The burning in your legs sounds like neuropathy. Mine is controlled with pregabalin though I know you don't want to take any medications.
6/7 hours sleep is a blessing.
I also use a cpap machine and it changed my life.
Search found 7470 matches
- Tue May 14, 2024 6:34 pm
- Forum: Augmentation
- Topic: Reversing Restless Leg Syndrome
- Replies: 58
- Views: 13390
- Sat May 11, 2024 3:21 pm
- Forum: Just Joined?
- Topic: MAY 2024 - New Members
- Replies: 8
- Views: 336
Welcome to Mjm
Saturday 11 May 2024 Welcome today to Mjm who I has lived adult life very sleep deprived. RLS definitely altered Mjm's ability to manage everyday stressors, diminished the ability to be career successful and has left Mjm with personal doubt. RLS affects all aspects of our lives and it feels like we ...
- Tue May 07, 2024 1:56 pm
- Forum: Just Joined?
- Topic: MAY 2024 - New Members
- Replies: 8
- Views: 336
Welcome to johnhig
Tuesday 7 May 2024 Welcome today to johnhig who finds RLS has taken away many enjoyable aspects of his life. Pain and fatigue have been discouraging but he is making progress with iron supplementation, gabapentin and exercise. :-) We are glad to hear that you are making some progress. RLS does indee...
- Tue May 07, 2024 1:35 pm
- Forum: Prescription Medications
- Topic: Methadone on backorder for nearly a month!
- Replies: 25
- Views: 2046
Re: Methadone on backorder for nearly a month!
Sounds blissful sleep.
- Mon May 06, 2024 11:42 am
- Forum: Just Joined?
- Topic: MAY 2024 - New Members
- Replies: 8
- Views: 336
Welcome to valerie1227
Monday 6 May 2024 Welcome today to valerie1227 who suffers immensely with rls which she has had since the early 90’s. valerie1227 has experienced augmentation to the point of titreing herself off of Mirapex…a feat she says is not for the faint of heart. She would like to communicate with peers who k...
- Sun May 05, 2024 4:27 pm
- Forum: Just Joined?
- Topic: MAY 2024 - New Members
- Replies: 8
- Views: 336
Welcome to Texaslady63
Sunday 5 May 2024 Welcome today to Texaslady63 who has RLS and so does her 84 yr old Dad. The RLS keeps her Dad awake many nights. We are glad that you have found us but sorry that you have needed to do so. Are you and your father being treated by your doctor for RLS and if so have you both had your...
- Sat May 04, 2024 3:57 pm
- Forum: Prescription Medications
- Topic: Methadone on backorder for nearly a month!
- Replies: 25
- Views: 2046
Re: Methadone on backorder for nearly a month!
Views, I am so happy for you. It must have been such a nervous time waiting until it was in your hands.
As you say, now to work n your stash. I am fortunate. I use less (cocodamol) than prescribed and my stash steadily increases.
As you say, now to work n your stash. I am fortunate. I use less (cocodamol) than prescribed and my stash steadily increases.
- Fri May 03, 2024 8:07 pm
- Forum: Prescription Medications
- Topic: Methadone on backorder for nearly a month!
- Replies: 25
- Views: 2046
Re: Methadone on backorder for nearly a month!
This is so awful that meds are unavailable to this extent..
That you spend hours on the phone getting nowhere.... the frustration is soul destroying, while also trying to cope with uncontrolled symptoms.
I feel so much for all of you.
That you spend hours on the phone getting nowhere.... the frustration is soul destroying, while also trying to cope with uncontrolled symptoms.
I feel so much for all of you.
- Thu May 02, 2024 11:40 pm
- Forum: Prescription Medications
- Topic: Methadone on backorder for nearly a month!
- Replies: 25
- Views: 2046
Re: Methadone on backorder for nearly a month!
Result.
What a helpful pharmacist.
What a helpful pharmacist.
- Thu May 02, 2024 12:13 pm
- Forum: Augmentation
- Topic: Reversing Restless Leg Syndrome
- Replies: 58
- Views: 13390
Re: Reversing Restless Leg Syndrome
It I just gets better and better for you. Your journey is an encouragement for all for sufferers. Well done.
- Sun Apr 28, 2024 1:25 pm
- Forum: Just Joined?
- Topic: Codeine
- Replies: 8
- Views: 295
Re: Codeine
I am in the UK and my Dr nearly had a fit when methadone was suggested. I'm fortunate that the cocodamol at max dose works for me.
Bear in mind that medication for rls works best if taken in advance of symptoms.
Bear in mind that medication for rls works best if taken in advance of symptoms.
- Sat Apr 27, 2024 9:35 pm
- Forum: Just Joined?
- Topic: Codeine
- Replies: 8
- Views: 295
Re: Codeine
I have been a sufferer for 40 years and if untreated I would have rls pretty much 24/7. I am prescribed cocodamol 30/500 x 2 by 4 times daily. Mostly I only take it 3 times. Occasionally taking one during the night. I am also prescribed pregabalin 300mg twice daily for neuropathy and this has the be...
- Thu Apr 25, 2024 12:38 pm
- Forum: Just Joined?
- Topic: Newbie with RLS for 25+ years
- Replies: 1
- Views: 241
Re: Newbie with RLS for 25+ years
You are taking ropinerole 2mg twice daily and this is much too high a dose. You are augmented and will need to wean off the ropinerole altogether and this should be done with the support of your doctor. Non drug help is unlikely to help you do this. If your doctor is understanding and would prescrib...
- Tue Apr 23, 2024 10:56 am
- Forum: Augmentation
- Topic: Reversing Restless Leg Syndrome
- Replies: 58
- Views: 13390
Re: Reversing Restless Leg Syndrome
What a wonderful result. Your determination has paid off in bucketfuls.I wish you good times. ....... Thumbs up.
- Mon Apr 22, 2024 10:05 pm
- Forum: Just Joined?
- Topic: APRIL 2024 - New Members
- Replies: 20
- Views: 4010
Welcome to Bringdata
Monday 22 April 2024 Welcome today to Bringdate who has been living with RLS for a lifetime. It has become worse with age and Bringdata wants to hear from others about their experiences. You could start with reading through the Just Joined Forum and see how others have been coping. Are you currently...