite desperate and I hope you managed to find some sleep. I have just about given up, really just accept that I will be up and about, not always with symptoms, indeed more likely to be plain old insomnia. As you say..... Can't the medical field find an answer to this pro...

Wasn't it just as well that you did some research. When I hear of something like this it always concerns me that there are folks who would not be so capable of sorting out such a situation. Who would be paying more unnecessarily. Or even worse, wouldn't have their prescriptions dispensed because of ...

Very good news so far Ann.