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by Polar Bear
Tue Jun 19, 2018 7:21 pm
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 32
Views: 433

Welcome to MBB1921

Tuesday 19th June 2018 Welcome to: MBB1921 - who has signed up for my 97-year-old mother as mother's RLS is now extremely debilitating. Mother used to be able to overcome her RLS by walking or lying down, plus traditional meds for RLS. Now she is having it for hours with no relief and it is keeping ...
by Polar Bear
Tue Jun 19, 2018 9:19 am
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 32
Views: 433

Welcome to SY6XX

Tuesday 19 Jue 2018 Welcome to SY6XX - who finds It was impossible to relax. The pills take way to long to work if they worked. It was absolutely miserable. We are glad that you have found us. Please tell us a little about yourself using the Just Joined Forum. We want to help. Something to bear in m...
by Polar Bear
Mon Jun 18, 2018 1:42 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 704
Views: 42346

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Eefall - thank you for telling us how you are, we care how you are. As I write this in is 14.30 my time. I am standing doing a jig from one foot to the other... unable to get on with some paperwork because sitting down is impossible. Perhaps I will do some ironing until these symptoms hopefully sett...
by Polar Bear
Sat Jun 16, 2018 12:27 pm
Forum: Prescription Medications
Topic: Desperate
Replies: 27
Views: 405

Re: Desperate

KDJM wrote: I still have RLS earlier in the day, particularly if I try to sit and watch TV. But, the medications seem to be working very, very well in the evening. I can't believe it.


I feel a joy in my heart when I read this.
by Polar Bear
Fri Jun 15, 2018 6:13 pm
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 32
Views: 433

Welcome Jacquie

15 June 2018 Welcome today to Jacquie - whose symptoms are becoming worse and has to take more meds. Jacquie wakes in the middle of the night every night to medicate. When waking in the morning has symptoms until out of bed. You are among friends here who totally understand your difficulties. I also...
by Polar Bear
Thu Jun 14, 2018 9:37 pm
Forum: Just Joined?
Topic: Stem Cell Transplant
Replies: 4
Views: 76

Re: Stem Cell Transplant

I am not familiar with the use of methadone but others will be along who should be able to advise further.
Your dad is in good hands with Dr Rye.
by Polar Bear
Thu Jun 14, 2018 4:55 pm
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 32
Views: 433

Welcome to MezaJarJarBinks

14 June 2018 Welcome today to: MezaJarJarBinks - RLS has led to the need for MezaJarJarBinks and his wife to sleep in different bedrooms. We are glad that you have found us. is it yourself, or your wife, or perhaps both of you who are suffering from RLS. Please post and tell us of your situation and...
by Polar Bear
Thu Jun 14, 2018 4:30 pm
Forum: Just Joined?
Topic: Stem Cell Transplant
Replies: 4
Views: 76

Re: Stem Cell Transplant

kelleydaniel - welcome. We are glad that you found us but sorry that you and your father are in such need. With regard to the RLS has your father had a Ferritin test done, this is pretty important. It is a blood test that is not normally done with routine blood works and you need to ask for it. This...
by Polar Bear
Sun Jun 10, 2018 8:57 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 23
Views: 682

Re: What Calms You in the Night?

Mental agony from physical symptoms - says it all !!
by Polar Bear
Sat Jun 09, 2018 9:30 pm
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 32
Views: 433

Welcome

9th June 2018 Welcome today to: bexter - RLS has increased stress level tremendously and obviously, the older bexter get sthe more frequent episodes become. It makes for a lousy evening and even worse bedtime. omarv13 - who has undiagnosed RLS and omarv13's 18 year old daughter has an official RLS d...
by Polar Bear
Sat Jun 09, 2018 7:57 pm
Forum: Augmentation
Topic: Augmentation- Cold Turkey
Replies: 16
Views: 475

Re: Augmentation- Cold Turkey

Do you think your doctor would be open to reading information provided by an RLS Expert? There are some links in the Just Joined Forum - RLS A Good Place to Start. Also in the Augmentation section. Printing off a few relevant papers could be useful. Also, this is a great book, it is easy to read and...
by Polar Bear
Sat Jun 09, 2018 7:44 pm
Forum: Just Joined?
Topic: Hello from Kentucky
Replies: 8
Views: 146

Re: Hello from Kentucky

SleepyJudy - take note that when you are given your Ferritin result, please ask for the numbers. This is because it is generally accepted that a level of around 20 is OK. However, for those of us with RLS (Especially if using a DA such as Ropinerole) we want and neee the level to be up around 100.
by Polar Bear
Thu Jun 07, 2018 4:29 pm
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 32
Views: 433

Welcome to Reba1

7th June 2018 Today we welcome: Reba1 - who finds that several “awake” hours are filled with such discomfort and anxiety that not only Reba1, but also the family is feeling the effects of RLS. Reba1 tries “hide” symptoms so as not to upset others, but sometimes they see through the attempts. Reba1 d...
by Polar Bear
Thu Jun 07, 2018 6:03 am
Forum: Just Joined?
Topic: JUNE 2018 - NEW MEMBERS
Replies: 32
Views: 433

Welcome to Penno0396

Thursday 7 June 2018 Welcoome today to Penno0396 - who has had this condition since a child. It has become progressively progressively worse and has gotten to the stage where some feedback is needed. Penno0396 is interested in any alternative methods. Please make a post about your medications and do...
by Polar Bear
Thu Jun 07, 2018 5:43 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 23
Views: 682

Re: What Calms You in the Night?

I've done the setting a timer also. Also keeping a chart with times and measured liquid output. I know fine well that it can be done because very often its 3 - 4 hours without difficulty but other times it's only 20 minutes and urgent. The old saying of "never pass a clean toilet" definite...

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